Hocm

[Lhatty]

Hi, I am 39 and was diagnosed with hocm with a loud murmur in April this year due to breathlessness and chest pain on exertion. I started on Bisoprolol but am now trying out verapamil due to the Bisoprolol making my murmur louder/harder. I was constantly aware of my murmur, which makes things worse as it’s a constant reminder that I have this condition. So far since starting the verapamil it seems to be making the murmur subside but I think my chest pain and breathlessness are coming back! I’m wondering if there is something I could take which would deal with both Of these issues and not just one, will just persevere for a few weeks and see what occurs. I have also had the gene test and I have MYH7, which other family members have also. My mum has no symptoms but they found the gene in her. I am waiting for my children to be tested now ☹️ I have obstruction, my gradient is 49 and thickness is 23mm. I do not qualify for a icd with a 2% chance of sudden death.

I would like to meet others in a similar situation please x

[GrannyE]

You poor thing. I am sorry I cannot help you because thank goodness I don't have your problems. A thought occurred to me and that is how are your ferritin levels? Anaemia could account for your breathlessness problems. At least you should rule that out. Good luck and don't forget that writing about your problems or talking to a friend about them helps so carry on posting.