Baffled: Agree suspicious of deleted... - British Heart Fou...

British Heart Foundation

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Baffled

3 years ago•3 Replies

Agree suspicious of deleted posts.

My point is if the word that cannot be mentioned is the thing that causes heart issues and leads to people ( like myself) seeking help is not allowed, where do you go.

My first port of call was the BHF helpline and the nurse referred me to this site saying it may help you as others are experiencing similar problems and then I am met with hostility from some members and deleted posts from the site.

My cardiologists secretary also suggested the BHF for help and support.

Maybe this post will be deleted.!

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jackrussellmad

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3 Replies

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3 years ago

Dear Jackrussekkmad.

I think at the end of the day it is covered protection for you. Why would you ask for answers to such important questions { to you } from complete strangers?.

This site was recommended to you like it was to many of us, but I think the main use to this part of the site { well certainly to me } is for supportive chat, and God did I need that more than medical answers.

I wish you to be so well

jackrussellmad in reply to 3 years ago

Understand your point and agree with what you are saying re medical advice. It's just sometimes knowing you are not the only one with these issues and they can be side affects which have resolved in others is enough to calm you down and get things in perspective.That from BHF nurse.

Never asked for medical advice or diagnosis just some understanding and reassurance really plus a bit of research on the topic as I am taking part in a follow up research programme.

Have complex heart issues, vascular and electrical apart from the discussed topic.

Never intended any offence.

Wish you and everyone out there, peace, happiness and a safe and healthy 2022

in reply to jackrussellmad3 years ago

Dear JackRussellmad

I never took offence from your post but really admire you for what your doing to understand and live with your condition.

You are in my thoughts, and here’s Cam sending love { well he’s asleep but that didn’t sound so good }

Loads of love to you