Spectacular ups and downs in energy - British Heart Fou...

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Spectacular ups and downs in energy

Taviterry profile image
4 Replies

Does anyone else experience vast fluctuations in energy?

Last Friday I happily walked for 4.5 hours and did a little exercise over the weekend. On Monday I felt terrible and a friend suggested taking me to A & E or even calling an ambulance. I took it easy on Tuesday, and on Wednesday dragged myself to my heart surgeon (75 minutes by public transport either way and a little walking). On Thursday I couldn't get up until midday, feeling physically and mentally exhausted to the point that I was contemplating how best to die. Today, Friday, I groaned at the thought of having to walk 15 minutes to the post office with a parcel, but felt so much better after I'd got there that I walked home by an indirect route that took 60 minutes. Now I feel good.

The surgeon was also puzzled by such fluctuations. My post-TAVI heart is fine. He has referred me to a gastroenterologist. I'm taking Clopidogrel, Ramipril and Simvastatin.

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Taviterry profile image
Taviterry
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4 Replies
Rovelli profile image
Rovelli

Hi! This sounds like me. I put it down to simple aging. Some days you can do what you have always done, and other days you are wiped out. I have had to learn that after very busy days, I need a quiet one or two, or not to try to pack so much in to a day. I have made myself feel like I was going to die carrying bags of heavy shopping half a mile up the road in hot weather. I recovered but will avoid doing that again. Best Wishes.

Taviterry profile image
Taviterry in reply to Rovelli

Thanks for that, Rovelli. Today, 48 hours after wondering about dying, I walked for five hours without a problem and had "more left in the tank". I wonder whether my body had carried out its own "detox" or whether I had "Herxed". (Almost ten years ago I had a nasty insect bite that gave me something like Lyme Disease - though no doctor has ever agreed with me. I still get mild symptoms, usually in late July/August. Build up of toxic waste can make someone feel much worse before it makes them feel better; the symptoms increase until a body expels the waste, a process known as "Herxing".)

Grassmower profile image
Grassmower in reply to Taviterry

Thats me today after doing too mant squats etc yesterday. I am out of condition and did too much instead of pacing.

Taviterry profile image
Taviterry

Just to add to my thread and my post referring to Lyme Disease. For a couple of months I've been feeling fine, then felt bad last Monday and ever since. I spent 90 minutes today putting about 20 different readings from a blood test of December 19 on to a spread sheet and noticed that those for eosinophils and c-reactive protein were above the recommended limits and this could indicate a bacterial or parasite infection, adding credence to my theory that the insect bite of ten years ago may still be having an effect.

BTW the reason I was transcribing the results was that they arrived on a cumbersome, faintly-printed, eight-sheet spreadsheet from the private hospital that ran the tests. I forwarded the PDF to my GP surgery, asking that they be added to my Patient Access, but nothing happened. Hopefully my compact, user-friendly version will be more acceptable.

It remains a frustration that my records are divided between my GP, the hospital that carried out various heart tests and the one that did my TAVI and none of these can access the others.

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