Fed up with this psin: Over the last... - British Heart Fou...

British Heart Foundation

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Fed up with this psin

Fluffybee profile image
42 Replies

Over the last few weeks I’ve been having quite a bit more pain than usual, I know the cold doesn’t help with this condition so I’ve been careful but what really gets me is I cannot hold anything (baby) average weight, I’ve tried my spray, sitting down does help but sick of it holding me back from the things I used to do and want to do.

I know I’m being selfish as there’s people on here who have far far worse and been through so much.

Just wanted to have a vent about it really, that’s it !!!! Feel a bit better now 😄

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Fluffybee profile image
Fluffybee
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42 Replies
Milkfairy profile image
MilkfairyHeart Star

Snap 😫

Fluffybee profile image
Fluffybee in reply to Milkfairy

Group hug needed 🤗 how are you now ?

Sunnie2day profile image
Sunnie2day

A bit of a vent is good for the soul:) I hope warmer weather comes soon for you and all those for whom winter cold brings pain.

Milkfairy profile image
MilkfairyHeart Star

You need a second opinion.

A referral to St Thomas's hospital

Mallowme profile image
Mallowme in reply to Milkfairy

I wish... I am going to save and try and get a private consultation later In the year when this peak settles and more normal health problems are being considered again. Thank you. Xxx

Milkfairy profile image
MilkfairyHeart Star in reply to Mallowme

You are entitled to see the St Thomas's team through the NHS.

Mallowme profile image
Mallowme in reply to Milkfairy

Next time I speak to my go I’ll ask. It’s months till I speak to cardio again. Thanks Milkfairy. Xx

Fluffybee profile image
Fluffybee

Snap with the sleeping, I was in so much pain the other night it was awful, heat seemed to help on top of GTN, pain relief and a bit of time to work, as this is my first winter with this condition I’m struggling with it. Ive taken all of your tips and used them. I’m starting to accept this is lifelong and need to learn to live with it, stress and cold being my main triggers it’s hard to get out of your life so need to learn to cope with it alongside life 🥴

Milkfairy profile image
MilkfairyHeart Star in reply to Fluffybee

You need to count your spoons 🥄🥄😊

Fluffybee profile image
Fluffybee in reply to Milkfairy

Oh yes the good old spoons I’d forgotten 🤭

A question I was going to ask if anyone knows is, can micro vascular dysfunction come under the umbrella of ischemia ?

Milkfairy profile image
MilkfairyHeart Star in reply to Fluffybee

YesMicrovascular dysfunction and coronary vasospasms both cause myocardial ischaemia.

Fluffybee profile image
Fluffybee in reply to Milkfairy

Ok thank you Milkfairy

my Gp mentioned something along those lines but he wasn’t sure. I am assuming and I know you cannot say as we are a peer to peer group, but that because of this micro vascular dysfunction can cause possible serious heart problems ?

Milkfairy profile image
MilkfairyHeart Star in reply to Fluffybee

Here's the research.

eurointervention.pcronline....

Here's what the BHF says

bhf.org.uk/informationsuppo...

Fluffybee profile image
Fluffybee

It’s certainly a hard one I admit, I’m fine for a while but every now and then it gets to me like it does to us all

We’re all here for you so don’t feel alone with this, there is a few of us on here, I’m sure anytime you want support and a kind word someone will be only to happy to be there for you !!

Fluffybee profile image
Fluffybee

Honestly don’t worry, it all gets us down, on or off guard !!

Awful about your son in that situation, fingers crossed all ends up ok with him.

I know the cleaning and sanitising is so important but there’s so many things that get touched just going from room to room.

I’m sure we’re all with you there on being worried about this terrible virus !!

