Best treatment and hospitals for Tetralogy of Fallot examinations and surgery? Born with it and so far 3 open heart surgeries.

[ocarina404]

Tetralogy Of Fallot

Congenital heart disease

[MichaelJH Heart Star]

Hello and welcome to the forum! If I assume you are a UK resident your inital surgeries were probably carried out at Great Ormond Street Hospital. My next assumption is that you are in your thirties. Because you started with a very complex condition u would suggest you get a referral to Cambridge Papworth Hospital. Wishing you all the best, MichaelJH

[ocarina404 in reply to MichaelJH]

Thank you so much. I am actually just getting to know the page, so I might be a little lost as to which group specialize in what and where. I am Ecuadorian, but thanks to my family I do have European citizenship. My Tetralogy is not completely fixed and my insurance doesn't cover my ToF, so my goal is to find affordable (or free) treatment anywhere around the globe.

[Milkfairy Heart Star]

Adult congential heart disease services are a specialised service.

The Sommerville Foundtion provides this information which you may find helpful.

thesf.org.uk/our-community/...

Royal Papworth is not on the list.

[MichaelJH Heart Star in reply to Milkfairy]

Did a bit more delving and it appears that although Papworth have an ACHD (Adult Congenial Heart Disease) Unit complex surgeries are referred to Guys and St Thomas:

royalpapworth.nhs.uk/our-se...

[Milkfairy Heart Star in reply to MichaelJH]

The Sommerville Foundation is a charity established by healthcare professionals and patients.

It is a really useful source of information, research and only lists recommended Adult congential heart disease services.

[ocarina404 in reply to Milkfairy]

Thank you so much for the response, I will still look into it to see if I can find more information on this.