It looks like my weakened heart (Cardiomyopathy) and possibly the cardiac drugs is having a negative affect on my Kidneys.
They have been sitting at eGFR of 29 for over a year and now my Doctor has referred me to a renal guy.
From what I have read there is no cure. I dont smoke and my BP is around 115/60.
Anyone else in same boat?
Sorry to hear, have had chronic kidney disease for years 53 years! No cure all i get is regular blood tests, i find shiatsu keeps me well .
how could you POSSIBLY have/survive this for 53yrs!?!?
My cardiomyopathy is genetic so I guess I have had it all my life. That being said its only really impacted my life over the last 5/6 years. Not sure (and don't care) where the 53 years came from.
you wrote that you've had it for 53yrs. but you said its genetic so, ok.
Can you show me where I said I had it for 53 years? Or do you get your kicks from picking arguments?
Shiatsu, Japanese accupressure
I put it down to regular shiatsu treatments and no alcohol
I'm glad you have found something that works for you.
what is shiatsu??
I am sorry you are going through this and I'm sorry I can't really help much. Just thought I'd mention an article in the paper yesterday saying how the drug Empagliflozin is helping people with kidney issues and it also protects the heart. Are you on this? It's normally only given to people with diabetes. I take it. Just a thought that might be worth mentioning.All the best, Susie.
Hi I’m on dapagliflozin think same/similar to you. Was advised to take by cardiac nurse for heart.
That's interesting. I'm on Dapagliflozin, maybe that is the same family of drugs?
Oh yes, it is, I'm not sure what the difference is though.
Worth mentioning to the Doc, I think.
Definitely x
This was the article:dailymail.co.uk/health/arti...
My report says chronic renal impairment but the doctor says it usually happens in people as they get older. I was concerned because my mother died of renal failure but he said my results were not a worry. I haven't been referred to a renal specialist, though. I just have 6 monthly blood tests.
Good morning curryandchips. No there is no cure for kidney disease. But it's good that you are being referred to a kidney specialist. Who will keep you under observation and try to maintain your present Egfr. With the help of you keeping fit and exercises and eating the right food and then depending on your age. You will be able to go on the kidney transplant waiting list for when your Egfr gets a lot worse. I have a friend who got the call just last Friday morning at 2am to go to hospital. He has had his new kidney and is walking around the ward now. There's a very informative Facebook group. Chronic kidney disease uk. You will get plenty of information from there.Your Blood pressure is also very good. Which helps your kidney function. Good luck and keep in touch. Brian
Many thanks.
Sorry to hear your situation. I have dilated cardiomyopathy and my kidneys function are reducing too.
I had some new tablets added and I’ve been taken off warfarin to one of the newer anticoagulation tablets. Even that one was reduced because it was affecting my kidneys. I also have pulmonary hypertension.
I feel these things are part of my reduced life expectancy. I’ve had 20 yrs good run since I went into heart failure. I think because of my weakened heart I can’t expect too much because eventually my other organs will suffer too, which is what is happening. I’m taking so many tablets now daily, I’m being monitored by my GP and cardiologists mainly to check my kidney function.
All the best.
Never give up! New drugs being developed all the time and BHF is 3 years into a developing a stem cell solution.
Just seen this.......A new, first-in-its-class treatment for hypertrophic cardiomyopathy, mavacamten, has been a game-changer for my patients with obstruction.
Obstructive Hypertrophic Cardiomyopathy. I have dilated Cardiomyopathy so I don’t know if it will work the same. I see my heart failure cardiologist in May then my EP a month after, so I will find out how I’m coming along. At the moment they’re trying to improve my kidney function which is dropping.
Kidney problems due to meds.
weak heart
Heart Issues
Heart / kidney/liver
