WOOT! Discharged back to GP this morn... - British Heart Fou...

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WOOT! Discharged back to GP this morning!!

Sunnie2day profile image
49 Replies

I've just rung off on a telephone consult with my cardiologist and he is satisfied it is safe to discharge me back to the GP with the understanding if my daily slight improvement begins to drop off or if I feel I'm deteriorating I'm to be sent straight back to him. BONUS: he's taking me off the 'high-risk' list as he feels I can be trusted to maintain strict hygiene and social distancing to avoid contracting Covid-19!

I feel as though I've won a lottery or a marathon. It's been a bit of a long slog (since March 2019). I still have angina but now it's called 'stable with normal coronaries'. I still have Rheumatic Heart Syndrome with 'trivial' aortic valve scarring that will be monitored with annual scans and I still have minimal pericardial effusion (he feels is now permanent so the minor residual wheezing will likely never go away) that will also want monitoring at the annual scan. I still have recurrent pericarditis but the acute flare I've been coping with since last year is now declared officially cleared.

But all in, I haven't felt this well in decades (thank-you, thank-you, thank-you Bisoprolol 1.25mg+300mg aspirin, thank-you!). Every day slight improvement and I'm thinking I'll be at near-optimal fitness again by mid-summer. I'm a 63yo lady and frankly just now I feel 25 again, WOO HOO!!

I think my first outing now I'm off the self-isolation restriction list will be to take my exercise walk off my property and combine it with the once daily permitted visit down the near-by supermarket - for a lottery ticket!

Final - I'll be keeping up here on the forum. I have no words adequate to the need to describe how supportive and informative this forum and the members (especially the Heart Stars) have been!

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Sunnie2day
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49 Replies

That’s fantastic news Sunnie2day 👍🏻

080311 profile image
080311

Hi, that’s such great news this morning, you must be over the moon. Have a glass on me this evening! Ever upwards.

Very best wishes stay Pauline

Milkfairy profile image
MilkfairyHeart Star

Great news indeed!

Enjoy your freedom and smell of fresh air.

84green profile image
84green

Great news. Many congratulations on the pay off for your hard work and discipline. Enjoy the sunny day.

Sunnie2day profile image
Sunnie2day in reply to 84green

:) I live in NE Scotland - yesterday was sunny and bright but today dawned dull with a wee threat of rain in those grey clouds. Still, it's definitely Sunnie2Day at my house the now:)

Prada47 profile image
Prada47 in reply to Sunnie2day

Hi Sunnie

Still, it's definitely Sunnie2Day at my house the now

How Scottish is that !!lol

Take Care stay Well

MichaelJH profile image
MichaelJHHeart Star in reply to Prada47

Och aye!

Outforawalk profile image
Outforawalk

That’s great news, look after yourself and enjoy your safe and socially distanced trip into the wider world!!!

gilreid1 profile image
gilreid1

That’s great news for you and the timing really good. The weather is really nice I am just going for my daily walk along beside the river Ythan. Hope you enjoy your new found youth

Take care and stay safe

Prada47 profile image
Prada47 in reply to gilreid1

Sounds like Inverurie !!

Is it not Raining up there today ??

Regards

gilreid1 profile image
gilreid1 in reply to Prada47

Ellon. Have not seen rain in a long time.

Janma123 profile image
Janma123 in reply to gilreid1

New Deer - we had a shower overnight but fine now! Enjoy your walk!

Calliope153 profile image
Calliope153

Just wonderful!

SpiritoftheFloyd profile image
SpiritoftheFloyd

Well done, lovely to hear your great news.

This being ill lark definitely makes life a bit of a roller coaster, the lows are grim, but my god, the highs really are something else. A few simple word "I'm discharging you" have such a dramatic effect. Enjoy your day, and good luck with the lottery ticket.

