leg weakness

[Greenmil3]

Does anyone have leg weakness? Not like completely giving way but making it feel dodgy to stand up and physically exhausted? after just like walking a few steps

[Batty1]

Im sorry you haven’t gotten any responses.. Yes to answer your question I have PSA (Psoriatic Arthritis) and it wears me down and makes my legs almost like jello if Im moving around too long… sad just sad.

[Greenmil3 in reply to Batty1]

Batty thanks that matches my issue as well just feel like collapsing if I move too long

[Batty1 in reply to Greenmil3]

Yes its the crappy side of PSA and the one thing doctors can’t seem to grasp when we tell them about this weird leg weakness all they say is keep moving as if somehow thats and easy thing to do… hate this disease!

[Greenmil3 in reply to Batty1]

Yep Im quite lucky that my Rheumy is fairly accepting of me but was shocked when I rolled into the last appointment as just cant walk too far at all.

[Batty1 in reply to Greenmil3]

What medication are you taking for the PSA?

[Greenmil3 in reply to Batty1]

Methotrexate and Leflunomide at the moment but if my back scan shows damage then we are moving to Biologics.

[Batty1 in reply to Greenmil3]

If you’re having difficulty walking now biologics are definitely the best option. Im on Cosentyx and Otezla .

Good site for information:

psoriatic-arthritis.com/liv...

[DriedSeaweed in reply to Batty1]

Do you have issues with insurance approval for both drugs at once? I didn’t think to consider using two different agents at once.

[Batty1 in reply to DriedSeaweed]

Im a medical nightmare and have been dealing with Psoriasis’ for 49 years and PSA for 7 yrs now I think my insurance company just realizes that I need what I need and don’t flinch …..unfortunately for the majority of people who have insurance and need medications prescribed for PSA through their Rheumatologists and Dermatologist usually have to do a step “program” before they allowing biologics. In other words try everything else before.. I personally feel that’s wasting your time and their money.

[DriedSeaweed in reply to Batty1]

I noticed the new Bimzelx has a 2 year cheap copay program if insurance will not cover it. I figure I could try this if insurance doesn’t play ball.

[Batty1 in reply to DriedSeaweed]

Lots of people use the manufactures copay program. I only see a couple of flaws with these program's.

1. The biologic works and after 2 yrs of use you’re stuck trying to get it approved again or get insurance to finally cover it.

2. Stopping biologics suddenly can have some real consequences for not only your skin but PSA flare …. I learnt this the hard way and it’s been an extremely painful experience that I never wish to repeat never ever.

[DriedSeaweed in reply to Batty1]

Do you take Cosentyx intravenously? I just noticed you can get it as an infusion. I wonder if there is a benefit to doing this.

[Batty1 in reply to DriedSeaweed]

I self inject…. I don’t see any benefit of intravenous unless you have time to take out each month to have it done. I personally wouldn’t do it because of time.

[DriedSeaweed in reply to Batty1]

I wonder if there would be a benefit doing the first dose this way to get relief sooner then do injections the following months. Do you do 150mg or 300mg? It looks like adults have a choice. I’m 6’3 so I wonder if asking my rheumatologist about a larger dose would be wise.

[Batty1 in reply to DriedSeaweed]

Dosing isn’t based on body size it has more to do with the PSA inflammation unless your feeble or super small I guess the lower dose would be used… I have always taken 300mg because my inflammation markers are off the charts …. When I first started on 300mg Cosentyx my ability to walk was horrendous and felt relief after the 3rd shot … which when u start it’s usually a series of shots before you go to the once monthly. I use ready pens for my injections… much easier.

[DriedSeaweed in reply to Batty1]

thanks for the info!

[Batty1 in reply to DriedSeaweed]

I guess I should’ve said not all prescription biologics will work the way Cosentyx (dosing wise)

[Greenmil3 in reply to Batty1]

Its Ok for you Americans us Brits have to navigate the NHS as my health insurers said oh you have had psoriasis since you were young so this is pre existing so your not covered! so its totally a different ball game

[Batty1 in reply to Greenmil3]

Your insurer said you had psoriasis since you were young so its preexisting?? First off thats not what they are suppose to use as a criteria for preexisting “psoriasis” isn’t something you did to yourself like getting lung cancer because you smoked 2 packs of cigarettes a day it’s and autoimmune issue passed down through faulty genetics …. Oh my gosh I would fight that and fight that hard they are punishing people who have immune diseases …. Very wrong.