Had my consultation with my actual ow... - British Heart Fou...

British Heart Foundation

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Had my consultation with my actual own consultant

Fluffybee profile image
Fluffybee
โ€ข53 Replies

Finally ...... had my phone call, it was my actual own cardiologist!!!!!!

He mentioned several things but still no mri results ๐Ÿ˜ก he apologised and said heโ€™d personally get it sorted and ring me back in a few days ๐Ÿ˜ƒ ๐Ÿคž๐Ÿป๐Ÿคž๐Ÿป

He said my ultrasound showed my heart at the bottom is not pumping blood around properly so could be damaged which would also fit with the ECG.

Also micro vascular angina and what he called prinzmetal angina!!!!!

He said my ECG showed an extensive infarct age undetermined ๐Ÿฅบ๐Ÿฅบ

So after saying that Iโ€™m now a bit scared until I get my results back !!!!!!

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Fluffybee profile image
Fluffybee
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53 Replies
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080311 profile image
080311

Hurrah, you got to speak to your cardiologist so so pleased for you, realise you have still some unanswered questions but from what you say things are going in the right direction and fingers crossed he phones you back with the results of your MRI try not to worry I know easier said than done. Hope youโ€™ve had a least one walnut whip ๐Ÿ˜‚ you certainly deserve it, just get the dentist sorted now!Pauline

Fluffybee profile image
Fluffybeeโ€ข in reply to080311

I couldnโ€™t believe I actually got my own cardiologist, I went over drive and me being me said โ€˜ oh...... Dr ? ....., is it really you..... really.... Iโ€™m just so happy to speak to you, โ€˜ felt like a 13 year old groupie ๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚poor man ๐Ÿฅด thank you so much ๐Ÿค—

080311 profile image
080311โ€ข in reply toFluffybee

I bet he was smiling from ear to ear๐Ÿ˜‰

Fluffybee profile image
Fluffybeeโ€ข in reply to080311

Probably thought I was a loon, at least I wasnโ€™t in the bathroom this time ๐Ÿ˜‚๐Ÿ˜‚

080311 profile image
080311โ€ข in reply toFluffybee

Now that as me grinning from ear to ear๐Ÿ˜‚

Fluffybee profile image
Fluffybeeโ€ข in reply to080311

๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚๐Ÿค—๐Ÿค—

Handel profile image
Handelโ€ข in reply toFluffybee

๐Ÿ˜‚๐Ÿ˜‚ So glad you got to speak to your own cardiologist. Take good care of yourselfSensing virtual hugs and walnut whips!! xxx

ellj profile image
elljโ€ข in reply toFluffybee

Fluffybee what are you like ๐Ÿ˜‚๐Ÿคฃ๐Ÿ˜‚๐Ÿคฃ

Did u ask about the extensive infarction age undetermined?

Fluffybee profile image
Fluffybeeโ€ข in reply to

I did, it was on an ECG I had in the ambulance in the spring, he didnโ€™t have a copy of that or a few others, so Iโ€™m going to email them to him tomorrow, he said it could be my heart May be damaged but wouldnโ€™t like to say more until heโ€™s seen the MRI results. Hopefully just a few more days ๐Ÿ™„

Heartbear profile image
Heartbearโ€ข in reply toFluffybee

Hi - that sounds similar to the aftermath of my HA in July. I'm 51, male. My follow up MRI (which was done in October to see if the thrombus (clot) in my LV had cleared (it has) ) showed that "the tip of my heart is not working as well as it should" (my cardiologist's words). So I asked what that means - what's the tip of the heart, why is it important etc. He explained that our heart muscle is at its thinnest at the bottom (tip) of the heart, and is the area of the heart that suffers first when a blocked artery occurs at the top of the heart. I asked if it would recover - he sat on the fence a bit and said its 50/50 and I'm four months on from the HA. Reading between the lines I suspect it won't, and is perhaps dead muscle. My ejection fraction is 45% which he said was good considering the 'size' of the HA I had - they typically see an ejection fraction of 30% after a HA of my size. Normal ejection fraction is 55 to 60%. The consequence is I am more at risk of developing another clot at the tip of my heart so he has kept me on the Rivaroxaban meds, the original plan was to take me off it and reinstate aspirin. Next follow up is in January. Hope sharing this may help.

