It’s a waiting game: 5 days to go... - British Heart Fou...

British Heart Foundation

49,816 members31,469 posts

It’s a waiting game

Carluke profile image
23 Replies

5 days to go before I have both heart valves repaired. Keeping busy so I am not thinking about the operation,I had hoped I could have keyhole surgery but found out on Tuesday when I had a telephone appointment I could not. I am in food planning mode,today I have made 9 meals for the freezer and another 5 tomorrow.

Question for anyone out there who has had open heart surgery- do I have to wear tops with buttons meaning not anything you have to put over your head. Thanks.

Written by
Carluke profile image
Carluke
To view profiles and participate in discussions please or .
Read more about...
23 Replies
080311 profile image
080311

Hello Carluke,

Yes button up tops, definitely no arms above your head, remember it’s no arms above your head no lifting anything heavier than half a kettle of water no pushing or pulling movements. You have to let your sternum heal 8-10 weeks. My surgery was over 4 years ago, and I am grateful every day to the medical team that gave me my life back. Follow the instructions you are given, do the breathing exercises you will be given after you get home they really do help, remember your lungs will collapse when on bypass and all the little pockets need to be filled out again.

Wishing you a very good recovery, you will soon be on the heart mended road.

Best wishes Pauline

Carluke profile image
Carluke in reply to 080311

Thanks Pauline. If you don’t mind me asking,are you as well as you were before your troubles.

080311 profile image
080311 in reply to Carluke

Yes more or less, get tired but now in my middle 70s and 5 weeks after my surgery my husband had a massive stroke and I became his full time carer, so with my now mended heart life goes on. And my new valve is good 😉 from the moment I opened my eyes in ICU felt so much better even still attached to bit and pieces 😂

Carluke profile image
Carluke

Thanks for the reply.

RufusScamp profile image
RufusScamp

What sounds like a little thing, what to wear post op, but it is so important. A loose, buttoning top, and some sort of wrap if it's at all chilly. Things you can get in and out of easily, and slip-on shoes seem a good idea. Well done for the meal-planning.

Wishing you all the best.

Carluke profile image
Carluke in reply to RufusScamp

Thanks for the advice

Nic25 profile image
Nic25

Hey Carluke. First off, very best of luck! The waiting, dread and terror really is almost the worst bit. I was in a complete fog of terror as the day approached but found once I was in the hospital, in 'the process' and how normal and everyday it was for everyone - and so professional - that then things were fine. I only had one valve replaced (aortic, Dec 2018, age 50) but was in and out in a week and back home, sore and exhausted, but much more mobile and able than I had feared I would be. So I hope that helps.

To your question, short answer is yes. But also tops with zips can work? Basically, for me, it was button or zip shirts and cardigans and then nice and loose tracksuit bottoms. Don't forget also, of course, pyjamas with buttons (harder to find these days than you might think).

You're right in that you won't (or even if you can, shouldn't) be able to be pulling stuff over your head initially. However I did find it wasn't long before that begun to change (it is a bit hazy now, but maybe a couple of weeks, though everyone of course heals differently anyway).

So I hope that helps? Also, sure people will have mentioned this already but, if not, I found practising standing up from sitting without using my arms to be a useful exercise pre-op that came in handy after, as you won't be able to push up. I also found it helpful to have a small rolled-up towel tied at the ends that you can carry around to hold against your chest if you cough, sneeze or laugh. Or a small cushion will also do much the same job.

But really it's just rest and more rest (I always say it's called 'patient' for a reason), taking the painkillers when you need them, and gradually - but it's not a race - beginning to build your strength back up.

As I say best of luck, sure you'll be in excellent hands and out the other end and on the road to recovery (and feeling loads better) in no time. Take care.

Cheers Nic x

Carluke profile image
Carluke in reply to Nic25

Hi Nic, Thanks for the advice

I don’t have any advice for you but I wish you the best of luck !! Although meal planning is a good way to go , almost everything can be frozen as well . Try some batch cooking of curry’s chilli etc and tub them all up with rices and veg , much love and hugs .

Carluke profile image
Carluke in reply to

Thanks

LBCdance profile image
LBCdance

Great to prepare yourself like that by keeping so practically busy with planning for when you are back home. Yes tops that can push up easily, but not pull over your head, or with buttons the best option. Good luck and as with everyone please let us know how you get on. I find myself automatically thinking about people on this site every morning, especially those of us who may have special dates/appointments coming up

Carluke profile image
Carluke in reply to LBCdance

Thanks

MickP1000 profile image
MickP1000

I did manage to get loose T shirts on within a few days of my op, nurses showed me once out of ICU but definitely no arms above head. Had some old fashioned button front pyjamas while in ICU! I had aortic valve and aorta replacement 8 months ago age 56 and feel absolutely fine. Make use of cardiac physio and get out walking as soon as you can. First 4 weeks were hard work but improved massively and was driving by 5 weeks

Carluke profile image
Carluke in reply to MickP1000

Pleased your fit. Thanks for advice

Flymetothebeach profile image
Flymetothebeach

I’m going for aortic replacement soon, my asthma is delaying things, but it is next month. I was advised about open top and can see what people mean. I am doing things that I can control...it sounds a bit nuts but I bought a new wash bag and slippers. I treated myself to headphones so I can watch netflix. Having said all that I too feel 1000% confident with the service in Oxford. I just keep having weird and vivid dreams....good luck...you have got to this on your own, but you are not alone.

Carluke profile image
Carluke in reply to Flymetothebeach

Didn’t need wash bag but needed slippers.good luck to you.

linnielizzie profile image
linnielizzie

I am right there with you - I also found out last week that minimally invasive not possible so I know how you feel but we must have every confidence the surgeon makes these decisions to assure us of the best outcome - Good Luck and we will all be thinking of you PS as soon as I get a date batch cooking here I come !!!

Carluke profile image
Carluke in reply to linnielizzie

Thanks. Doing a batch of shepherds pie today. Good luck to you.

linnielizzie profile image
linnielizzie in reply to Carluke

Off topic Ian but how did you get on with Bisoprolol - Surgeon has prescribed it to go with Ramipril while I wait for surgery - mixed reviews on here but I see you do a lot of walking as do I so wondered if that helped

Carluke profile image
Carluke in reply to linnielizzie

Hi. Been on Bisoprolol for about 8 years. It was to stop the palpitations,I have had no problems with it. The palpitations have come back in the last few months but not as bad.

Dumptydee profile image
Dumptydee

Yes it's easier. I had two valves, two bypasses and an ablation in December . It takes a long time to recover but slowly does it. Good luck

Carluke profile image
Carluke in reply to Dumptydee

You had the full set. Keep well. Thanks

Flymetothebeach profile image
Flymetothebeach

So incredibly comforting to know you are a out there. Family in panic, which is not helpful...thank you.

You may also like...

Never ending symptoms and the waiting game...

flight of stairs) I feel out of breath and my heart is pounding. Sometimes I have to sit on the...

Get to A and E by car if it’s urgent and there’s a long wait for an ambulance.

someone to take you in a car’. Twice recently I have had to wait over an hour for the ambulance...

LVH - is it game over?

I've got an enlarged heart and high blood pressure, I'm in my late 30s, today I had an appt with a...

If it’s not one thing it’s another 🙄

struggling to even drink. Tuesday and yesterday I started getting out of breath and had a tight...

waiting for a diagnosis

young of heart attack and stroke. My sister had to have a heart bypass in her 50’s. Ecg was...