Aortic Valve leak and root dilation symptoms ???

[linnielizzie]

Morning all - As is the norm I am now waiting for an appointment so in the meantime and to save me from Google and the unnecessary worry that little adventure will bring - can I ask what kind of symptoms I might be experiencing ?? Found my Echo results on my NHS app and I really shouldn't have read it.....Got to laugh.🥴

[Yumz199725]

Definitely ask your consultant at your appointment what symptoms you should expect. I know you can have severe regurgitation and have no symptoms and moderate and symptoms. What did your echo say?? X

[linnielizzie in reply to Yumz199725]

Hi The aortic valve leak says mild but there is the dilated root and enlarged sinus of valsalva - whatever that is !! Told you I shouldn't have read it

[Yumz199725 in reply to linnielizzie]

It's medical talk so we're not meant to understand I find myself googling everything in my hospital letters! So don't worry about it 😅. Definitely ask your consultant to explain the echo results at your appointment x

[Pheasant1234 in reply to linnielizzie]

I’ve got a bicuspid aortic valve moor regurgitation and 37mm dilation at the sinus of valsalva. I’m 51. I found out August 2022 and given beta blockers and Bp tablets. Said I would be scanned every 12 months. I had my second scan this year in June and told no change the dilation is 36mm so no change and they are pushing the rescan out to 3 years. They told me I may never need surgery but who knows. I’ve had it nearly 52 years and it’s caused no issue. I was devastated when told but got to stage I just crack on. I’m fine do t feel poorly and I’m now on their radar. How big is your valsalva dilation?

[linnielizzie in reply to Pheasant1234]

Hi There are two readings - one says Ao Sinus of valsalva 38.6mm Second one says Dilation of the Sinus of Valsalva indexed to patients height 24.7 mm

[linnielizzie in reply to Pheasant1234]

Had to laugh at that as when she measured my height I was standing on the floor having got off the scales when she weighed me - it's two inches out !!!

[Robfromwales]

dilated means enlarged and my understanding is dependant on size may be classed as an aneurysm. I had a dilated ascending aorta at 5.1/2 that was operated on. I had mild regurgitation on aortic valve and a bicuspid valve ( congenital defect since birth). The valve wasn’t replaced as no stenosis and good leaflets and opening. I was told the operation on the ascending aorta should improve ( reduce) the leakage ( regurgitation.?

[Robfromwales]

( regurgitation) sorry no need for ?

[Crystal614]

Hi, I had an Echo done in April of last year I have been told that my Aortic root is mildly enlarged and I have mild regurgitation form the Aortic valve. My left Atrium is also mildly enlarged. I'm going to have a repeat Echo next year to see if things have worsened.

[Lexi72]

hi Liennielizzie, I have a similar diagnosis, biscuspid heart valve,( two heart flaps not three) not sure if you have this too, about 1-2 per cent of the population do, dilated aortic root and moderate regurgitation (blood flows back as the valve does not shut properly. This means the heart has to pump harder which can cause the dilated root. In common with many with bicuspid I have no symptoms. The really good news is that you have been diagnosed so you can be monitored and the doctors can operate at the right time. This can be in many many years I have had my condition from birth and am now 62. The doctors carry out echos st regular intervals and if the root becomes to large or the regurgitation to much they will operate and fix you . This is done in specialist heart units with lots of expertise and they do similar operations all the time with a really high success rate. Symptoms I was told to watch out for were tiredness, shortness of breadth and fainting but I think you only tend to get these if the regurgitation gets worse. You may remain completely asymptomatic and it may be many many years before the doctors need to do anything . So try not to worry. If you do want to learn more stick with British Heart Foundation Sites or NHS sites.. the doctor should explain simply what the medical jargon means in your case but don’t always manage this Best wishes Lexi

[Yumz199725 in reply to Lexi72]

Sorry to but in just couldn't help but relate to you I have bicuspid aortic valve severe aortic regurgitation and will need valve replacement surgery eventually x

[Yumz199725 in reply to Lexi72]

Oh and moderate stenosis so it's called mixed aortic valve disease.