URGENT HELP AND ADVICE NEEDED

[Katie2203]

Hi everyone,

Panicked daughter here! My dads in a&e with 10% ejection fraction. He has an ICD fitted and a pacemaker. He has had cardioversion last week and they found one of the leads have come out so it’s not working properly yet and needs to be refitted. He’s on a range of tablets to. I know that HF will never get better but will his EF improve? Should I be prepared for the worst?

[Shar28]

Hello, it sounds like you’re going through an awful time and I can’t answer your questions but wanted to offer you some support. I’m sure other members will too. Hope everything turns out well for your dad.

[Rav_k]

Hi Katie, everyone is different so it’s difficult to give a definitive answer. When I was first diagnosed with DCM almost 3 years my EF was low but with the help of a range of different medication and an amazing consultant my EF went up to 41%.

Unfortunately I had a chest infection last year which made it go down again. But some people do find that their EF can go up and down

I hope your dad gets better soon x

[Katie2203 in reply to Rav_k]

Thank you so much that gives me so much hope xx

[stevejb1810]

The meds should help. Ramipril for example is prescribed to ‘remodel’ your heart (the surgeon’s words, not mine). Fingers crossed that with the reconnection and the drugs he’ll make a steady improvement

[Hidden]

Katie,

I got diagnosed with only 20% and expected to get an ICD and was prepared for a much shorter lifespan. A long hard road but i am now at 53% LVEF and can do better. Don't give up and don't let him.

N

[Hidden in reply to Hidden]

That is amazing you are up to 53%! Great advice.

[Katie2203 in reply to Hidden]

Thank you so much that’s so good!!!

[gal4God]

U need to explain to ur daughter wat u kno on a age apporate Level if she’s a kid. Be willing to listen and answer questions. Don’t give a just is answer.