Following on from Hidden ’s post earlier “Not a Rant”
I’m looking to set up a group chat for members who would find value in chatting and checking in on one another for support and give encouragement on those less positive days.
All welcome - anyone who would like to be included please let me know and I’ll add your name.
Please be aware that this wouldn’t be moderated but I would ask that we all treat each other with respect and kindness (hopefully goes without saying) and to refrain from any offensive language.
UPDATE: The group chat will be through the chat function here on this forum and I would like to stress that I intend to still contribute to the main forum as well 😁
Best wishes to all!
Soap 🧼
UPDATE 2: I’m absolutely gutted to inform you all that after (several) attempts to create the group, I have come to the conclusion that it won’t allow me to do it for that number of people. I feel I’ve let you all down and for that, I’m truly sorry.
I will continue to try and make contact with a moderator to explore a possible comedy/lighthearted chat day on a regular basis. Looking back it would seem this has been a thing in the past so there’s still hope 🤞🏼🤞🏼
Best wishes as always,
Soap 🧼
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MummaSoap
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Maybe you can just suggest this idea to the BHF on this Forum. They ask for Ideas and Suggestions! 😊
in reply to
That is a very good idea it can still be a place to talk about how we are getting on etc with our heart conditions but chat and a few laughs will not be objected to x
Bang you down for that straight away you haven't even asked where this group will be
What you like ! x
Hello
This is a good idea but unlike Andy who will do anything without asking more can you tell me been morse sensible than he is where the group will be set up x
We'll keep in touch and make sure you join us if you want to. Someone has to keep an eye on Andy.We'll still be here as well so we'll watch out for you. I'll have a word with MummaSoap and she'll save a seat for you. Tea or coffee?
No, on here. When I set it up you should get a chat request like you do when a member messages you privately.
I don’t want to move traffic away from the forum as I feel it’s still important that we can support those who don’t want to engage (which is their choice entirely) in any social/jokes/fun and frivolities 🙂
I believe we’re all valuable and all have the potential to contribute value to our own merits; I also believe that variety is the spice of life and each to their own.
I’m going to try and set it up (on here) tomorrow 🤞🏼 x
I think this is a grand idea. Can I join pls? Im not a frequent flyer on the forum but I really value it for the banter & quizzes as much as the info and experience. Its ALL support as far as Im concerned.
count me in please, the jokes are terrible ❤️ but they make me smile and I would miss you all as you were there for me at the start of this journey. I check out the forum every morning to see what you are all up to and recheck in the evening if someone has been unwell or has been having a difficult time. X
I’m not intending to move traffic away from the forum.
We will still all be around and have the ability to check posts on the forum - I do want to reassure those who don’t wish to join the chat. You are not being abandoned, certainly not by me and I’m still happy to contribute on the main forum to posts as and when I feel I can add value 💛
I will gladly add you to the group though, I hope you’re starting to feel better 🙂
ok so some people think Andy is to blame for all the problems? There are things on here any1 could question. The minority on here are ruining the whole community. When I got discharged from hospital I found this forum more or less straight away.
That was late October/early November last year. The positive stories I read, the friendly exchanges between members didn’t just bring me joy, they kept me believing.
Had I joined in the last week…….I would have given up all hope. Why the moderators are not stepping in on the bitching, the belittling, the bullying is honestly beyond me!!
My favourite post over the past week goes to TWU “I’m not a qualified cashier nor shelf stacker” I mean for me that is as good as this site has got and I fully understand his point. What has it come to?
I check every single day, looking for a smile- not to want to hang my head in shame!!
sorry this was not a personal dig at yourself. I’m just a little overwhelmed with the whole situation, which I’m not technically involveled in and as blue suggests in a separate thread I read after replying to this, the quiet members are speaking up. Wishing you well also. Be Kind 😀
No I never thought that at all and so sorry if it came across that way
I know you said you are new and I was trying to reassure you but did not do a good job by the looks of it
I know how overwhelmed you must feel I can assure you I have been here a while now and it has overwhelmed me but wanted to let you know to still keep coming on and getting help as for all what happens sometimes there are some very kind people on here and stay focused on those ( says me who lets it upset her to )
Come and talk to us whenever you need to and I hope you are doing ok at the moment x
I am almost guilty myself of starting a fight there with 1 of the very most respected members! I’m frustrated and would like to join the group Mumma suggests but now had a more sensible thought more along your thinking. If the sensible members start a new isolated group, where does that leave the newly diagnosed looking for something tomorrow or next week or month?! New idea….a mass report to the moderators of the members who truest step out of line? Maybe a better approach?
