Fluid intake

[Cosychair]

I was called yesterday by a consultant from the hospital.I had pneumonia and fluid on the lung in November.

My recent x- Ray shows fluid is worse.

Consultant rang to see how i was doing.

I feel fine but I am concerned about the fluid.

He advised me to drink only a litre of fluids a day.

Any advice would be grateful.

Also I have been diagnosed with heart failure.

Thanks

[BeKind28-]

Hello

I am so sorry to hear you had pneumonia I had double pneumonia about 5 years ago and ended up in resuscitation then on ICU and not nice at all

Usually they give you a xray 6 weeks later to see if it has cleared and as you have fluid I wonder are you on some kind of water tablet to help ?

I really do not know much about this but wanted to reply as I know what having pneumonia is like as well as having heart issues

Are they going to get another xray doe at some stage ?

I would keep to the fluid intake start writing a list of questions you have and maybe see if you can talk to your Doctor or ask when you next have a follow up appointment which hopefully you have

I hope someone will come along that will be able to help answer your question and keep us updated how you get on x

[Cosychair in reply to BeKind28-]

HiThanks for your reply.

Yes I am on a water tablet.

I am due to see cardiac nurse in Feb.

I'll see what they say. May ring them in the meantime to ask about the fluid intake.

Take care.

[BeKind28- in reply to Cosychair]

Hello

I am glad you have an appointment soon and hope you will update us x

[Petermagennis]

I was advised to keep my fuid intake to no more than 2L per day. Now I've been out on Forxiga ibe been to to drink plenty of fluid. I wish they'd make their minds up.

[Cosychair in reply to Petermagennis]

Yes, I know what you mean.I was only told about the one litre of fluid the other day.

It's been going on for about 8 weeks.

😏

[Pouchielou1972]

I also have heart failure and my lungs and lower body were full of fluid a year ago when I was first diagnosed and advised to only have 1.5 litres of fluid a day. At the time I was put on Furosemide drip to quickly release the fluid, then this was changed to the tablet form and now Dapagliflozin and Spironolactone going forward to keep the fluid at bay. Now that the hesrt failure gas improved significantly, I have been advised there is no limit to the amount of fluid I can have.

[Cosychair in reply to Pouchielou1972]

Thanks for your reply.Good to know you are doing well.

I am onFurosemide and Dapagluflozin.

I was surprised my fluid on the lung had increased as I am feeling OK.

How long were you on 1 and a half litres a day?

How are you coping with the heart failure ?

[Pouchielou1972 in reply to Cosychair]

Unfortunately the fluid can return which is why we have to take meds to try to keep it at bay. I only need to take Furosemide now if I feel like I have some fluid back. With you being on Furosemide and Dapagliflozin, this should help to get rid of the extra fluid.I was on 1.5 litres for about 9 months once the fluid had disappeared and my HF had improved. It was very severe to start with...EF was just 10%, but is now 45-50% and I have no symptoms thus far. I was in a really bad way to start with, but am now back Weight training and enjoying my life again. I also have an ICD.

I went through a grieving process to begin with trying to get to grips with hoe my life has changed, but now I have the attitude that I'm one of the lucky ones that is still here, so I'm making the most of this 2nd chance and concentrating on the things I can do rather than the things I can't do

You can still live a normal life with heart failure depending on how your body responds to the meds. It can be improved.

How are you coming along with your HF? Have you got your head around it all?

[10gingercats]

I have had lung fluid and fluid around heart at various times.Spironolactone and flurosimide worked well for some time but I had a problem with high potassium so Spiron. was dropped and Amlodopine...a very small dose went in its place with the furosimide.... and tha seemed to do the trick . But yours sounds more serious so you may have to pay careful heed to your docs. But gathering a few ideas from this site may help you to discuss your case better with your docs.

[Cosychair in reply to 10gingercats]

Thanks for your reply.I am trying the one litre of fluid but it isn't much when you measure it.

Using a smaller cup for tea and coffee.

I have not been prescribed spironolactone.

Thanks 😊

[BelaPatka9]

Hello there,

You seem to describe a similar situation to me... In September I became very ill with a bad case of pneumonia and ended up in hospital. I also had recently discovered AF, so while being in the hospital I developed pleural effusion, a complication caused by pneumonia. At first, the consultants thought of water pills but then decided on draining the liquid (about one litre). The procedure was quick and painless. The relief was immediate, the pressure on the chest was gone. Subsequent X-rays showed the lungs clear of liquid. The consultants were the heroes of the time spent in the hospital.

Pneumonia plays havoc on the system and it takes time to recover. I wish you all the best.

[Cosychair in reply to BelaPatka9]

Thanks for your reply 👍

[Deejay62]

Hi I have heart failure EF 23% last year. Before that it was 10% then 15% and I was told to only have 1.5 litres a day. That includes gravies or any liquid. I find it difficult to work out. I was on furosemide until it stopped working and my fluid began to build up. They changed me to Bumetanide and I’m no longer struggling with the fluid retention.

[Cosychair in reply to Deejay62]

Thanks for your reply 😊

[fishonabike]

as an ex nurse i am concerned at such a low restriction and that this is not time limited

as far as i am aware any fluid restriction should be temporary and you cardiologist should have been clear about a time limit - also 1 litre a day is very low - the norm is 30ml per kilo (1l =1000ml) fluid intake, this includes drinks and the fluid in foods - please contact you cardiologist and/or GP to question this, particularly if it is not helping you to feel better

[Cosychair in reply to fishonabike]

Thanks so much for your reply, I did get in touch with the cardiology nurses today. They are going to see me next week. It was the consultant who looked at the chest x-ray who advised the fluid intake.Thanks for your concern 👍

[Heartinthehills]

Hi Cosychair. Sorry to hear about your symptoms and I am replying because I have developed similar symptoms since mid December which feel like a return of fluid on the lungs. I have had heart failure for 10 years which was well under control until late last year. I had a chest Xray 2 weeks ago but not seen results yet. I have been back on Furosemide for 2 weeks and hoping that this will help and see the GP again next week. I am interested to share outcomes and will post anything relevant if and when there are any changes to my symptoms.

[Cosychair in reply to Heartinthehills]

Thanks for your reply, I am to see cardiology nurse next week.Hopefully they can answer my questions regarding the fluid intake.