Mallowme profile image
Mallowme

Thank you for your kind words. It all seems to come at once. It’s interesting u say you’re so tired. I wonder if it’s the cold. Xx

Magicfairy profile image
Magicfairy

Hi Fluffybee, sorry you have had a lot of pain to cope with 😞, also know how frustrating it is being limited with what you can do, no way are you selfish, it’s normal to be fed up especially with the fight you’ve had just to get dental treatment, and nothing worse than being in the wide awake club 😩, on a positive note spring and summer is on its way, can’t come quick enough this year, wishing you well 🤗 xxx

Mallowme profile image
Mallowme

I’ve only ever spoken with the registrars. It seems to be someone new each time, I will just keep asking and hopefully they will want to get rid of me and so refer me on. Xx

Milkfairy profile image
MilkfairyHeart Star in reply to Mallowme

That's part of the problem. You can ask to be seen by the Consultant Cardiologist who is responsible for your care.

Sunshinebrew profile image
Sunshinebrew

Same for me I’ve been worse the past week putting it down to the cold weather haven’t been able to walk the dog so my daughter has been walking her can’t wait for summer to be here

Thanks for your post. You've answered a question I had as I've been getting lots of pain in my arms and weakness. 👍

Fluffybee profile image
Fluffybee in reply to

Hi Snoweybm

When do you get your pain, sorry I mean what are you doing when you get it, exercise, etc !!

in reply to Fluffybee

All of the time. I have been pushing myself lately. Afternoon it starts I suppose as I'm getting more tired. By evening it's in full swing...

Fluffybee profile image
Fluffybee in reply to

I get mine when I walk after a few minutes, doing to much, holding something that’s a bit heavy, sometimes for no reason, get breathless as well even just standing and holding something, seems weird but that’s what happens, my Dr said it’s because the heart has to work harder walking with something in your arms or standing like that which then brings on the pain, makes sense !!

in reply to Fluffybee

It does, I can only describe the pain as though my veins feel like they're shrinking.. Does that sound familiar?

Sunnie2day profile image
Sunnie2day in reply to

Does make sense to me, that's how my (presumed) MVA feels at times. It's the weirdest feeling but shrinking describes it quite well!

Mallowme profile image
Mallowme in reply to Fluffybee

Wow reading these posts it’s like you’re all in my head, just shows this is a real condition. Thank you all for giving me my sanity back. Xx

080311 profile image
080311

So sorry your having a hard time at the moment, hoping for warmer weather so you can get more comfortable. I am the carer for my husband and he had a fall a week ago, luckily nothing broken but he is every colour of the rainbow! So I am more tired than usual, hurt my back trying to get him up, we have had so much snow, very pretty but not good for even getting out to the bins! Have had my vent now😂Hope you have some walnut whips in😂 keep safe.

Pauline xx

Fluffybee profile image
Fluffybee in reply to 080311

I’m so sorry 🤗🤗🤗 is your husband ok apart from being so sore and bruised ?

What an awful shock for him and you to be in that position.

I hope your back gets better soon.

Do you have anyone nearby to help you ? Get shopping etc, the virus is stopping a lot of help that people may normally offer doesn’t it.

Get better soon look after yourselves, you must be exhausted 🤗🤗🤗

080311 profile image
080311 in reply to Fluffybee

It’s knocked his self confidence, very nervous again now, hoping given time he will get better. The stroke took his left side and some of his sight 5 weeks after my surgery 😩 but we have managed for the last 4 years. Pulled the muscles in my lower back and my right arm. Need to rest it but haven’t got a choice have to keep going 😂 So sorry the walnut whips are in short supply, your posts always cheer me up.

Hope you get some relief from your pain.

Take good care

Pauline xx

Fluffybee profile image
Fluffybee in reply to 080311

My goodness you’ve both gone through so much 🤗

Biggest hugs to you both, pleased my ‘whip’ woes cheer you up 🤗🤗🤗🤗 xx

Fluffybee profile image
Fluffybee in reply to 080311

Hi 080311

Oh you know it’s absolutely horrific!!!!!! NO walnut whips for around 3 weeks now, everything I see looks like a walnut whip, it’s like one of those cartoons when a cat sees a bird thinking it’s cooked and ready for it 🤭🤭

I’ve had some walnuts but not she chocolate and whip for a whole year now 😂😂😂

I have home delivery and my shop doesn’t have them so I’m walnut whip bereft 🥺😂😂

Sprit profile image
Sprit

Sending all of you a group 🤗

Mater123 profile image
Mater123

I'm the same !! X everything keeps dropping out of my hand.And after working all week I have to stay in bed all day sat.

