ACHD review after 1st change in 25 ye... - British Heart Fou...

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ACHD review after 1st change in 25 years!

Seaguller profile image
8 Replies

Just had consultation. EF improved from 41% to 52% so move in right direction. Scan and MRI inconclusive but valve seems ok so far. Scan again in July. Bisoprolol increased by 2.5mg. Disappointed to not know cause and have been told that longevity will be less than other, but still hopefully another 20 years or so yet. Just got to absorb and decompress now. Thanks for all the messages of support.

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Seaguller profile image
Seaguller
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8 Replies
SLK-14 profile image
SLK-14

That's really good news for you...can I just ask what you meant by the longevity comment..😊

Seaguller profile image
Seaguller in reply to SLK-14

Consultant said that people with ACHD tend to have impaired longevity compared to other people.

Can I ask why the 'cause' is so important to you?

Seaguller profile image
Seaguller in reply to

The cause would give a clearer indication of it is my valve that needs replacing or I have developed another defect. When you know the cause of an issue, you can work in the right direction to a solution or at least specific management

SLK-14 profile image
SLK-14

Hi Seaguller...thank you for your reply...I understand that now...Wishing you well..take care now and stay safe 😊

wischo profile image
wischo

Even if your consultant is correct now what will things be like in 10 years? never mind 20. Medical science is moving so fast I would say you have every reason to expect a longevity equal to the rest of the population. Take care.

Seaguller profile image
Seaguller in reply to wischo

Thanks. I wonder what exactly his motivation was?

wischo profile image
wischo in reply to Seaguller

He is living in the now, things will get much better as time passes.

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