HEART OR NEUROLOGICAL? ADVICE PLEASE

[sunset709]

I have had several falls in recent months. I have no body strength and my wife has to help me shower dress and sometimes help me get up from a chair. I can now only walk short distances when I go out for my daily walk and feel very tired and weak all the time. When alone if I fall I stay on the ground because my body has no strength to get up.

After falls in August and October 2020 I was hospitalised for a night and they said it was postural hypotension. My GP surgery did not seem to know what to do because normally I have high blood pressure. They changed my medication a couple of times but in January 2021 referred me to Neurology and Cardio Hospital Teams.

I had tests in May 2021 with the Cardio team. A 24 hour ECG monitor, A 24 hour BP Monitor and a Cardio Echo Gram. I then had a telephone appointment with a Cardiologist. He said my symptoms are not cardio and almost certainly Neurological. He said my blood pressure was high but he did not want to adjust medication until I have been assessed by a Neurologist.

He has requested a Tilt Test but it is not urgent and so there will be long delay.

I have been waiting since January for a Neurology appointment since January and

now my June appointment has been postponed until July.

I have been put on the list for a cancellation.?

Has anyone experienced a similar story to mine?

I am puzzled? Could a Neurological condition have caused the postural hypotension?

Any advice or input welcome

Thanks

Steve

[Pommel]

Sorry I'm not sure I can help you with your specific questions but it sounds to me that your GP should help move things on a bit. It's not great if you have been falling and then can't get up! Glad the cardiology team has ruled that out but it seems like you need some amswers! Good luck x

[sunset709 in reply to Pommel]

Thanks for the reply

The GP surgery has been unhelpful and useless. They told me to chase up Neurology appointment which I did and they put me on a list if there are cancellations. The GPs have said can do nothing more and wait for specialist appointment.

[Pommel in reply to sunset709]

I hope it comes soon! 🤞