When what I should be doing is ckeaning my house and spending time with my daughter and son.

This pure exhaustion is so frustrating

Gazzer83 profile image
Gazzer83

Hi,

I have lived with my condition for almost 18 years, since I was 39. Frustration at not being able to do the things you used to do is the biggest factor. Even now I still get wound up about it and I know that I will pay for it with my body's reaction to this. Unfortunately you just have to learn to accept the changes. I found that sitting in a quiet place for 20 to 30 minutes helps me be calm and focus on my breathing and calmness.

Hope this helps.

Gazzer.

Mater123 profile image
Mater123 in reply to Gazzer83

Yes it does thank you so very much. Stay well

Mater123 profile image
Mater123 in reply to Gazzer83

Yes brilliant thank you 😊

080311 profile image
080311

Morning Sunnie,

It’s been a difficult week, but things are improving. He hasn’t any pain just really knocked his confidence. We have a wet room first thing we had done after his stroke. The boys got him a recliner lift up chair after his stroke that’s been wonderful because it’s a little higher than a normal chair it’s easier for him plus it can heat the seat and back and can give you a massage 😂, They are talking about putting a chair lift in just to make sure he is safe.

It’s my lower back, I did some damage 20 years ago trying to change a tyre on the car! So it’s not as good as it should be. I know it will take a few weeks to settle down, but I will be ok. Normally rest does it but can’t do much of that!

My Dad used to say getting old was the pits he wasn’t joking 😂

Hope your doing well we have finally lost all the snow.

Take care of yourself

Pauline xx

Sunnie2day profile image
Sunnie2day in reply to 080311

Aren't those home assist items super?! I now confess to some heated-massage chair envy:)

Our snow was thin on the ground and melted off completely a few days ago - supposedly the middle of the coming week we'll be seeing heavy snow but I'll believe it when I see it blanketing my garden;)

My dad used to say growing older isn't for the faint of heart and he was spot-on with that!

We're well enough and hope the same for you - speedy uncomplicated recovery to you and your husband (pulled muscles and rainbow bruising, ouchie!).

080311 profile image
080311 in reply to Sunnie2day

Must confess myself to using his chair when he as been in bed this week the heat and the massage on my back as been wonderful 😂 Ordered that goodie box for Paul from The House of Bruar should be delivered Wednesday, quite excited to see what he thinks. Certainly looks wonderful. Did speak to customer service and they couldn’t have been more helpful. Have put in lots of things I know he likes Haggis, Black pudding, some venison, gammon smoked salmon and some pork sausages with black pudding! Some pies and cheese. Some healthy treats some not😂 it’s been so long since we have seen him in the flesh you must feel exactly the same, not being able to have a hug for such a long time. It’s very hard.

Pauline

Sunnie2day profile image
Sunnie2day in reply to 080311

We've given up on a 2021 reunion and are now planning for a 2022 one - hope floats!

Oooh, their haggis is wonderful, even better than our local butcher's so your son should be haggis happy for Burns Night:)

Sunnie2day profile image
Sunnie2day

Whoa, 15 when lockdowns began and likely 17 when it ends - that actually is one of the best 'putting it into perspective' comments I've heard yet. Makes me feel even more sorry for the young people going through this.

Is she keeping a journal or is she blogging? My grands are, their parents told them they should and all five have taken it up now. Both sets (3 from my daughter, two from my son) are thinking of it as a school assignment but their parents are seeing it as something to put in their memory boxes to be looked back at in 20 years or so.

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