Referred back to gp

[Wodney1966]

Cant believe my cardiologist has referred me back to gp been seeing him 5 yrs I've got heart failure cardiomyopathy had a icd fitted feel like they are not bothered 🤒🤒🤒

[Lezzers]

Hi Wodney1966, if your HF is stable & well managed it is usual for the cardiologist to discharge you to the care of your GP. I know its worrying but your GP will refer you back to him if things change.

Do you have a nurse you can refer to?

[Wodney1966 in reply to Lezzers]

She's took me off aswel feel like they have put me owt to pastures new lol

[Lezzers in reply to Wodney1966]

My husband was also discharged from his nurses but can always ring them at any time, he is still under the cardiologist though.

We are considering asking for a re-referral to the nurse.

[Wodney1966 in reply to Lezzers]

Had some bloods done tday don't even know who's checking mi bloods

[Lezzers in reply to Wodney1966]

Your GP will check the results. But always a good idea to ask for a copy of them so that you know how well you're doing.

[Wodney1966 in reply to Lezzers]

I will ty 👍👍👍👍👍

[SpiritoftheFloyd]

Hi Woody1966, it's a bit frightening when the hospital discharge you. I was discharged in October after 9 months, really wasn't expecting that, and it was a bit worrying, but then I realised that I must be OK or I wouldn't have been discharged.

The letter I received finished off saying;- I have encouraged him to continue with the rehabilitation and to remain active, and if there are any further concerns then he is very welcome to return but we will not make any further review appointments at this juncture.

I'm quite comfortable with that as a sign off. If anything arises in the future my GP will be able to refer me back to the hospital.

Try to think of it as a positive.

[Sueithy]

Seems the norm, been seeing my cardiologist for two years, go back in march. He mentioned discharging me this time, mentioned ice but I have decided not to have one. I have left ventrical dilated cardiomyopathy also with heart failure. A bit frightening I know you feel I'm on my own now.

[Sueithy in reply to Sueithy]

Icd

[Wodney1966 in reply to Sueithy]

That's what I've got n I'm being monitored through my icd

[shopman]

Sometimes the fear of being discharged is the thought of the process to get back on the list should something go wrong. My Consultant solves this by handing over his direct contact details for this very reason. No need to even contact your GP all is done direct. I guess some places work better than others and for me if it wasn't for the Freeman Hospital in Newcastle I wonder if I would still be here.

[Jerryj]

Not good! Until recently I had regular fortnightly home visits by a specialist nurse who was in regular contact with both my GP and cardiologist. Supreme service but now not available back to roughly six monthly reviews by my cardiologist.

It may be helpful if you discuss this with PALS who would then intervene on your behalf.

[Hidden in reply to Jerryj]

With the greatest of respect Jerry, reading your profile your situation is not comparable to the OP's? If he has had an ICD fitted and it is doing it's job then as has been said, he needs to see this as a plus point. At the end of the day, sooner or later, we are on our own when there is nothing further the specialists can do surely?

[Janma123]

My hubby was discharged to GP care 8 weeks after his bypass surgery. If you have been handed back to your GP you must be doing ok and not in need of specialist cardiologist input any more.

Best wishes.

[Hidden]

The work the NHS does for its patients is legend and although I can understand some of the recovery steps can be very strenuous and frightening, everyone has to move on, for their own benefit. building ones confidence in the system and with their own brave recovery.

How many of us remember our first bicycle and the small training wheels that were fitted - or the hours that one of our parents walked behind us, holding the saddle back to keep us up upright. Do we all remember the very first time we realised Mum or Dad had actually let us go and the shock being realised that we did not need that help anymore and that from that moment, we could actually go it alone, had earned our wings so to speak.

My wife and I felt elated when we were told by the specialist I was being discharged from their care. What a magnificent job they had done - it was now down to me to look after the gift they had given me. Being discharged from the specialist is just another of the doors we have to walk through during our recovery and I can assure you as each of the stages of recovery are reached, you will eventually recover to a stage that almost anything is possible once again.

Everything has its differences, just as we are all different and therefore everyone's outcomes will/could be slightly different. However, one can be very sure of one thing, until the human race begins to look after their health properly, specialists will be overworked beyond belief and at some time everyone must return to the care of their own "fully qualified and tested" doctor.

Be happy and celebrate your return to health and rejoice in a system that allows us to choose what we can do if beset by an emergency, and as long as the system is not abused, we will be cared for for the rest of our lives

[Surreychica_1 in reply to Hidden]

What a wonderful response. Hope things continue to go well for both you and Woodney

[MrsInvisible in reply to Hidden]

What a positive and helpful response, ticking-ticker. Thank you!

[buddy2blue]

That’s really bad. I’v just been refer to Newcastle for a transplant Assessment

[Myers]

I think it’s really positive and you must be doing good Keep it up be positive

Have you got a Merlin machine like mine to monitor if so they are still checking and sounds like they haven’t had any issues that’s good isn’t it xxx

[Wodney1966 in reply to Myers]

I suppose so lol but my doctors don't seem to be bothered bout there patients can never get in

[Myers]

I find it difficult to get in my Doctors but again look on the positive side of you are concerned get in touch with your consultant he will always but you on the right track

[Hidden]

Personally I would be celebrating 🥳 onwards and upwards