I never thought I would be in this situation at 38 years old with five kids and a loving wife I'm scared of leaving them

[Readyrod5]

Hi I'm rod I'm suffering from arteries squeezing any advice

[Tiktok1983]

Hi buddy,I’m 37 and just had a mechanical heart valve fitted,like urself i have children and wife(4)kids,I was shiting it before operation thinking about my kids not having a father due to operation.truth is operation saved my life as I had aeortal valve stenosis with regurgitation and had to get operated on straight away,you will be fine mate,the technology now works in our favour,medicine,surgery,knowledge of anatomy we live in good times,take any advice going bud and take care.gary

[Readyrod5 in reply to Tiktok1983]

Thank you so much on your advice.

[Tiktok1983 in reply to Readyrod5]

No worries mate,positivity all the way,let there be no doubts

[Milkfairy Heart Star]

Hello Readyrod5

Do you mean that your coronary arteries go into temporary spasms?

Vasospastic / Prinzmetal angina aka Coronary artery spasms?

[Readyrod5 in reply to Milkfairy]

Yes

[Readyrod5]

Yes

[Milkfairy Heart Star]

Welcome to the forum.

I was diagnosed with vasospastic angina nearly 9 years ago.

I am still here😊

Mine is thought to be due to the inner lining of my blood vessels not working properly.

I notice from your profile that you have taken cocaine which is a well known substance that can trigger a severe vasospasm.

One really important thing you need to do is to seek help to ensure you don't take cocaine again.

I hope you have been given advice about the other life style changes that are important such as stopping smoking, eating a heart healthy diet, exercising and managing your stress.

The other common triggers of vasospasms are the cold, mental and emotional stress.

The BHF has this information about vasospastic angina. I hope you find it useful.

bhf.org.uk/informationsuppo...

There are few of us on the forum who live with either Microvascular and or vasospastic angina which are also known as Nonobstructive coronary artery disease NOCAD or Ischaemia non obstructive coronary arteries INOCA.

You ask is there hope, yes there is hope for you. however you will have to make the necessary changes in the way you live. Take the medication you are prescribed and be monitored by a Cardiologist.

Many patients with vasospastic angina such as yourself once they have made the changes to their lifestyle do very well.

Good luck!

[Battle2020]

Hi, I was diagnosed with coronary artery spasms in Dec . Like many people with heart problems I thought my life was over and I was also shit scared. I've been told that, with correct medication, the prognosis is good so im trying to get on with life . Just taking every day as it comes. Stress and anxiety are my biggest enemies so im working hard to make significant life changes. Im currently on diliazem and a very low dose of diazepam . Im now weaning myself off this now and will go onto amitriptyline. Stay positive , get the right meds and get a good GP / cardiologist.

There's loads of good advice from lively people on this forum .

Good luck .

[Readyrod5]

Thanks

[Speakeazi]

The good news is that there is stuff that you can do to help yourself. But it does mean you have to actually do it!

This is all v scary and you will need support to help you.

Be bold and ask for professional help for anything as others have suggested

You’ve landed in the right place for patient support, so post often and let us be with you on journey to better health.

Take care

[Readyrod5 in reply to Speakeazi]

Thanks

[daisypainters]

Hi! I was diagnosed less than a year ago but have had symptoms for a very long time. Get your medication sorted and your diet (especially do a salt audit) and you will be amazed at how many more things you can do with your kids. For me it has been a door opening with my busy teens rather than closing. I still am on the journey - cold is a brick wall for me and I still lose time and energy because of cold that I could have spent on the kids.... but they have noticed a real difference this winter. Also, this is a chance to learn loads, make subtle shifts for the health of your kids one day. One day and one step at a time. Persevere in getting your meds sorted - it can take several steps. Also, the info link given above is very good.

[Khan29uk]

Hello Rod

Welcome to the family, we all can help each other with our own experience.

I was diagnosed in September 2020 with heart failure, i had swelled up ankles and feet with ejection fraction 24%. Doctors suspected it could be viral infection that’s caused it. It was a complete shock. Im 48 years Old, with wife and children.

You must stay positive no matter what happens for the good of your family, which is the nucleus of everything in your life. People on these forums they are excellent and very supportive with everything. I came here on these forums purely because i know there are people like who have same condition as much and even worse (and i salute them for their bravery and strong belief in being positive), never give up on life.

I have made changes to my lifestyle, change of food habits, no smoking and no drinking (i didnt do this in the first place) this will benefit you alot.

Thank you

Take care

👍

Sami

[Notsofastchap]

Hi Rod. I had a 4 graft bypass last October. I’m 47 and fit and healthy I thought. 1 week from what felt like heart burn to surgery. Nothing prepares for the shock of what’s happening to you and the fear of leaving behind those you love. It’s ok to admit you’re terrified of that and how it might affect your kids, I know what you’re feeling.

The blessing is you now know what’s wrong and they will sort you and so many don’t get that chance. You have the knowledge and superb care of our nhs now, to be along for a very long time.Good luck. It’s going to be ok.👍🏻

[Jacey15]

Hi and welcome. I have it too and so does my dad. He's had it for years and is now 75. Medication helps enormously. Sometimes they have to tweak medication to find out what works best for you. Good luck x

[sk8_dj_day]

Hey. 37 year old here. Had a quintuple bypass surgery just in the end of August. Scared... to...death. I was googling. Screenshotting articles. I had an ejection fraction of 28 the day of surgery. Came out wearing a personal defibrillator for months. End of Dec I had a test don't that said my ejection fraction was at 51%. I honestly and truthfully feel hopeful and better than ever. Here is a link to motivate you and show proof. Please forgive the misses. youtu.be/XD6HDwp7wsw(Not working as expected?)

[Becksagogo]

Great bit of advice my HF Nurse gave me is that our bodies are like finely tuned Ferraris and therefore medication tweaking is necessary until they/you get it right. There are days when I feel like a clapped out Ford Orion but I am still here aged 65 to enjoy most of what life has to offer. Listen to your Consultant and accept all the help you are given. Don't wallow in self pity and think positive. Good Luck on your journey. Take care.