I am a mum to a wonderful little boy who just turned 6.
At 5 days old he had his first open heart surgery for TGA, last year he had a second procedure for narrowing of the pulmonary artery from the 1st open.
All was well until this summer when we have started to notice he gets blue lips again when he exerts himself (crying, running etc).
His appointment at the hospital has been brought forward 4 months and he is about to have a fitness test, 24 hour monitor and scans.
I'm a member of a few groups on Facebook but a lot of the other people on there are in America so I was wondering if there was anyone more local in a similar situation who might want to chat?
I will always talk to and answer any questions from anyone!
Thanks for reading!
Heart warrior mum x