Sunnie2day profile image
Sunnie2day

Right, so your heart isn't pumping at the bottom as well as he'd like, an ECG shows an infarction he wants more investigation on to check for damage, and you not only have microvascular angina, you also have what he's calling prinzmetal angina (I believe that is actually known nowadays as vasospastic angina but best to check with Milkfairy on that).

Not to ruin your evening but it sounds as though you've won something of an unfortunate lottery - but it's not all bad as now the hunt for the right treatment regime for you can get going in earnest.

That's a big plus despite the not so great results so far; the MRI results will likely show the amount of damage, if any, from the infarction among other things - GREAT to hear he's going to chase those results and will call you in a few days to update you.

I well understand you're feeling 'anxious' but what you've heard today, whilst not the greatest news on the surface, is a huge step forward towards working out a treatment plan and that's a very good thing!

Meatless profile image
Meatless

Fluffybee positives are that you got speaking with the appropriate person who seems to have a handle on what type of angina(s) you have. Also he has taken on responsibility to chase the mri results which is also good. You know that these heart issues can be managed ( thereโ€™s always something in the toolkit) to help us so focus on that aspect please. My mum had a quadruple bypass at 39 following my birth she had AF and cornary artery disease all her adult life. The medics always had something to throw at it. She passed away in her 90th year having lived a wonderful life. Things may have got you down a bit today and thatโ€™s normal but the doctors are on it so keep pushing forward, all will be well...think your entitled to 2 walnut whips today x.

Sunnie2day profile image
Sunnie2dayโ€ข in reply toMeatless

Only two?! I'm thinking at least three, and a fourth wouldn't go amiss!

Fluffybee profile image
Fluffybeeโ€ข in reply toSunnie2day

No comment ๐Ÿคญ๐Ÿคญ๐Ÿคญ๐Ÿคญ

Thanksnhs profile image
Thanksnhsโ€ข in reply toFluffybee

Did you see them make make the whip! on bake off ๐Ÿ˜‹ ๐Ÿ˜‹ I was thinking about you x

Fluffybee profile image
Fluffybeeโ€ข in reply toThanksnhs

Oh no I didnโ€™t, cannot believe I missed it, which day was it on and Iโ€™ll try and find it ๐Ÿค—๐Ÿค—

Thanksnhs profile image
Thanksnhsโ€ข in reply toFluffybee

I think it was just a couple of weeks ago, they looked amazing, I so wish I could bake like that, I will have a quick look to see charx

Fluffybee profile image
Fluffybeeโ€ข in reply toMeatless

I read every comment and each one Helps that little bit more, and a bit of a giggle, thank you for replying ๐Ÿค—

Ninjanoo profile image
Ninjanoo

I know it will have come as a shock hearing what he had to say to say the least but on a positive note he can start to put together a treatment plan for you ๐Ÿ˜Š๐Ÿค—๐Ÿค—

And hopefully in a few days he'll be able to give you your MRI results which hopefully will put the last puzzle piece together ๐Ÿคž๐Ÿคž

We're all rooting for you! Sending big hugs โค

Fluffybee profile image
Fluffybeeโ€ข in reply toNinjanoo

Thank you for your support it really does mean so much to me ๐Ÿค— x

Ninjanoo profile image
Ninjanooโ€ข in reply toFluffybee

You've asked after me even when you've been going through the mill yourself xxx

Fluffybee profile image
Fluffybeeโ€ข in reply toNinjanoo

Hi Ninjanoo

How are you getting on ๐Ÿคž๐Ÿป๐Ÿคž๐Ÿป ๐Ÿค—

Milkfairy profile image
MilkfairyHeart Star

FluffybeeGood news that you got to speak to your Cardiologist.

I suggest you send the copy of the ECG the paramedics performed to your Cardiologist for review.

An ECG cannot be used in isolation to make a diagnosis.

The Cardiologist will I am sure chase up your MRI results and once they have all the information they will be able to make an more accurate diagnosis and then hopefully you can get a treatment plan.

As Sunnie said Vasospastic angina is the term more commonly used to describe coronary artery spasms/ Prinzmetal angina.

Sunnie2day profile image
Sunnie2dayโ€ข in reply toMilkfairy

WOOT - I'm learning:) But it's all thanks to you, Milkfairy, for example I would never have known to ask my cardiologist about MVA when he did the angio and it came up showing crystal clear arteries.

It was a lovely moment really, he did a double take and said 'You know, I think that's exactly what it is!' and a few days later he telephoned and said he'd put me on the list for the definitive test but he was becoming convinced MVA is the answer. No rush on the test, I'm no longer 'urgent' thanks to medication and lifestyle adjustments so I am continually bumped to the backest of the back of the queue but I would never have known to ask without reading your posts here.

Hope you're tucked up cosy and warm, all settled in for winter.

Sunshinebrew profile image
Sunshinebrew

I echo all that's been said not good news exactly but your on the right track to get the correct treatment now keep positive and enjoy your walnut wips.

Oboebec profile image
Oboebec

I feel your excitement - after a diagnosis back in February, I was finally called yesterday to book a telephone clinic appointment in 2 weeks!! Now I just have to remember all the questions I had 10 months ago... ๐Ÿค”Hope you get some more results/answers soon xx

ellj profile image
ellj

Hmmm brilliant that you finally got a call from your own consultant but how frustrating he hadn't got MRI results ggrrrrr

If he doesn't keep his promise to get the results and call you back let me know ๐Ÿ˜œ I have a feeling his coffee could be spiked ๐Ÿ˜‚

Damned if you do, damned if you don't.

Worried if you know, worried if you don't ( know )

Can't win ๐Ÿ™„

More Whips needed.

Ellie flump xx

Fluffybee profile image
Fluffybeeโ€ข in reply toellj

Hi Ellie Flump,

I was a strong fluffy bee/wrllieflump today, I saw a whole stack of walnut whips all in beautiful blue boxes stacked with care, the picture on the front of a whip with an actual nut on the top !!!!!!! The creamy chocolate etc...... I wiped the drool away and walked past without buying any, go me ๐Ÿฅณ๐Ÿฅณ๐Ÿฅณ๐Ÿฅณ๐Ÿฅณ๐Ÿฅณ

EmmyLaury12 profile image
EmmyLaury12

Oh I bet you are fluffybee!

Thinking of you and hope you hear soon with the results .

Itโ€™s a awful time for you waiting for them ๐Ÿคž๐Ÿคž๐Ÿคževerything ok xx

Let us know when you hear x

Magicfairy profile image
Magicfairy

Hi Fluffybee, glad you got to talk to the main man, hopefully he will answer all your questions very soon, what a complicated lot we are ๐Ÿ™‚, enjoy your walnut whips, Iโ€™m on the shrimps and bananas, big kid ๐Ÿคฃ xxx

Fluffybee profile image
Fluffybeeโ€ข in reply toMagicfairy

I remember those ๐Ÿคญ๐Ÿคญ๐Ÿคญ all spongy snd squidgy !!

I quite like a squashy the original flavour not particular โ€˜sweetโ€™ person more chocolate, wish I was a salad freak. I really do, I love a good sprout though ๐Ÿคญ๐Ÿคญ

Magicfairy profile image
Magicfairyโ€ข in reply toFluffybee

Yes they are the ones ๐Ÿ˜‚, I really shouldnโ€™t laugh, got to start eating healthier, I like most fruit and veg, but no salad๐ŸคขIโ€™ve put on nearly a stone because of eating too many there thereโ€™s, but what a year!๐Ÿ˜ฉ, take care ๐Ÿค—

Fluffybee profile image
Fluffybeeโ€ข in reply toMagicfairy

๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚ a little of something does you good, trouble is it should be now and again !!!!!

Iโ€™m now going to be more sensible with my diet, walnut whips are going to be a challenge, maybe only one box of 6 a day ๐Ÿฅด๐Ÿฅด๐Ÿฅด (joke)

So Iโ€™m with you on the eating better bit.

Since Iโ€™ve started on the heart meds on top of my original ones itโ€™s knocked me backwards big time, with the meds and the condition I donโ€™t do much exercise.

