Just had something "switched on" on my pacemaker to help with sob and ankle swelling. Where can I read up on such settings please?
Workings of pacemaker : Just had... - British Heart Fou...
Workings of pacemaker
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Easier to ask your pacing clinic what exactly they have done, sounds a bit odd unless they've just increased or decreased your pacing level.
Been there today but want to learn more about how they work and what they are capable of doing
Can they make changes remotely? Are you feeling better now ? I've been wondering this because suddenly I have changes to my heart rhythm (PVCs) and these affect me badly. I had 7 fabulous days after having mine fitted. Have you had your pacemaker for long - hope you don't mind me asking.
You may need your settings altered, give the clinic a call.
I did (twice) and they inferred that it is set as it is and that the only thing that is paced is for SVT, which I had no idea I had. I was told I need Beta Blockers again to control it, but for all the years I took that stuff I still had this and the other rhythms. I'm more than perplexed today .... I'm actually fraught, because I can't live my life like this. I am surprised that they can alter them remotely. I'm looking forward to hearing from the lady that instigated this thread. Thank you anyway.
I attended clinic and they "switched" something on to give me more oomph when I exert myself. I no so little about them so I want to find out more. Mine was fitted April 2020 and after the RV lead perforated my heart twice, it was removed during ohs in Aug. Been sob since October 2020.
Thanks Jenny. I thought it had been done remotely, ie you at home and they did it at their end. So does that mean that your pacemaker is 'incomplete' and reliant on the other lead or leads? That must have been very scary for you for the RV lead to perforate your heart - once must have been bad enough, but twice .... Are you feeling a little better now or still struggling being SOB? I know exactly where you are coming from, wanting more info. I'm struggling as well as I thought that I was now sorted.
Still SOB and now lightheaded as well! They explained it as "switching on" something to give more "oompgh" when needed but nothing to do with altering rate setting. They said I might feel something in my chest when oomph is called for but I don't think they explain things properly.
Hi Jenny, I've done some digging/research, but have come up with nothing that might help. That feeling of lightheaded is something I know well and certainly has increased since my pacemaker (inserted 2 weeks today). It is awful and I am struggling with it. I am wondering about your breathlessness, if it might not be the case (possibly), that your medications need to be reviewed? I am guessing you have heart failure, is that right? If it were me, I would ring them again Jenny. I had to today after a call on Monday. I learned something today I knew nothing about and also that the pacemaker would not solve the problem I am struggling with. So, do give them a ring Jenny .... they should spend some time with you, not just to explain, but reassure.
Sorry to hear you are feeling unwell. Give your clinic a ring as they may be able to help. You must have a follow-up? I have emailed Medtronic and hope they will get back to me. Gave them info on the card I have to carry.I have just spent 2 weeks in hosp after 3 collapses and was under threat of having a third RV put in but I was petrified in case that also perforated. Instead, at last minute they inserted an implantable loop recorder that will tell them what is going on but only if and when I collapse again. Had one b4 but this one downloads info to hosp at 2am every morning. Pacemaker working OK with just AV lead.
Goodmorning, Nannyjenny
I'm glad you are getting sorted and I can understand how worried you must be!
These little recorders are better than ever these days, I believe. Fingers crossed they will get to the bottom of it all with haste.
I hope Medtronic comes back to you soon. Did you know you can ring the Watford number? 01923 212213 and ask for technical help. Have your SN number to hand, or else they cannot identify you. I used them the other day, but because of my question they bounced me back to the hospital.
I'm going this morning to my local hospital to have my leads checked, as I had this done 50 miles away.
Kind regards
Denise
Is this rate control you mention something different to the rate sensing facility for bradycardia which makes it kick in ? I think that's all my Medtronic does.
Best of luck with the pacemaker clinic. I find mine patronising and not very helpful. You will probably learn more from replies on this forum.
HappyJo, This is such an interesting response, you have articulated for me that movement involves both physical movement PLUS effort. I sort of understand the fairly crude movement sensor but do you know how it can detect effort? I have a Pace and Ablate so my Optronik pacemaker is fully in charge. I would welcome your advice on reaching a better understanding.
I am not sure this forum allows one to give too many details so I won't say where I am, but the staff at my Pacemaker Clinic are always lovely and very helpful. It is just me who doesn't know the right questions to formulate at the right time!
HappyJo - I meant Biotronik for the pacemaker, sorry.
amazon.co.uk/Pacemakers-Mad...
I found this book very helpful and enabled me to ask the right questions when I attended my clinic.