CT results / PFO : Hi,Having waited... - British Heart Fou...

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CT results / PFO

Scoops007 profile image
9 Replies

Hi,Having waited 9 weeks for the results of a cardio CT scan due to suspected angina, they have now confirmed there is no furring of the arteries or blockages.

They have written to say I should stop the aspirin and beta blockers but remain on the statins.

However, I am still left with a racing heart beat, breathless and no energy.

The letter did mention a small PFO and to wait for an Echo (these are on a 12 month wait in my area!)

Does anyone have any experience with a small PFO or could give me any advice on where I go from here please.

Many thanks.

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9 Replies
10gingercats profile image
10gingercats

Many people continue to live their whole lives with a PFO but mine was closed quite quickly when they found it due to a suspected embolism and /or TIA due to it....as diagnosed by a cardio and heart surgeon. I think perhaps you ned to try and find out a bit more about how yours came about ....life long or perhaps not. The docs. wanted to close mine....I was 72 at the time.... for fear i would have a full blown stroke. Usually the closure is done while you ar in hospital for 1 day and it is no big deal so do try and get to the bottom of why you may have yours and the prognosis.

Bluehope81 profile image
Bluehope81

12 month wait for an echo, we live under a 3rd world health service, when I was in China an Echocardiogram was 30 pounds and done the same day, its amazing how people still think the NHS is the envy of the world, maybe it was once but actually in places like Cambodia and most cities in Africa these tests are cheap and readily available.

Scoops007 profile image
Scoops007 in reply to Bluehope81

Hi I was a bit shocked that it took 9 weeks to get ct results! And even more so when they quoted 12 months for the echo. I've been through breast cancer and gave to say the care was outstanding. It all just seems to fall apart in any other department sadly.

Qualipop profile image
Qualipop in reply to Bluehope81

I think it's just certain areas. My friend in West LOndon saw her GP in late July about her knee, had an appointment with a surgeon on August 4th and a full knee replacement on September 9th. All done under the NHS but in a private hospital with a private room and done by the same surgeon who did her husband's two hip replacements. Some areas are certainly trying to catch up.

Chinkoflight profile image
Chinkoflight

Living with anxiety is not helpful and waiting for tests definitely creates anxiety. After a stroke I had similar long wait times for follow up cardio investigations. My GP offered the opportunity for a private referral. I could hear my dad turning in his grave but when the cost of an echocardiogram was around £160 and the Consultant referral circa £300 to discuss the outcomes I went ahead for peace of mind. Both appointments happened within a week!!! The echo was in the NHS hospital using the NHS staff and equipment that I had an indeterminate wait time on the NHS. Frustrating and I still feel I was part of a cunning plan to privatise the NHS.

Scoops007 profile image
Scoops007 in reply to Chinkoflight

Uumm I might have to look at doing similar, as much as I don't want too !!

Silvertail profile image
Silvertail

I have a PFO and atrial septal aneurysm. My cardiologists don't bother about it. When I asked a cardiologist abut it he said he would only close it if I wanted to do scuba diving. I have heard they can be associated with a cryptogenic stroke. About 20-25% of the population have them and are often not found until an autopsy. Mine was found in a routine echo - it is often hard to spot them depending on the skill of the technician and sometimes the position of the person being examined. This hole exists in everyone before birth, but most often closes shortly after being born. PFO is what the hole is called when it fails to close naturally after a baby is born.

Manhattan1 profile image
Manhattan1

found out 3 years ago after CT angio and invasive angio i have minimal atherosclerosis.. Cardiologist confirmed un a letter a few weeks ago i have Non obstructive coronary artery disease.. BUT i have to continue taking aspirin

Just wondering, a pfo is a congenital heart disease. So does that allow you to come under a congenital heart team? Guch department. Just wondering as you get a more personal treatment.

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