PS - when I was discharged last October, I went and bought a cream cake to celebrate! 🍰

Dovaston profile image
Dovaston

Well done to you that’s fantastic news 👏

Sunnie2day profile image
Sunnie2day in reply to Dovaston

Well done the GP and the cardiology team, really. The GP fast-tracked me and the cardiac team did all the investigations plus actually listened to what I was saying (symptoms, etc). All stars all around, I don't feel I'd be here without all of them working together so well - even, lol, the cardiac nurse who clearly did not like me one bit yet was completely professional in her attention to my heart health.

All I did was log information (BP, pulse, symptoms and when occurring+what seemed to help) and do what they told me - so all credit to them:)

NorthantsSteve profile image
NorthantsSteve

Brilliant news. So happy for you.

Robster12 profile image
Robster12

Good news😀

Supernanu profile image
Supernanu

Great news 😄

stillaboveground profile image
stillaboveground

What amazing news just for a change, after all the doom and gloom we hear everyday now. Just one way to go now and that's forward. keep safe.

Nice to hear some good news x

Janma123 profile image
Janma123

That’s great news, enjoy your freedom! It’s just about two years since Bob came home after his heart surgery seems ages ago now.

Dockdog profile image
Dockdog

Well Sunnie2day, that is fantastic news and I am so pleased for you. It is always so good to learn someone is making good progress! Do take care and enjoy your new freedom wisely.

Sunnie2day profile image
Sunnie2day in reply to Dockdog

Thank-you, and I do mean to continue on being careful. I will enjoy a wee taste of freedom walking to the supermarket as it is quite close (400 steps there+another 400 home) but after that I plan to get my daily walk in the goat track next to my house, and no further.

I'm lucky enough to live off the main road and after the one trip to the supermarket I will stay off that main street and pavement for the duration.

Freedom used wisely is wonderful, freedom taken as permission to revel in wild abandon is madness - imagine thinking taking a walk through the town centre to be 'wild abandon', what times we live in, eh?!

080311 profile image
080311

Wow Sunnie ‘wild abandon’ what pictures that creates maybe a coffee out!! Wouldn’t that be nice?

Take care Pauline

skid112 profile image
skid112Heart Star

Very glad to hear it, good luck with the lottery

Bagrat profile image
Bagrat

Great news. So pleased for you.

Alison_L profile image
Alison_L

Excellent news, Sunnie :)

woodlandwonders profile image
woodlandwonders

Great news for a lovely person 😊

Sunnie2day profile image
Sunnie2day

UPDATE: Apparently my cardiologist had some spare time and used it to review patient notes. End result for me is he's rescinded my back-to-GP discharge in favour of keeping me on - after the pandemic he feels he must investigate for microvascular angina (MVA).

I'm seeing this as a good thing. At least he's kept to his decision to remove me from the 'high-risk shielding group' so I'm not worried about that happening again.

in reply to Sunnie2day

Hi Sunnie, has your cardiologist said what investigations will be used ?

Sunnie2day profile image
Sunnie2day in reply to

No but I'm thinking it's got to be a stress MRI, it's the only thing available up here, I think, (there may be something in Glasgow but I'm really hoping to avoid that) and even then it's my understanding the results aren't always clear using that.

Milkfairy profile image
MilkfairyHeart Star in reply to Sunnie2day

A cardiac perfusion MRI will only detect some types of microvascular angina due to microvascular dysfunction.

MVA due to microspasms and vasospastic angina are not.

I have a new Cardiologist and he's gone through my history with a fine tooth comb

Spoken to my St Thomas's Cardiologist and they both agree

Objectively no suggestion involved my diagnosis is of coronary vasospastic angina.

The reason my angiogram with acetylcholine results.

Sunnie2day profile image
Sunnie2day in reply to Milkfairy

I think I've read the acetylcholine angiogram is only available at one lab Down South (I could be wrong about that, Glasgow perhaps has the tech?) so I'm not convinced going through the MRI is going to be helpful. But my cardiologist has 'dog with bone' syndrome, lol - he's got his teeth in now and I'm thinking it's going to be another year of 'test and talk' before he's fully happy.

