So much has happened in the past month. My aortic arch dilation has grown 5mm in 3 months, thank goodness I ignored my Cardiologist and pushed to see my surgeon. He immediately ordered a rescan and the increase was found!
I go in tomorrow for an aortic valve replacement (bicuspid valve) and aortic arch repair. I'm nervous but feel so grateful that it is a planned procedure and not under a blue light scenario.
I'm fortunate they are using the new Edwards Inspiris Resilia valve. I've heard all good things so feeling very positive.
See you in a week with a full update.
Lisa x
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I had the same 14wks ago and tomorrow I return back to work.
Had a echocardiogram today and my Peppa Pig Value 😂 is working good. I’ve read about this new Value, I didn’t know I had a heart problem so it was quite a shock. I was surprised how clam I was on the day of the operation, I was woken up the early hours the following morning and felt great went straight from intensive care and on a ward by 10am, the next day I was up and walking and home 4 days later.
So keep us updated on your progress. Best wishes Kaz ❤️💕❣️
So good to hear your progress, wow you've done so well. Makes me feel very reassured thank you for taking the time to respond. Good luck tomorrow, I take it you're on phased return? Hope all goes well L x
No I only work part time. Going to be a shock getting up so early and I must remember not to go in my PJs 😂 cause that’s what I’ve basically been wearing these last couple of months . So must have an early night take care ❤️💕❣️
A phased return allows you to return to work under reduced hours and duties. It's usually recommended by your GP or your company's Occupational Health advisor. I'm not sure how it works for part timers but worth checking. Good luck today x
goodluck tom what is this new valve im awaiting my aortic valve replacement.my cardiologist done the same and i told her i wanted 2c the surgeon and he said straight away we put you on the list so im just waiting.
Well done for pushing to see your surgeon. The new valve was introduced back in March, it has a life span of 25 years and you don't have to take warfarin etc
I think it is only being used in certain hospitals at the moment and there are some basic requirements to qualify to get this new hybrid valve. Age at the moment I believe. There's a website I've attached the link below:-
thanks lisa im only 40 so i will ask my surgeon about it thanks as i dont wanna be on warfrin if possible i will look at the link after i take my boy 2 school thanks paul x
I hope you operation went well and that you have fully recovered. What was your experience with with Edwards Inspiris valve ? I am enquiring as a friend is looking for this valve to be used as he has aortic stenosis made worse by calcification.
Apart from a brief episode of Atrial Fibrillation it’s been really good. I only have to take aspirin and all my post op echos show the valve is performing well. I understand there are only a few hospitals using it so far and they select younger patients, I’m 51 and was accepted.
Thank you for your reply. I am glad to hear that your valve is performing well. Can I please ask at which hospital your operation took place and what surgeon was in charge ?
Thank you, Lisa for your reply. My information is that apart from the Glenfield in Leicester this procedure with the Inspiris valve is only available at Harefield Hospital, Kings College Hospital and St Thomas Hospital all in the London area. I am surprised that it is not available elsewhere.
Great that you have the opportunity to benefit from new valve technology, Lisa. On the face it doubles the life of a standard prosthetic valve so maybe means less frequent refit and no warfarin. Let's hope it's use is extended beyond the few hospitals where it is currently an option and NICE gets behind it. Wishing you good luck and a speedy recovery.
Oops. - should have noticed the thread dates! Hope all went well - life should have returned to a new normal if the 3 months post op recovery went ok ?
I am 68 and elected to have the Edwards Aortic valve Inspiris Resilia replacement at St Thomas hospital London in August 2017. I had Heart Ventricular Tachycardia (VT) & Heart Atrial Fibrillation (AF) whilst in hospital after the operation but could not have asked for better treatment. I still get Atrial Fibrillation but nobody seems to worry as it is quite common.
Hope you’re feeling fine now! I just wondered if you had a mini AVR instead if the full sternotomy? I’ve just had mine in St Thomas’s - same valve - and had same “electrical” problems on day 3.
How're you getting on after your surgery? Someone on a valve replacement Facebook group also mentioned this valve and it sounds fantastic!
My cardiologist has said him and the team agreed I should get surgery later this year so I've been going round in circles researching and thinking about what procedure I would prefer but of course they all have their on pros and cons.
I'm 28 with a moderate/severe stenosis, a leaky valve and an enlarged aorta of around 3cm and am an outpatient. I hope I will be able to get this valve.
Hi Lisa, I am 55 and I live in Canada. Canada only approved the INSPIRIS RESILIA valve a year ago, so we have no specific performance data for the valve. I have severe aortic stenosis due to a bicuspid valve, so it's time to replace it. The surgeon and I decided to go with the Inspiris Resilia valve. Could you share your experience with him? Do you regret choosing him?
Hello Lisa. I am going to have surgery to replace a bicuspid aortic valve, and I am thinking of inspiris resilia. How is your experience until now, three years after your surgery? Thank you.
Hi my husband has the Resilia 2 years ago, recovered quickly and has had no problems what so ever 🤞 he had it at St Thomas London. Hope your surgery goes well
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