So after being told I had RA I was then told I didn’t as although I had lots of swelling I had no joint damage. However I test positive for the HLA-B27 gene and have swollen ankles around the joints, swollen knees, swollen Achilles’ tendon and what the rheumatologist described as tennis elbow on one side and golf elbow on the other (I don’t play either)
I have sore fingers and toes an irregular heartbeat sometimes and fatigue and flu like symptoms as well as lower back pain.
The swelling is never hot or red. I have never shown any inflammatory markers in my blood.
I have flares like the one I’m in now and feel very unwell. My mum was also tested for the gene and was negative. My father passed a long while ago but my mother recalls him having terrible scalp problems with itchy plaques. When I was younger I also had a very itchy scalp but was never diagnosed with psoriasis.
My rheumatologist say I’m a mystery because my bloods are normal and the swelling is all around the joints not in them. I’m currently on a short course of steroids but they don’t help much.
Thanks in adv x