I want to be clear I'm not disrespecting him at all, he's considered one of the best in Scotland according to friends of my late husband I'm still in contact with. They all say if they were in Scotland and needed a top man cardiologist he'd be their no1 go-to. I've been told I'm in good hands and to trust him - so I do.

(Not keen on the 'fun' of a perfusion MRI, though!)

Milkfairy profile image
MilkfairyHeart Star in reply to Sunnie2day

Prof Colin Berry performs angiograms with acetylcholine at the Golden Jubilee in Glasgow.

He along with my St Thomas Cardiologist are leading BHF funded researchers into MVA and vasospastic angina.

They are world leaders.

Here's a an article about CorMicA

pubmed.ncbi.nlm.nih.gov/302...

There is a trial into the possible use of a new medication to treat MVA. The PRIZE trial.

Lead by Prof Berry, both my new Cardiologist and St Thomas's Cardiologists are involved

clinicaltrials.gov/ct2/show...

Sunnie2day profile image
Sunnie2day in reply to Milkfairy

Wow about Glasgow - now I'm going to be down the Internet rabbit hole the rest of the morning reading up on the Golden Jubilee. I don't think my cardiologist would send me there but then again I didn't think he'd rescind my discharge, either.

in reply to Sunnie2day

Yea I had a stress MRI, and it came bk clear. My understanding from MF is that the newer machines can detect it but at the time of my MRI I was worried they would section me if I started prancing around at the back of the scanner in my hospital gown looking for the model and serial number of MRI machine 🤣

Milkfairy profile image
MilkfairyHeart Star in reply to

You might be interested in this article which discusses ongoing angina following a stent being inserted.

It suggests you've guessed it a vasomotion disorder of the blood vessels, microvascular dysfunction and vasospasms.

acc.org/latest-in-cardiolog...

in reply to Milkfairy

Yea, a young clever registrar framed it too me, that it’s my cardio system rejecting the stent by kicking up a fuss.

Sunnie2day profile image
Sunnie2day in reply to

LOL! But...I wonder if I could find out what year make and model the machine at the cath lab here is using!

in reply to Sunnie2day

It would be funny to ring up and ask, can you imagine the faces on the other end of the phone 🤣

Sunnie2day profile image
Sunnie2day in reply to

I now have the mental image of the person at the other end of the line holding the phone away and looking at it as if to say 'Oh please, not another pain-in-the-backsider, please!'.

Milkfairy profile image
MilkfairyHeart Star in reply to

The make of and serial number of the MRI machine they used to perform my perfusion MRI is printed on my MRI report from St Thomas' hospital

The serial number of the machine used in the cath lab will also be recorded too on the Electronic records system of the hospital.

Sunnie2day profile image
Sunnie2day in reply to Milkfairy

Milkfairy, really, what would we do without you?! I will now be alert to that information on the reports, thank-you!

in reply to Milkfairy

Does it have its last MOT & service history on there aswell 😃

Milkfairy profile image
MilkfairyHeart Star in reply to

I am sure if you really wanted to you could ask for the service history and calibration records of the machine from the Medical Physics Department.

Not sure anybody is that anally retentive....I might be wrong😂

in reply to Milkfairy

Well in for a penny in for a pound 🧐

Milkfairy profile image
MilkfairyHeart Star

Hi Sunnie2day

Do think your Cardiologist has been reading the latest research from Glasgow and London teams researching microvascular dysfunction?

Sunnie2day profile image
Sunnie2day in reply to Milkfairy

(forehead smack) Yes, that's probably exactly what has happened - he read those then went back through patient notes and mine leaped out of the pile at him. It's 'funny' as when he discharged me back to the GP I did ask 'So, you've ruled out MVA and VA, then?' and he said he had.

If I have it, I have it - but I respond very well to the occasional GTN spritz, my very low-dose Bisoprolol (1.25mg) works wonderfully and until this recent heat wave I'd not had angina in quite a while. I'm not convinced but I don't have the training and experience he has so I'm certainly not going to argue it.

sigh

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