After reading lots of posts on here about heart situations and gaining back confidence with cardiac rehab, advice and counselling for the future, I realise that someone in my situation doesn’t appear to be catered for.
It was discovered in the latter part of last year that I have moderate/severe aortic stenosis possibly as a result of a bicuspid valve which I would have been born with.
I’m under Kings and have waited 4 months to be discussed by a MD team. So, 4 months of inaction by me also. Too scared to know exactly what I can and cannot do and lack of confidence in doing anything anyway. No one to really turn to, fear that nobody can resolve because I just don’t know where the support should come from.
So while I know I will get lots of support after a valve replacement, what am I meant to do before any op? While this drags on, I am trying my best to be positive but it’s sll from within me and with no support from the people who know.
There will come a point where I just shut down I’m afraid. I’m still booking holidays, holding baby showers, going away for weekends, socialising sensibly with friends etc but I’m trying to keep the diagnosis in a little box in the back of my brain which is going to escape soon I think. I need to keep healthy and I belong to a fab health spa that I’m just not using even though I know it’s important to keep healthy cardio vascular wise etc.
Plus who is there to help me when I wake in the night with fear of the unknown.