feeling ill: I’m so fed up with feeling... - British Heart Fou...

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feeling ill

Nanny1971 profile image
27 Replies

I’m so fed up with feeling ill all the time I had heart attack in July and I’m on a lot of meds now it just makes me feel so down and lack any motivation to do anything because I always feel weak and tired I’m only 53 I can’t work anymore because of this I’m single and just wish I had someone but don’t feel I will ever get that get up and go feeling anymore 🤒

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Nanny1971 profile image
Nanny1971
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27 Replies
Ageingfast profile image
Ageingfast

Dear Nanny

It’s about the time that your recovery should be kicking in. When it does, you will feel wonderful, fantastic, marvellous.

So please be positive about what will follow soon.

Maybe you need to see someone to review your meds. Hopefully your GP practice has a dedicated chemist or failing that you could make an appointment at your local chemists.

In the meantime I hope you are walking six days a week.

I have such marvellous memories of the day my recovery kicked in. A golden moment.

Best wishes

Sooty

Nanny1971 profile image
Nanny1971 in reply toAgeingfast

Thanks sooty xx

Magicmog12 profile image
Magicmog12 in reply toNanny1971

Im with Sooty on that-I managed to get part way up a hill near me when it was starting to snow . I looked at the landscape below me and had a lump in my throat. 3 years on and I walkup that hill and down the other side but I still dont forget that first attempt

PadThaiNoodles profile image
PadThaiNoodles

It’s hard to say it better than Sooty, but we’re all rooting for you.

Skiffrower profile image
Skiffrower

I would support Sooty in suggesting that some of this could be meds, so do try to get GP or pharmacist to listen and not brush things off. I got rid of one med after 3 months - lanzoprazole - and the difference was dramatic. Felt so much better mentally as well as physically. It sounds as if the heart attack was not expected .

So you have had to rethink what you thought life would be like and this takes time. It's a huge adjustment.

I'd also say that feeling down about things after a heart op/ event is very common.

At 5 months post op , I'm doing better mentally than 6 weeks ago . Hang on in there.

Nanny1971 profile image
Nanny1971 in reply toSkiffrower

Im also on lanzoprazole made me think I take a further 12 meds xx

Skiffrower profile image
Skiffrower in reply toNanny1971

12 meds - wow that's a lot! Lanzoprazole gave me violent diarrhea so it was easy to pinpoint that but once I stopped I also felt a lot less exhausted.

Stent2024 profile image
Stent2024 in reply toSkiffrower

Gave me bad diarrhea as well

Bree26 profile image
Bree26 in reply toNanny1971

I take loads of medication now I have a giant box to keep them in. lol 😂 I honestly couldn’t remember the names except Asprin as I remember that one lol

sandandkev profile image
sandandkev

I would ask the pharmacist if any of the drugs you now take can cause tiredness and if so maybe other options

Stent2024 profile image
Stent2024

@its still early days for you nanny 1971 . If you get offered cardiac rehab , I would strongly recommend you take it . It gets you excercising with other people in the same situation as yourself , and is a social event . Gives you a chance to talk to other people. It’s run by cardiac nurses so you’ll be quite safe and monitored . I really enjoyed mine and hopefully it will motivate you a bit more . Wish you all the best x

Heartho profile image
Heartho

Hello,I spent from march to October feeling dreadful, brain fog, fatigue and a total lack interest . Then I read on here of someone's experience of the high blood pressure pills I had been on on. Doctor changed brand and dosage and now I have my energy back. Ask for a review of medications. Take care of yourself, it's a difficult time.

devonian186 profile image
devonian186

That's an extraordinary amount of meds. Did you have surgery or just meds? What ones are you taking for other ailments?

Nanny1971 profile image
Nanny1971 in reply todevonian186

I had two stents fitted then a temporary pacemaker xx

Aspirin 75mg dispersible tablets

One To Be Taken Each Day for life ‐ 28 tablet

Atorvastatin 80mg tablets

One To Be Taken Each Day ‐ 28 tablet

Bisoprolol 1.25mg tablets

One To Be Taken At Night ‐ 28 tablet

Dapagliflozin 10mg tablets

One To Be Taken Daily ‐ 28 tablet

InVita D3 800unit capsules (Forum Health Products Ltd)

one daily ‐ 28 capsule

Lansoprazole 30mg gastro-resistant capsules

One To Be Taken Each Morning ‐ 28 capsule

Metformin 500mg modified-release tablets

Take 2 twice a day ‐ 112 tablet

Prasugrel 10mg tablets

Take one daily for 12 months only to stop August 25 ‐ 28 tablet

Sacubitril 97mg / Valsartan 103mg tablets

One To Be Taken Twice A Day ‐ 56 tablet

Sitagliptin 100mg tablets

One To Be Taken Each Day ‐ 28 tablet

Spironolactone 25mg tablets

One To Be Taken Each Day ‐ 28 tablet

Vencarm XL 225mg capsules (Aspire Pharma Ltd)

One To Be Taken Each Day ‐ 28 capsule

devonian186 profile image
devonian186 in reply toNanny1971

So the pacemaker will come out and all these meds are for 2 stents? Presumably you must have some other ailments other than heart related?

