My name is Katie, my story's quite long so i won't go into too much detail. I'm 18 and i was born with a form of congenital heart disease called Double outlet right ventricle (a marginally more serious form of fallots tatralagy). - sorry if i spellt that wrong - anyway, i had surgery the day i was born, and then open heart surgery when i was 18 months, but none of that i remember. however i then had open heart surgery again when i was 15, following from which i had two post surgical infections, both of which at some point was misdiagnosed as endocarditis (although thankfully they weren't), and the second of which i needed further surgery for. i then also had more unexpected following surgery last October because my sternal wires had come undone and which were sticking into my chest, and which had been causing me considerable, and misdiagnosed chest pain for 9 months before the operation to get them removed. i still sometimes get nightmares about the surgery and everything linked to that, but i'm having therapy which is helping, and i really wanted to meet some more people who would understand a bit about what it's like, and maybe be able to help others if i can in some way, as i have learnt soo much from my heart condition, about life, friendship and what it really is to be strong. i am quiet lucky in some ways, as my heart condition doesn't really impact my day-to-day life, and I've never been on medication for it (apart from antibiotics), i will need surgery again in the future, which will be a (pulmonary) valve replacement which this time can be done by catheter- so thankfully no more open heart surgery needed (hopefully)!