How are you today, are you ok ๐Ÿค—๐Ÿค—x

080311 profile image
080311โ€ข in reply toFluffybee

Just smiling at your post, bought some new scales thought I better had as this was the only way I new of checking on my retention of fluid if they started tweaking my meds, anyway found some in the Black Friday sale said it would give me a read out of all sorts of stuff including water had to download an app to my iPhone. Well they arrived last week๐Ÿ˜ฉ my readings are awful! Apart from my water and a couple of other things! Husband are are either excellent or average ๐Ÿ˜‚ now thatโ€™s given me pause for thought will have to stop the curly whirly and chocolate digestives ๐Ÿ˜‚

Fluffybee profile image
Fluffybeeโ€ข in reply to080311

๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚ at least it wasnโ€™t one of those ones that scream out your weight ๐Ÿ˜ณ๐Ÿ˜ณ

Iโ€™m going to put one of those pigs in my fridge so every time I open it everyone knows with loud piggy grunts..... oh go on then I know youโ€™re thinking it . My walnut whip cupboard as well ๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚

๐Ÿค—๐Ÿค—๐Ÿค— x

Magicfairy profile image
Magicfairyโ€ข in reply to080311

๐Ÿคฃ๐Ÿ˜‚x

Magicfairy profile image
Magicfairyโ€ข in reply toFluffybee

Itโ€™s weird, one minute Iโ€™m ok and laughing about it, next really nervous, I have an early pick up Tuesday morning at 4:30๐Ÿ˜ณ, canโ€™t see me sleeping that night, I feel such a woose, when other people on here are having much worse๐Ÿ˜ž, hope you are ok?, and get that phone call, so you know where you are โค๏ธ๐Ÿค—xxx

080311 profile image
080311โ€ข in reply toMagicfairy

Will be thinking of you Tuesday let us know how you are.Pauline

Magicfairy profile image
Magicfairyโ€ข in reply to080311

Thank you Pauline I will๐Ÿค—, I donโ€™t like the sound of those scales you bought, put them on the naughty step for telling you bad things ๐Ÿ˜‰x

080311 profile image
080311โ€ข in reply toMagicfairy

One of the things the app said was my body age I was 73 yesterday, and the app said with all the measurements I was coming out at 79๐Ÿ˜ฉ

Magicfairy profile image
Magicfairyโ€ข in reply to080311

No way!!! Throw it away๐Ÿ˜ค๐Ÿค—x

080311 profile image
080311โ€ข in reply toMagicfairy

My husband thinks they are great, all his readings were excellent or average! The only one that was a bit off was BMI๐Ÿ˜‚ he thought it was hilarious ๐Ÿ˜ฉ my age he his 6 years older than me so this was saying we are the same age๐Ÿ˜ฉ

Magicfairy profile image
Magicfairyโ€ข in reply to080311

I bet he did๐Ÿ˜‚, put him on the naughty step too ๐Ÿ˜๐Ÿ˜Šx

080311 profile image
080311โ€ข in reply toMagicfairy

Now thatโ€™s a great idea๐Ÿ˜‚

Magicfairy profile image
Magicfairyโ€ข in reply to080311

๐Ÿคฃ

Fluffybee profile image
Fluffybeeโ€ข in reply to080311

Iโ€™d never use that, it sounds hideous !!!!! Iโ€™d hate to hear what mine had to say, with that, pigs grunting in random cupboards, I couldnโ€™t cope ๐Ÿฅบ๐Ÿฅบ

080311 profile image
080311โ€ข in reply toFluffybee

Bought them hoping it would be ok with telling me how my fluid levels were, thing is telling more than I really want to know๐Ÿ˜ฉ

Fluffybee profile image
Fluffybeeโ€ข in reply to080311

๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚ sorry but I can just imagine you little face when you saw the result, bet you did it again incase it was wrong didnโ€™t you, I know I would ๐Ÿค—๐Ÿค—

080311 profile image
080311โ€ข in reply toFluffybee

Too right and it still said the same thing ๐Ÿ˜‚

Fluffybee profile image
Fluffybeeโ€ข in reply to080311

๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚

Magicfairy profile image
Magicfairy

Oink oink ๐Ÿ˜Šx

Fluffybee profile image
Fluffybeeโ€ข in reply toMagicfairy

Donโ€™t worry, Iโ€™m on it, lots of piggies being checked online for the loudest snort, just have to gather them all up if I fall off the Wagon ๐Ÿฅด๐Ÿฅด ๐Ÿท ๐Ÿท ๐Ÿท

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