Hi all.... having been through my second op to get this pesky lead in place... which has failed... I have been in touch with PALS as I did feel it was in part due to lack of after care following the op ..... as well as me wriggling around in the op due to me coming round from the sedation. Mentally as well as physically it's been tough... but now I am back and now 're focused.
So firstly I know that CRT works for me and gives me a better quality of life... as well as stopping deteoriarisation of my heart. It worked really well for those 7 months.
So now having got PALS involved I now have the team talking to me and listening to me and allowing me to get involved in the plan
I went for screening for a new type of leaflets device WICS ... however my ribs are in the wrong place and my lungs are too healthy and would get in the way! So let me say I am taking this as a positive... and had decided that this was not for me due to the very limited battery life.
So now looking at a couple of options with my surgeon... one if which is have another go at putting in this pesky lead... however I want some input into my post op care ... to make sure the pesky thing stays in!!
I am awaiting my surgeons response and we will work through together what is the best way forward... and this will all help me to feel more confident if we elect for another op, and that my after op care will ensure we get the best chance of keeping the lead in place.
It does seem madness when the cost of doing these ops are negated by the rushing patients out too early .... which pushes the costs up when we have to do it all again and again . So this time let's just hope it's third time lucky..... watch this space.....