Back step

[Dicky-ticker]

Discharged after a day, waiting for neurology appointment for urgent head scan (waiting list 5 months) hope urgent means urgent.

Back on midorine even though BP and heart rate high 139/96 HR 102 on waking, 148/91 HR 100 prior to bed (minimal exercise in between)

Advised to take BP readings 4 times a day (given diary to fill in) and take to GP in a week to be analysed.

Why if you have SVE, mild AF and continuous syncope are you so hard to diagnose?

If symptoms similar to previous occur told to come immediately to A&E feel I'm in Groundhog Day.

Struggling as to how to proceed, and maintain some kind of mental health

[Kristin1812 Heart Star]

It must be very hard, while all this is going on. So much uncertainty.

I hope it’s thoroughness the Hospital is showing, and it really pays off, for you.

[Dicky-ticker in reply to Kristin1812]

Thank you I collapse so often now, I just pray I'm not inducing that possible stroke, everybody talks about.

[Kristin1812 Heart Star in reply to Dicky-ticker]

Take it easy, while it’s not clear exactly what’s going on with you.

Hopefully, you’ll have a clearer picture when you see your GP and neurologist,

In your position I would probably monitor the collapses now, so you can show them exactly what’s happening with them, and whether anything is changing.

My Consultant loves data, however subjective!

[Dicky-ticker in reply to Kristin1812]

Just found out there's a 48 week wait for neurology. Aaaaaaggghhh think my heart has just exploded.

[Kristin1812 Heart Star in reply to Dicky-ticker]

Mine would, too. Maybe time to discuss with GP whether he flagged your referral as ‘urgent’ .

[Sunnie2day in reply to Dicky-ticker]

Can you go private? My experience with 'urgent' led me to going private. Too long a story to go into but bottom line is their 'urgent' meant a wait of over a month by which time I was feeling so much better (until I wasn't) I found myself apologising to the techs, and having the distinct impression I was annoying the cardiac nurse and the cardiologist.

And when I relapsed, their 'urgent' was still months - so I went private.

Note: going private can mean a bit of a wait depending on where you are and how far you're able to travel. Private is good IF the facilities are available. The private hospital in my area can do scans but I had to go to the nearby teaching hospital for an angiogram and had I needed surgery, the procedure would have been done at the teaching hospital with transfer to the private hospital after day-one post-op.

I'm in NE Scotland, if you're Down South it may be different for you. Worth looking into if you can.

[Dicky-ticker in reply to Sunnie2day]

No need to go private, was brought into hospital again and admitted once more onto cardiac unit. See what happens this time. Going to claim squatters rights and chain myself to the bed.

[Sunnie2day in reply to Dicky-ticker]

I'm sorry to hear things progressed to the point you've been re-hospitalised but love your spirit (squatters rights)! Do they have anyone you can talk to (chaplain, counsellor) while you wait answers? I think my last nerve would be shattered if I were going through what you are.

Please keep us updated when you can.