Kidney Issues due to weak heart - British Heart Fou...

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Kidney Issues due to weak heart

Curryandchips profile image
23 Replies

It looks like my weakened heart (Cardiomyopathy) and possibly the cardiac drugs is having a negative affect on my Kidneys.

They have been sitting at eGFR of 29 for over a year and now my Doctor has referred me to a renal guy.

From what I have read there is no cure. I dont smoke and my BP is around 115/60.

Anyone else in same boat?

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Curryandchips profile image
Curryandchips
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23 Replies
Wellington19 profile image
Wellington19

Sorry to hear, have had chronic kidney disease for years 53 years! No cure all i get is regular blood tests, i find shiatsu keeps me well .

ss3k profile image
ss3k in reply to Wellington19

how could you POSSIBLY have/survive this for 53yrs!?!?

Curryandchips profile image
Curryandchips in reply to ss3k

My cardiomyopathy is genetic so I guess I have had it all my life. That being said its only really impacted my life over the last 5/6 years. Not sure (and don't care) where the 53 years came from.

ss3k profile image
ss3k in reply to Curryandchips

you wrote that you've had it for 53yrs. but you said its genetic so, ok.

Curryandchips profile image
Curryandchips in reply to ss3k

Can you show me where I said I had it for 53 years? Or do you get your kicks from picking arguments?

Wellington19 profile image
Wellington19 in reply to Curryandchips

Shiatsu, Japanese accupressure

Wellington19 profile image
Wellington19 in reply to ss3k

I put it down to regular shiatsu treatments and no alcohol

Curryandchips profile image
Curryandchips in reply to Wellington19

I'm glad you have found something that works for you.

ss3k profile image
ss3k in reply to Wellington19

what is shiatsu??

Sljp0000 profile image
Sljp0000

I am sorry you are going through this and I'm sorry I can't really help much. Just thought I'd mention an article in the paper yesterday saying how the drug Empagliflozin is helping people with kidney issues and it also protects the heart. Are you on this? It's normally only given to people with diabetes. I take it. Just a thought that might be worth mentioning.All the best, Susie.

gorillaqueen profile image
gorillaqueen in reply to Sljp0000

Hi I’m on dapagliflozin think same/similar to you. Was advised to take by cardiac nurse for heart.

Curryandchips profile image
Curryandchips in reply to Sljp0000

That's interesting. I'm on Dapagliflozin, maybe that is the same family of drugs?

Sljp0000 profile image
Sljp0000 in reply to Curryandchips

Oh yes, it is, I'm not sure what the difference is though.

Curryandchips profile image
Curryandchips in reply to Sljp0000

Worth mentioning to the Doc, I think.

Sljp0000 profile image
Sljp0000 in reply to Curryandchips

Definitely x

Sljp0000 profile image
Sljp0000 in reply to Curryandchips

This was the article:dailymail.co.uk/health/arti...

Silvertail profile image
Silvertail

My report says chronic renal impairment but the doctor says it usually happens in people as they get older. I was concerned because my mother died of renal failure but he said my results were not a worry. I haven't been referred to a renal specialist, though. I just have 6 monthly blood tests.

Bingo88 profile image
Bingo88

Good morning curryandchips. No there is no cure for kidney disease. But it's good that you are being referred to a kidney specialist. Who will keep you under observation and try to maintain your present Egfr. With the help of you keeping fit and exercises and eating the right food and then depending on your age. You will be able to go on the kidney transplant waiting list for when your Egfr gets a lot worse. I have a friend who got the call just last Friday morning at 2am to go to hospital. He has had his new kidney and is walking around the ward now. There's a very informative Facebook group. Chronic kidney disease uk. You will get plenty of information from there.Your Blood pressure is also very good. Which helps your kidney function. Good luck and keep in touch. Brian

Curryandchips profile image
Curryandchips in reply to Bingo88

Many thanks.

Deejay62 profile image
Deejay62

Sorry to hear your situation. I have dilated cardiomyopathy and my kidneys function are reducing too.

I had some new tablets added and I’ve been taken off warfarin to one of the newer anticoagulation tablets. Even that one was reduced because it was affecting my kidneys. I also have pulmonary hypertension.

I feel these things are part of my reduced life expectancy. I’ve had 20 yrs good run since I went into heart failure. I think because of my weakened heart I can’t expect too much because eventually my other organs will suffer too, which is what is happening. I’m taking so many tablets now daily, I’m being monitored by my GP and cardiologists mainly to check my kidney function.

All the best.

Curryandchips profile image
Curryandchips in reply to Deejay62

Never give up! New drugs being developed all the time and BHF is 3 years into a developing a stem cell solution.

Curryandchips profile image
Curryandchips in reply to Deejay62

Just seen this.......A new, first-in-its-class treatment for hypertrophic cardiomyopathy, mavacamten, has been a game-changer for my patients with obstruction.

Deejay62 profile image
Deejay62 in reply to Curryandchips

Obstructive Hypertrophic Cardiomyopathy. I have dilated Cardiomyopathy so I don’t know if it will work the same. I see my heart failure cardiologist in May then my EP a month after, so I will find out how I’m coming along. At the moment they’re trying to improve my kidney function which is dropping.

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