Newby

[Immunedout]

Hello everyone. I was diagnosed with Psor. Arth. 6 years ago although have suffered a damn sight longer. I am 56 years old, have always been very active until this! Albeit I have a few more 'conditions' but I won't let them grind me down as long as I stay awake long enough to fight (lol). Looking forward to meeting and chatting with other troupers

[Meerkay]

Hi. I have had psoriasis on my fingertips for six years, and when it's bad I can't do anything. I had six months when I thought it had gone, but it's come back worse than ever. I have not found any treatment that works, and the tablets I was given gave me tinnitus. Cortisone has no effect at all. All suggestions gratefully received!

[Immunedout in reply to Meerkay]

Hi, my psoriasis is on my hands, elbows and scalp. It clears up after driving me nuts for about 4 weeks but is back after a couple of weeks. Try natural yoghurt and honey. It's a bit messy but it does seem to help

[Hidden]

Welcome to this site we hope you find place useful for support and information.

I have suffered Psoriasis and associated Arthritis and Depression for about thirty years.

I am ten years older than you although I understand there are younger members as well

Our condition is a real character builder with all its problems and diagnosis associated with its condition

BOB

[Immunedout in reply to Hidden]

I think the best advice is try and get on with your life. I try and continue as normal then suffer later. It's being constantly tired that I find difficult to cope with

[Myleen26 in reply to Immunedout]

I agree Immunedout, I've been accused of being lazy when in truth just a little excursion can leave you feeling exhausted.

[Seenie in reply to Hidden]

I love it! "Our condition is a real character builder". How true that is.

[Myleen26]

I'm not kidding you sound Just like me! Same condition. Same age, same time I was diagnosed. How canny is that.

[Immunedout in reply to Myleen26]

I remember asking my gp is it Psoriatic arthritis- no no no said he. Yes said the consultant. Today is Methtrexate day, oh joy. I've not noticed any improvement after 2 and a half years. My teeth are crumbling away at a speed so I'm thinking its upper dentures for me x

[Myleen26 in reply to Immunedout]

I'm not kidding you sound Just like me! Same condition. Same age, same time I was diagnosed. How canny is that. I know it's so frustrating. I now have tinnitus because of mis diagnosis. The doctors are not infallible. That's why it's important to keep going. Press on until you get the appropriate answer and care.

[Immunedout in reply to Myleen26]

I just go with the flow lol. My drug cabinet is now a sideboard ! I am considering opening a pharmacy. Just rattling away x

[Tracylove in reply to Immunedout]

Hi there,

I have psoriasis and suspected psoriatic Arthritis, (still waiting on referral) when you mentioned teeth it got my attention as I have periodontal disease. My dentist thinks I am young for the severity and told me I will loose my teeth in time.. my jaw bone that holds my teeth in is crumbling and my gums are receding. Does this sound familiar. I'm convinced it's related. I had bloods done recently and they found no inflammatory markers. Although I know they don't always but it's confusing..

Tracy

[Immunedout in reply to Tracylove]

My teeth weren't too bad until the consultant started me on merhotrexate.. hope I don't sound condescending but this particular drug is a cyto-toxic and is widely used in chemotherapy regimen. I'm at the dentist tomorrow and i think the best way forward is to have the upper set removed and a denture fitted. It's too damn expensive to go back every time another tooth starts falling to bits lol. It will be great to smile again!

[Immunedout in reply to Tracylove]

Hang on in there. Even when your inflammatory markers go through the roof the experts won't react! You will have to suck it and see I'm afraid. My dentist is lovely, I wanted her to take the rest of my teeth out but she wouldn't. She is trying to cap the stumps! Because my mouth is so dry due to all the meds, it is doubtful that my gums would tolerate a denture.

Getting back to inflammatory markers, I amuse myself by guessing what the CRP and WBC readings will be every month lol. Sad I know but it keeps me amused

[Myleen26]

I'm not kidding you sound Just like me! Same condition. Same age, same time I was diagnosed. How canny is that.

[Immunedout in reply to Myleen26]

We are soulmates lol we have to find amusement in our state lol

[Ch-65]

Ch-65 Hello, i am new to this sight but am looking forward to reading all your posts and giving my info as well. Has anyone had any luck on many prescription meds? I have been on Methotrexate for 16months with no improvement. am supposidly starting on Simponi injections shortly but am trying Low Dose Naltrexone and hoping i respond to this as its very safe and Simponi scares the hell out of me! Has anyone out there tried Low Dose Naltrexone?

i havent had to deal with crohnic skin problems, just a bit here and there and was treated for eczema!

Thinking back, Ii had this disease in my 40s and am so dissappointed that it was never diagnosed until 2016. Can anyone share their story please? thanks cr-65

[lotsoissues]

you all sound just like me! i suffered from psoriasis for ten years even though i told doctors my mom/grandfather/3 aunts/and uncle all have psoriasis but was told mine was eczema ...no doctor did a biopsy until i developed horrific lower back pain. sure enough it was psoriasis and now i had psoriatic spondylitis. my back pain has been so bad that i've ended up in a wheelchair unable to stand up and straighten my back. my teeth are crumbling too. my fatigue levels are so high (and that was a huge symptom in the beginning for me). i now have mild kyphosis and sclerosis of the sacroiliiac joints. my inflammation levels have been elevated mostly for the four years now i've been diagnosed. most biologics have not worked. extremely high doses of prednisone have been the only thing that has helped me. my new doctor wants to try stellara so im hoping for some results. i'm on disability now and there is no possible way i will ever be able to go back to work. it saddens me. i'm 47 with a 9 year old daughter who doesn;'t ubderstand this disease at all. luckily i have a great partner who fills in the gaps for me with everythihg around the house and making sure my daughter gets to school. i encouirage everyone to be their own best advocate and demand treatment, answers, and any additional assistance they may need. doctors don't understand this disease much i'm learning and it was my own research that has helped me the most. on facebook there are some amazing psoriatic arthritis groups...one called psoriatic arthritis sufferers unite, one of the best....i would become a member on there. it's helped me tremendously! all the best.