When you are just not sure what to do? - British Heart Fou...

British Heart Foundation

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When you are just not sure what to do?

AFandLQTS profile image
5 Replies

Hi,

I happen to have stumbled upon the site, so glad I did, when looking for someone in a similar situation to me.

I have LQST, high blood pressure and now AF. I was admitted to hospital following an AF episode - this started during a netball match. I felt strange, could get my breath and after only 7 mins I was the colour of a ripe tomato, red hot and sweating profusely. I found it difficult to left my arms to throw the ball so left court to try and get my breathing into order. I began to feel sick.

After the next 20 mins, while waiting for my husband to come and drive me home, my heart was erratic. I couldn’t get comfy or settle so went to A&E. My heart was beating between 150 / 170, my blood pressure was through the roof, and I felt unwell. I was given a concoction of meds to slow my heart but to no avail. I was like this for the next 12 hours. The cardiologist decided to carry out a cardioversion, this was the first one I have had. I was so scared. However, This is a pretty normal procedure to them I was told. Cardioversion reverted my heart to a normal sinus rhythm. I was given an increase in my meds with an added anticoagulant and sent home that same day.

You would think I would be feeling amazing, but I’m anything but! I’m living in fear that this will happen again, that I might have a stroke or a heart attack. I’m unable to sleep and full of anxiety.

My questions are: is anyone else in the same boat?

Should I be feeling like this?

What things can and shouldn’t I be doing?

I’m a 44 year old primary school teacher, who other than being slightly overweight, is a non smoker, and a rare drinker, I have always been active.

So sorry for the size of this post, thank you for reading it (if you’ve even got to this point) and if you have any advise, it will be welcomed.

Kindest regards

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AFandLQTS
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5 Replies
Mart25 profile image
Mart25

Welcome to this wonderful forum. It's (generally) full of helpful people and you will usually find someone who has some useful experiences to share. I have not myself had AF but I relate to your continuing worries. The mental side of these things is vitally important and it doesn't get too much attention from the medics, because their main interest is to sort you out and send you home. Like you, most of us hearties have had a mental shock of some sort - some have had heart attacks, some have sudden onset angina pain (that's me). Many people talk of being apparently fit and healthy, with good diets, plenty of exercise, limited alcohol and don't smoke and so their sudden turn for the worse is extra shocking (that's me again). So I sympathise with your feelings of anxiety and uncertainty.

It sounds like you should talk to someone who can help. Your GP is an obvious place to start but GPs are so busy that it might prove tricky to get a quality discussion. Another option is the British Heart Foundation's cardiac nurses on their helpline : see bhf.org.uk/informationsuppo....

I hope too that someone will follow-up with you (perhaps on the phone) to see how you are doing. This may be your GP or perhaps the cardiologist who treated you.

Maybe someone with AF will reply to you with some specific experience that will help, but in the meantime just know you are among friends in this forum, who understand what you are going through. Good luck.

Swim2fitness profile image
Swim2fitness

I recently had an unexplained heart attack, I was fit and healthy non smoker and only drank a little occasionally, good diet. I spent 6 days in hospital on various machines to try to find the cause and nothing. I was very nervous when discharged mainly because no cause found, no intervention other than pills, I was very worried this was the end and it might happen again at any time with nothing I could do to change things. I went through lots of anxiety, emotions were rife and feelings of grief as my life changed dramatically. I promised to be kind to myself and take time to adjust, told myself it was fine to be worried but to wake up every day thinking it’s great to be alive. Is working for me and I spend less time worrying now. I am four months on from my MI. Take care of yourself and I hope u you ou find a way to worry less x

Milkfairy profile image
MilkfairyHeart Star in reply to Swim2fitness

HelloSwim2fitness,

Did your Cardiology team mention, Myocardial infarction non obstructive coronary artery MINOCA with you?

About 10% of heart attacks occur without any obstructions in the coronary arteries.

The causes of MINOCA are Microvascular dysfunction, coronary vasospasms, spontaneous coronary artery dissection, a random blood clot forming.

You might be interested in this article.

ahajournals.org/doi/full/10...

Swim2fitness profile image
Swim2fitness in reply to Milkfairy

Apparently ruled that out too. So still non the wiser as to why it happened but thank you for your reply.

Milkfairy profile image
MilkfairyHeart Star

Hello AFandLQTS

Welcome to the forum.

You've had some really good advice already.

Another suggestion is to have a look at Arrthymia Alliance website. AA is a support group for people living with heart rhythm problems.

heartrhythmalliance.org/aa/uk

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