Hi everyone, I was diagnosed with large Atrial Septum Defect (ASD) last year, after an extremely long diagnostic journey.
After my diagnosis I was seen by a cardiothoracic surgeon who in light of my age, decided to refer me to another Trust, in which I was supposed to have my defect closed via percutaneous closure (as specialists in percutaneous closure).
However, despite they have attempted this, they have failed because of the particular location of the defect and its irregular anatomy. Therefore I will be listed to have open chest surgery to close my ASD defect.
Does anybody have experience of having ASD defect closed via such an invasive procedure? Is the scar impacting in your quality of life?
Also, I am tempted to re-contact the cardiothoracic surgeon that first visited me after my diagnosis as he was mentioning the possibility of attempting closing the defect using minimal invasive surgery. Has anyone had experience with this type of surgery?
Ultimately, I am very interested in considering any research studies involving ASD. Is anyone aware of projects involving adults suffering with ASD?
Thank you.