Mild aortic stenosis

[alvida15]

I was recently diagnosed following an echocardiogram. I will have a follow up echo in 3 years. The only medication I have is ramipril 2.5mg. I discovered my blood pressure was as high as it is now 5 years ago but the nurse only said it was a bit high and it wasn't pursued. What I'm wondering is if 3 years for follow up echo is soon enough? Did 5 years with raised blood pressure cause avoidable damage? Should I be on any other medication? Based on others experience with mild AS. Thanks 😊

[Hidden]

Try the BHF Heart Helpline nurse who will be able to provide professionally qualified answers to your questions.

bhf.org.uk/informationsuppo...

[alvida15 in reply to Hidden]

Thank you, I didn't know about this

[Blackcatsooty]

I noted that my doctors classified my stenosis as mild then years later moderate then months later severe. At which time I needed a replacement valve. During the period between mild and moderate I had no reason to be concerned. I could get on with my life. I now have a new valve after the amazing AVR and six months of rehab.

Enjoy your life until your stenosis warrants a change.

I am not medically qualified hence my comments are just about me, in the hope it helps you

Sooty

[alvida15 in reply to Blackcatsooty]

Thanks for your reply. Very glad you are doing well. What frequency were your echos during mild stage, if you don't mind me asking?

[Blackcatsooty in reply to alvida15]

good morning Alvida

I had an annual scan. For six years.

The first scan was a check following a stroke. The fifth showed moderate stenosis. The sixth showed very urgent need for a new valve.

So for five years I enjoyed my life. Only when the sixth scan showed severe stenosis then the medical need took over my life.

I was bicuspid but didn’t know. I had an active life, being bicuspid didn’t affect me. Especially as I didn’t know !

Being mildly stenosed for five years didn’t affect me. Being moderate stenosed did affect me quite a lot. It was a dramatic crash in my fitness.

As I say, I am not medically trained so I can only tell you my experience.

best wishes

Sooty

[alvida15 in reply to Blackcatsooty]

Thsnks for taking the time to reply, the firsthand info really does help

[wilsond]

Hi I have mild aortic stenosis picked up as I have a deformed aortic valve. It only has 2 flaps instead of 3 ,so less efficient.( bicuspid) This valve deformity was only picked up on investigations into my Atrial Fibrillation.I have had annual echoes since 2013. 2 years ago mild AS was noted . I feared the worst of course! However,I was told at my age ,63,that some stiffening of valves generally is not unusual,and particularly biscuspid ones.

I wouldn't worry overmuch

[alvida15 in reply to wilsond]

I'm 46, I'm not bicuspid, my AS is solely from damage. I'm determined to be proactive and get my heart as healthy as I can Thank you for the advice and I'm really glad you are doing well

[wilsond in reply to alvida15]

That attitude is half the battle won! Good luck xxxx😘🙂

[Silvertail]

I can't give you any advice, but three years between echoes seems too long to me.

[alvida15 in reply to Silvertail]

That was my instinct, I think I will raise that.