I had a quad bypass and take 5 meds daily. That could be 4 if they gave me coated aspirin and thereby dispense with lansoprazole. Have you asked for a review as its not surprising you don't feel great

Larneybuds profile image
Larneybuds

Sorry to hear how you are feeling at the moment. As someone else has suggested, have you been offered or had cardiac rehab. If you haven't had it I would recommend it as I'm sure a lot of others on the forum will also. Going not only helps you meet others in the same situation but it also gives you more confidence about what you can and can't do. I think this can be part of the 'terror' of recovering from a heart event...the fear of it happening again, especially if you over exert yourself . You have been through a worrying ordeal and have to get used to a new normal like so many of us. A big part of recovery is to do with the mental health effect it has all had as well. I always say that recovery isn't always text book and some people take much longer to feel anything like 'normal'. Do you do any exercise or walk or have anything you can occupy yourself with?...hobbies? I'm sure many on the forum can relate to not feeling motivated which is difficult anyway if we have been unwell . It could of course be down to yours meds and you do seem to be on a lot. Perhaps have a chat with the doc about that or were you allocated a cardiac nurse you can talk to? I hope you get done answers and start to feel better soon but I really would look into cardio rehab if you haven't done so already but they usually do contact you...perhaps something else you can look into. Take care xx

David-66 profile image
David-66

hi Nanny

I had a heart attack 7 weeks ago while on holiday and was fitted with an emergency stent. Not back to work yet but I make myself go out for a walk every day as it’s good for the body and mind. Apart from being tired it’s the anxiety that is more in the forefront of my mind as I can’t get a cardiologist appointment until Aug 2025.

You seam to be on a lot of meds, I’m taking 8 pills a day, but I guess we are all different. Has your GP or Cardio nurse explained what you are on and what each med does.

The main things I have acknowledged is that life goes on post heart attack and a positive attitude and trying to keep yourself busy is important. There is lots of support on here and people you can chat to. Meeting others in a support group may be a good option. I haven’t as yet engaged in that process yet, but need to find one local to me in Leyland as I’m sure that will also be beneficial.

Take care and reach out if you need support, your not alone.

Driver11 profile image
Driver11

You never know what is just round the corner so don't give up The feelings will improve although there is no timescale it will start to happen when you least expect it

Good luck

EdtheDead profile image
EdtheDead

I mirror what a few have said. See your GP about a medication review, though from experience most seem unwilling to go against a Cardiologists medication recommendation. After my HA ,that turned out not to be a HA after 12 months of arguing for an MRI, I was placed on a mountain of meds that made me feel like cr*p. I've since been removed from the usual suspect meds and the change in me is amazing. I've loads more energy, I actually want to get up in a morning, and I feel alive again.So please see your GP and make yourself heard

Good luck

Jedi14 profile image
Jedi14

Be very careful at this time of the year. My real troubles started during winter months, if you were unwell before, your chances of things getting worse have just gone up!

Lesmis85 profile image
Lesmis85

Like you, I live alone and share your weak and tired feelings - wish I still had my lovely husband to support me as I did him for many years . Propranolol, Bisoprolol and Atenolol have all given me adverse reactions similar to yours, I will never take a 'lol' again. Meds for high BP have also caused occasional problems. It really is a matter of trial and error, I hope you feel much better soon x.

jerry12953 profile image
jerry12953

I'd suggest that bisoprolol would be the first possible culprit to look at.

Qualipop profile image
Qualipop

Have you checked your tablets for side effects? After my heart attack I was on one specific tablet that made me feel absolutely terrible. Do you notice you feel worse after taking one specific medication? If you suspect it could be a tablet then talk to your GP. Have you been to cardiac rehab? That usually started around 3 to 5 weeks after a heart attack and is the best thing you could do. If not, then ring the hospital to ask about it.

Stay positive sending 🤗💝

Nanny1971 profile image
Nanny1971

I take all of these and I do wonder are they all necessary hense I’m type two diabetic too and it was diabetes that cause the heart attack apparently my blood was like treacle!

