Hf ef 10%

[Scoopdogg]

I’ve posted similar before but just need a rant . I do t understand how the Drs cam stand there and tell me that I am critically ill with severe h/f - then I’m not due to see consultant u till September when I was discharged beginning of June - now last Friday my hf nurse says that instead of weekly video call she will talk to mr in a month ! I don’t get it

[Smarticus]

I know exactly how you feel, I was diagnosed with severe valve failure (from previous MVR) in Dec/Jan... Now we are in July. When I spoke to my hospital they said unless you arive by ambulance there is nothing we can do... Covid and all that. Im struggling every day and my depression is worse than ever. I think the colleteral damage from Covid is going to be huge!

[Scoopdogg in reply to Smarticus]

Sorry to hear that - my nurse told me this is nothing to do with Covid - that’s how often I’d see her !?

[Smarticus in reply to Scoopdogg]

Hi, how are you feeling in yourself? are you able to function normaly? if not I would be speaking to your GP or healthcare team. HTH

[Scoopdogg in reply to Smarticus]

I’m feeling ok and not overly worried - I would call if I was - but no increase in meds which to me means longer recovery

[Hidden in reply to Scoopdogg]

Have you tried leaving out tea and scones for her?

[Scoopdogg in reply to Hidden]

Tried alcohol too

[Yasyass]

I too have hf ef31% but no apt til sept my cardiologist said need a defribillator all I can say is I panic most of times esp when read net says could have cardiac arrest I try not to think about it but the fear is alwaz there I try eating healthy walk everyday I feel well so that’s a blessing but I don’t know if my condition will

Improve and also due to Covid it’s difficult explain by ph so I can understand what u mean we are told we r really ill even if we don’t feel

It but then are not seen or get in touch with gp til

Later dates so we are left confused I wish you all the best

[Scoopdogg in reply to Yasyass]

Thank you - the mixed messages are really disconcerting- I do feel a bit dropped - told to ignore all the bad online stuff which I do - but at end of the day what we have is life threatening and we are left on own

[Yasyass in reply to Scoopdogg]

Yes and it’s very difficult told we have severe conditions but carry on as normal and wait I asked many times wh diet can I travel they say yes but I say how can one severe but do those things and also ask if my ef can improve but no reply just tk more med but I said to the gp I feel

Fine bp normal heart rate normal but damage to heart from previous ha which I had from side affects of medication

[Scoopdogg]

Thanks trst, that’s really interesting - I’m going to look into a private appointment- unless it ends up being the same consultant lol

[Dollcollector]

I know how you feel . I think the cardiologist and heart failure nurse know there is nothing more they can do for us so write us off. There needs to be more research into heart failure as more people die of that than cancer. I think you just have to listen to your body and react to how your feeling as well as taking the meds. you need.

[Scoopdogg in reply to Dollcollector]

It does feel like there’s a limit to what we can do do just sit n see what happens

[Dolphin14]

Are you in the UK?

Does you primary care Dr see you in between these cardiac visits?

[Scoopdogg in reply to Dolphin14]

Yes uk. I’m supposed to se h/f nurse which is via video call . But she had just made it monthly !

[Dolphin14 in reply to Scoopdogg]

I'm in the US so things may be a bit different.

Monthly sounds much more reasonable. I'm happy to hear that was changed. September re evaluation sounded a bit too far off for my comfort level.

[Scoopdogg in reply to Dolphin14]

It’s early days - only discharged first week in June - just feels Strange to only see anyone monthly when it’s so serious

[Dolphin14 in reply to Scoopdogg]

I agree.

Please stay in tuned with your body and don't hesitate to call someone or go to the ER if anything changes.

Best of luck to you

[Scoopdogg in reply to Dolphin14]

Thanks and all the best to you too

[Dolphin14 in reply to Scoopdogg]

Thank you