Well if you want to join the group Soap is talking about then just press reply under her post and say add me please
I doubt Healthunlocked to be honest would let us have a Community on their platform even though it is a good idea they would need Admins and even if we volunteered I once was an Admin on one of the anxiety sites and it is not easy you get reports all the time and it takes up all your time as you have to look or should look at each one
But if we did have a Community on here you can be a member of more than one Community you can join as many as you want on HU and so you can pop in and out of whichever Community you would like support from so that would not have been a problem
Regretfully even if we did a mass report to the moderators I am not sure they would answer us even though no stopping us if we wanted to but that was a part of the upset they were sending members warnings but not explaining what or why they had been given one and when they asked they got no reply
By the way thank you for your compliment but everyone in this Community is a respected member and that includes you to
I am thank you, and that is despite the grey skies and rain. I am beginning to think that big yellow thing has deserted me as the only things I am growing and eating at the moment are salad leaves and rubarb😀
I hope you are OK too (I hate to use the phrase well, sorry if I have got this wrong!)
And that leads me to the point I will pass on making a recommendation myself as I don't trust my decision making in that department and would be mortified if it was due to me a problem arrived,
Good morning Bekind, no need to say sorry at all (my turn to do so though😀) as I was at work yesterday and tired when I got in.
I did enjoy the bank holiday thank you, however as I went on an 'adventure' on Thursday/Friday to Fort William and Scafell Pike that meant a 20 plus hour drive (I was sharing driving duties) I seemed to have 'lost' a day and couldn't compute what day it was!
Anyway it's lovely today so off to the gym shortly and then some gardening and a walk up the allotment,
Hope you see the sun and get into the garden today.
What a long drive 20 hours plus well done on sharing the driving duties you must have been shattered !
You seem like you have a busy day today and yes we have so much we want to do in the garden and trying between the weather but today I think it is going to stop dry if we get any sun well not to sure but dry will do me after that so far it seems the nest Bank Holiday could be rain but they do change their minds so maybe not
I'm still processing the earlier conversations as there were some interesting points raised about the interpretation of the BHF's Community Guidelines.
Just reply to Soap and say add me and then she will send you an invite when she has set it up and that is about as much as I understand but if you get stuck just ask one of us and we will help you x
I like the idea very much and of course I need/want and beg an invite { not that it did much good with CC s Do , Charles & Camilla }
The only problem I have with it is that it could become exclusive and not inclusive.
When the main forum is peppered with the humour / light hearted posts it can { as much as a small group hate it } make the cold clinical answer posts sound more human.
I have been looking at other forums on here and they also {on most } have a balance of these type of posts, so Im not sure why a heart related one needs { or is needed to be } more somber.
I think that sometimes we can go off track, If the original post { OP } talks of Headaches due to medications, by the end of the post we can all be talking about taking the dogs out etc etc.
Many of us read just the line above us and not the original post.
Its that balance thing, get it wrong and maybe that's where some feel offended.
I agree Kevin, you raise a very valid point and I certainly don’t wish to exclude anyone.
After all, the “humanness” of this community is what spurs me to return time and again to try and offer my encouragement or share my experiences with others and also to seek support when I’m feeling scared or uncertain.
I believe balance is exactly what is being sought, I’m just not sure how best to achieve it. I did message several moderators about having a day a week, fortnight or month for this type of activity but didn’t receive a response although I appreciate that they are incredibly busy I’m sure!
I’m in , life can be hard as it is. Good humour is always welcome in my life. Myself & my 3 children have wicked sense of humour. They have left home and have families of their own. Their dad on the other hand has no sense of humour. When my children visit which is often we always have a good laugh. My other half just looks at us straight faced 🤣😂🤣😂which we find very funny. Bring on the humour xx
Yes please - I would like to be added. While I haven’t posted before, like many, I have been cheered by reading the threads that include more light-hearted chatter.
Are you able to support us with a suitable way forward please?
I don’t want to break any rules but clearly there’s a need for the type of content we’re discussing. Any help or suggestions would be greatly appreciated.
I would also like to join please as I think it would be great to just ‘chat’ about anything (within reason of course) we all know how valuable this forum is, which helps so many people, so great idea thanks
You haven’t missed anything - unfortunately I was unsuccessful in forming a group chat on here. Such a shame and I was so disappointed not to be able to help everyone.
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