Aspirin 75mg dispersible tablets

One To Be Taken Each Day for life ‐ 28 tablet

Atorvastatin 80mg tablets

One To Be Taken Each Day ‐ 28 tablet

Bisoprolol 1.25mg tablets

One To Be Taken At Night ‐ 28 tablet

Dapagliflozin 10mg tablets

One To Be Taken Daily ‐ 28 tablet

InVita D3 800unit capsules (Forum Health Products Ltd)

one daily ‐ 28 capsule

Lansoprazole 30mg gastro-resistant capsules

One To Be Taken Each Morning ‐ 28 capsule

Metformin 500mg modified-release tablets

Take 2 twice a day ‐ 112 tablet

Prasugrel 10mg tablets

Take one daily for 12 months only to stop August 25 ‐ 28 tablet

Sacubitril 97mg / Valsartan 103mg tablets

One To Be Taken Twice A Day ‐ 56 tablet

Sitagliptin 100mg tablets

One To Be Taken Each Day ‐ 28 tablet

Spironolactone 25mg tablets

One To Be Taken Each Day ‐ 28 tablet

Vencarm XL 225mg capsules (Aspire Pharma Ltd)

One To Be Taken Each Day ‐ 28 capsule

I must rattle xx

Myshebe profile image
Myshebe

Hello Nanny1971,I totally empathise with you, i am sorry to hear of your struggle.

I too had a HA May 2023, age 61, whilst on holiday in my caravan, rushed to hosp on the blues,emergency x 2 stents fitted to main right artery, felt amazing as soon as 2nd stent was in, pain immediately went, i came out of hosp on 3rd day, i asked Dr if i could continue my holiday? He said, no reason why not,so i did, now for the first couple of days after coming out of hosp, i did take things easy, ( happy to relax and enjoy the seaside ) ,as requested by the hosp, I was so happy to be alive, as I had a STEMI heart attack.

I was prescribed the usual cocktail of drugs after heart attack,

Bisoprolol 1.25mg,Ramipril 1.25mg, Aspirin 75mg,Statin 40mg,Ticagrelor 75mg, Glyceryl trinitrate.

By the 5th day, things changed?? I felt zombified,like i couldnt move,my body was heavy,i felt tired, like i was glued to my seat,no energy,motivation, i felt depressed, just to do anything felt a huge effort, i felt weak, no interest in anything any more, like you say, no get up and go, this was not at all like me.

Then something else happened, to add to the mix, when i led down at night to go to sleep, I couldnt breathe ?? I immediately thought it must be my heart ? My anxiety was throgh the roof, it felt scary, I phoned Dr, who said it was a reaction to the Ticagrelor, took me off that, and prescribed, Clopigogrel 75mg, no more problem with breathing after that.

I have problems getting to sleep also, normally its 2,3 or 4 a.m by time i drop off to sleep, my head is awake,but im tired,lie in bed sometimes for a couple of hours trying to sleep, so then i get out of bed, such a torment, finally go back to bed feeling exhausted, but still struggle to sleep,i have the most strange visuals as im dropping off to sleep, which i dont like, I dont know if you can relate to any of this ??

From what ive read,, Bisoprolol can cause problems with this horendous tiredness and lack of being able to do anything, and sleep problems.

I had HA, May 2023, it is now Feb 2025, and I am still on Bisoprolol 1.25mg, and still suffering these horendous side effects, I just lol about the house, with no energy ,feeling tired constantly, fed up, with no motivation, which stresses me out, as i should be walking, exercising to keep fit, but just no enthusiasm.

Before HA, I was lively always on the go with lots of natural energy.

Like you Nanny1971, i feel so depressed about all this, I feel its the awful side effects from the meds, I dont even know why i have to still be on Bisoprolol,? as my heart was fixed, EF went from 40% to 60% which is good, functioning well, i was told that my heart sustained little to no damage, and heart muscle is strong, as i was always fit before.

I know how you feel, it is so unfair that we have to exist like this , feeling we are a shadow of Our former selves,,

I will be talking to my Dr again, to discuss this, as i feel it is no existence for us, you are 58 and I , 61, We still have time to enjoy Our lives and are lucky that we are still here to be able to do so, and at least to feel normal again.

I do hope that you can get some help, Wishing you well again Nanny1971 xx

Nanny1971 profile image
Nanny1971

thanks for your reply so sorry for you and yes I’m still struggling I get weird dreams now and my feet hurt if I ever do anything I could go out. Shopping then the next day so tired I have to spend day in bed xx

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