Do you have Aortic Stenosis?

[Cat04]

If you have aortic stenosis, please sign this petition

petition.parliament.uk/peti...

[Hidden]

Hi Cat04

Just asking. Do you know what this company is about?

Are they NHS or are they trying to get in?

I have had conversations with them before as an aortic valve stenosis patient. They are very on board. I’m a bit perplexed by their pathway.

Answer non politically. It’s not a trick question. I’m just intrigued.

Thanks

Maisie

[Cat04 in reply to Hidden]

It is from the UK heart valve disease charity, Heart Valve Voice.

heartvalvevoice.com/

[Hidden in reply to Cat04]

I know the company. I’ve even done an article for their promos!!

What I want to know is what they’re about. I’m not sure about them. Call me cautious or even a sceptic. I’m, BTW, all for innovation in science and especially heart surgery and research.

What I cannot get answers to is are they an American $ company trying to get in by the back door. There it is I’ve said it. 🤭

[Cat04 in reply to Hidden]

From all that I can see this is a UK based charity, also with a forum on HU under the same name.

[Hidden in reply to Cat04]

Thanks Cat04

I never got any further either😔!

[Cat04 in reply to Hidden]

You've got me searching now 🤔🤔🤔

[SandraLlew in reply to Cat04]

heartvalvevoice.com/applica...

They seem to be lottery funded but do not have a charity commission or CIC registration number on their website - which is odd

[richard_jw in reply to Hidden]

A quick look at the accounts on the Charity commission site shows that the largest donor is A US company called Edwards Life Sciences which donated £207k out of a total of £310k in 2021 and and similar amounts in the previous year. Another large donor is CAF America which donated £55,912. CAF america is a company which apparently makes cross border giving simpler, so it's not a direct donor

[Cat04 in reply to richard_jw]

That puts a different slant on it!

[Hidden in reply to richard_jw]

Thank you richard_jw

It’s been bothering me and that answers many questions.

Maisie

[Hidden]

Signed it.