entresto: has anybody had any trouble... - British Heart Fou...

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entresto

Jarvo977 profile image
14 Replies

has anybody had any trouble getting entresto. I had so much hassle gettting them this week couldn’t get any and I had run out . Pharmacy said go back to doctors for alternative but then i find out there no real alternative to it . My heart nurse wasn’t impressed with pharmacy .

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Jarvo977 profile image
Jarvo977
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14 Replies
E4st666 profile image
E4st666

Yes, we had bug problems earlier this year - found it really stressful!

If your pharmacy can't fulfill your prescription ring round some other pharmacies to see if they have a supply of Entresto, and if they do retrieve the prescription from the original pharmacy and take it to the one who can supply you. I have done that in the past with medication.

Qualipop profile image
Qualipop

I take a very strong opiate for 30 years of chronic pain. The side effects/withdrawal symptoms of suddenly stopping would be dangerous. I can only take the named branded version so when it's unavailable, I have to phone every chemist for miles around to see if they have one or two bottles in stock then phone the GP to ask for separate prescriptions for each pharmacy. It causes havoc because they usually don't have room to store several bottles so it ends up with 2 bottles here, one bottle there and huge confusion for the GP until I can find enough.One time after managing to get enough, the GP forgot to cancel my original prescription which my usual chemist delivered 2 weeks later. I ended up with 2 months worth of a class 1 drug and the GP surgery got into trouble. Someone really needs to sort out this supply issue.

I am now just starting entresto. I have to admit I am a bit worried if the pharmacy's can get it easily. However my story Is that I got my prescription from the cardiologist at my local hospital. Went to the pharmacy in the hospital and was told I could get it from my local pharmacy, nievly I went to my local pharmacy and they said yes we can get it but it has to be ordered in. This was Thursday. For some reason could not get it the Friday. Had to come from another supplier. My pharmacy is shut for weekend so hopefully it will be in on Monday. But the reason they don't keep it on stock is cost. Its not that they have never supplied it in the past to patients but cost. I belive in America they are 9 dollars a pill and you need two pills a day. So it's going to be a major exercise in planning.

Silvasava profile image
Silvasava

I've been on Entresto for a couple of years on various doses. I have had issues with supply sometimes but my pharmacy asked me to ask the surgery for a back up prescription so I could keep a months supply as back up. I've had to dip into it on occasion but I replenish from the new supply. I think some of the issues are pharmacies can have a quota and if it's exceeded they can't order more. I don't think it's always the manufacturer supply.

edplayer profile image
edplayer

There is definitely some absurd quota system in place (reputedly to prevent fraud where expensive drugs get sold on the black market) that means once or twice my pharmacy has had trouble supplying me. When that happens its a case of trying different pharmacies for one that hasn't already exceeded its quota that month. What a stupid system!

2wheeler profile image
2wheeler

It seems there is a shortage of several types of heart medicines.

BicuspidBloke profile image
BicuspidBloke

Yeah, my pharmacy have been fine for getting it in Nov & Oct but the three months before that were a nightmare - five day waits and down to my very last tablet on each occasion. Clearly a supplier issue.

Jarvo977 profile image
Jarvo977 in reply toBicuspidBloke

I had none for 2 days had to get emergency supply from hospital

Snowdrops_17 profile image
Snowdrops_17

Reading all your answers this terrible with some certain medication supplies! A Boots Pharmacy a couple of times were out of stock with a medication I took in 2019 but then choose another one and no problems so far yet!

Jarvo977 profile image
Jarvo977 in reply toSnowdrops_17

That’s good but there is no alternative to entresto . Even though pharmacy and doctors said there was in first place 🤷🏻‍♂️😱🙈

Snowdrops_17 profile image
Snowdrops_17 in reply toJarvo977

Yes I checked that Jarvo, hopefully there will be no more hiccups like this for you in the future! It's not always easy to check different pharmacies which have Entresto in stock! One pharmacy in town closed 🫣 and I was surprised it did! We have 2 Pharmacies in town and one in Morrisons Supermarket here! I haven't checked out that new one which opened in town yet! But otherwise it would be 11 miles to the next town! It is very frustrating when you depend on your prescribed medication for specific health reasons! I read all the comments and not familiar with how GPs or Pharmacies have to work legally! Having to wait for your important meds is nailbiting! So glad you could get some emergency supply 👍🙏

I take 2.5 mg Ramipril and the outside package seems to change every month from different pharmaceutical supplier! 🥰

MikeM46 profile image
MikeM46

My Entresto prescription from 20/11 still cannot be supplied, took my last dose earlier tonight. Hoping to find out later this morning if the hospital will issue a temp. prescription if their pharmacy still has any left by then.

Scary or what???🤯

Jarvo977 profile image
Jarvo977 in reply toMikeM46

Very

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