Tetralogy Of Fallot
Congenital heart disease
Tetralogy Of Fallot
Congenital heart disease
Hello and welcome to the forum! If I assume you are a UK resident your inital surgeries were probably carried out at Great Ormond Street Hospital. My next assumption is that you are in your thirties. Because you started with a very complex condition u would suggest you get a referral to Cambridge Papworth Hospital. Wishing you all the best, MichaelJH
Thank you so much. I am actually just getting to know the page, so I might be a little lost as to which group specialize in what and where. I am Ecuadorian, but thanks to my family I do have European citizenship. My Tetralogy is not completely fixed and my insurance doesn't cover my ToF, so my goal is to find affordable (or free) treatment anywhere around the globe.
Adult congential heart disease services are a specialised service.
The Sommerville Foundtion provides this information which you may find helpful.
thesf.org.uk/our-community/...
Royal Papworth is not on the list.
Did a bit more delving and it appears that although Papworth have an ACHD (Adult Congenial Heart Disease) Unit complex surgeries are referred to Guys and St Thomas: