Edwards Inspiris Resilia aortic valve replacement

[Lisa4]

Hi everyone

So much has happened in the past month. My aortic arch dilation has grown 5mm in 3 months, thank goodness I ignored my Cardiologist and pushed to see my surgeon. He immediately ordered a rescan and the increase was found!

I go in tomorrow for an aortic valve replacement (bicuspid valve) and aortic arch repair. I'm nervous but feel so grateful that it is a planned procedure and not under a blue light scenario.

I'm fortunate they are using the new Edwards Inspiris Resilia valve. I've heard all good things so feeling very positive.

See you in a week with a full update.

Lisa x

[KazSumm]

Good wishes for tomorrow Lisa

I had the same 14wks ago and tomorrow I return back to work.

Had a echocardiogram today and my Peppa Pig Value 😂 is working good. I’ve read about this new Value, I didn’t know I had a heart problem so it was quite a shock. I was surprised how clam I was on the day of the operation, I was woken up the early hours the following morning and felt great went straight from intensive care and on a ward by 10am, the next day I was up and walking and home 4 days later.

So keep us updated on your progress. Best wishes Kaz ❤️💕❣️

[Lisa4 in reply to KazSumm]

Hi Kaz

So good to hear your progress, wow you've done so well. Makes me feel very reassured thank you for taking the time to respond. Good luck tomorrow, I take it you're on phased return? Hope all goes well L x

[KazSumm in reply to Lisa4]

Phrased return what’s that 😂

No I only work part time. Going to be a shock getting up so early and I must remember not to go in my PJs 😂 cause that’s what I’ve basically been wearing these last couple of months . So must have an early night take care ❤️💕❣️

[Lisa4 in reply to KazSumm]

Hi

A phased return allows you to return to work under reduced hours and duties. It's usually recommended by your GP or your company's Occupational Health advisor. I'm not sure how it works for part timers but worth checking. Good luck today x

[mewg]

goodluck tom what is this new valve im awaiting my aortic valve replacement.my cardiologist done the same and i told her i wanted 2c the surgeon and he said straight away we put you on the list so im just waiting.

[Lisa4 in reply to mewg]

Well done for pushing to see your surgeon. The new valve was introduced back in March, it has a life span of 25 years and you don't have to take warfarin etc

I think it is only being used in certain hospitals at the moment and there are some basic requirements to qualify to get this new hybrid valve. Age at the moment I believe. There's a website I've attached the link below:-

edwards.com/_layouts/Edward...

Hope you're not waiting too long for your operation, take care L x

[mewg in reply to Lisa4]

thanks lisa im only 40 so i will ask my surgeon about it thanks as i dont wanna be on warfrin if possible i will look at the link after i take my boy 2 school thanks paul x

[skid112 Heart Star]

Best wishes for tomorrow or is it today, keep us updated as and when and rest please

take care

Mark

[Lisa4 in reply to skid112]

Hi Mark

Thank you I'm going in this afternoon and will be first down tomorrow morning. I'll keep you updated once I'm out of Intensive Care L x

[linchisms in reply to Lisa4]

Hi Lisa,

I hope you operation went well and that you have fully recovered. What was your experience with with Edwards Inspiris valve ? I am enquiring as a friend is looking for this valve to be used as he has aortic stenosis made worse by calcification.

Take care

Malcolm

[Lisa4 in reply to linchisms]

Hi Malcolm

Apart from a brief episode of Atrial Fibrillation it’s been really good. I only have to take aspirin and all my post op echos show the valve is performing well. I understand there are only a few hospitals using it so far and they select younger patients, I’m 51 and was accepted.

Lisa

[linchisms in reply to Lisa4]

Hi Lisa,

Thank you for your reply. I am glad to hear that your valve is performing well. Can I please ask at which hospital your operation took place and what surgeon was in charge ?

Malcolm

[Lisa4 in reply to linchisms]

Hi Malcolm

It was Mr Mariscalco at The Glenfield Hospital in Leicester. I can’t recommend him enough.

Lisa

[linchisms in reply to Lisa4]

Thank you, Lisa for your reply. My information is that apart from the Glenfield in Leicester this procedure with the Inspiris valve is only available at Harefield Hospital, Kings College Hospital and St Thomas Hospital all in the London area. I am surprised that it is not available elsewhere.

Malcolm

[conru in reply to linchisms]

I've heard the Inspiris has been used at Manchester Royal Infirmary and Leeds General also. (Nov 2018)

[Mart_B in reply to conru]

Hi Conru

I’d be interested to know if you’ve any details on use of the valve at Leeds. I’m due to meet a surgeon at LGI shortly and could use the information.

Many thanks,

Martin.

[conru in reply to Mart_B]

All I know is that at Leeds they have used the Inspiris. They’re using it more in some hospitals. You’d have to ask which surgeon uses it.

[Mart_B in reply to conru]

Thanks, I’ll ask the question when I meet with the surgeon

[MKB38]

Hi Lisa, best of luck. Please keep us posted on your recovery and share any good tips you might have. I'm still waiting for a date. Margaret x

[Hidden]

Hi and good luck for tomorrow, keep us all posted how you are, take care char xx

[IanGordon]

Great that you have the opportunity to benefit from new valve technology, Lisa. On the face it doubles the life of a standard prosthetic valve so maybe means less frequent refit and no warfarin. Let's hope it's use is extended beyond the few hospitals where it is currently an option and NICE gets behind it. Wishing you good luck and a speedy recovery.

[IanGordon in reply to IanGordon]

Oops. - should have noticed the thread dates! Hope all went well - life should have returned to a new normal if the 3 months post op recovery went ok ?

[osbornerk]

I am 68 and elected to have the Edwards Aortic valve Inspiris Resilia replacement at St Thomas hospital London in August 2017. I had Heart Ventricular Tachycardia (VT) & Heart Atrial Fibrillation (AF) whilst in hospital after the operation but could not have asked for better treatment. I still get Atrial Fibrillation but nobody seems to worry as it is quite common.

[Alison1960 in reply to osbornerk]

Hope you’re feeling fine now! I just wondered if you had a mini AVR instead if the full sternotomy? I’ve just had mine in St Thomas’s - same valve - and had same “electrical” problems on day 3.

[Tamara90]

Hi Lisa,

How're you getting on after your surgery? Someone on a valve replacement Facebook group also mentioned this valve and it sounds fantastic!

My cardiologist has said him and the team agreed I should get surgery later this year so I've been going round in circles researching and thinking about what procedure I would prefer but of course they all have their on pros and cons.

I'm 28 with a moderate/severe stenosis, a leaky valve and an enlarged aorta of around 3cm and am an outpatient. I hope I will be able to get this valve.

May I ask, which hospital were you at?

All the best

Tamara

[Lisa4 in reply to Tamara90]

Hi Tamara

I was at Glenfield Hospital in Leicestershire as a private patient. I’m doing well and back to full fitness.

Good luck with your journey.

Take care

Lisa

[Tamara90 in reply to Lisa4]

That's brilliant, glad to hear it!

Thank you for your reply.

All the best

Tamara

[Ticktock61 in reply to Lisa4]

Hi Lisa

Your journey has now become my journey so it would be nice to talk if you still check out the site from time to time

Pete

[Lavric]

Hi Lisa, I am 55 and I live in Canada. Canada only approved the INSPIRIS RESILIA valve a year ago, so we have no specific performance data for the valve. I have severe aortic stenosis due to a bicuspid valve, so it's time to replace it. The surgeon and I decided to go with the Inspiris Resilia valve. Could you share your experience with him? Do you regret choosing him?

[allgreektome]

Hello Lisa. I am going to have surgery to replace a bicuspid aortic valve, and I am thinking of inspiris resilia. How is your experience until now, three years after your surgery? Thank you.

[anniendave1 in reply to allgreektome]

Hi my husband has the Resilia 2 years ago, recovered quickly and has had no problems what so ever 🤞 he had it at St Thomas London. Hope your surgery goes well