working

[sully14]

I was wondering how many people with BD work or hold down a job? I stoped work three year ago.

[bailey23]

Hi sully

I went from being an active paramedic working 12 hour shifts. When I was diagnosed I had to drop some hours then eventually change jobs completely as I could not cope with the lifting and the long hours and flare ups.

I now work full time in an office job. Still medically related but more suitable to my condition. I find this a struggle but cannot afford to go part time for a few more years yet due to finances. I struggle on and force a smile on my face every day but not everyone I work with knows so I get treated normal which is nice.

Anyway best get on and do some work!!

Hugs

Angela

[Nemoy]

Hi Sully

I work 45 hours a week which to be honest is a struggle but has to be done :). I really wouldn't like to give up work but not sure I can do 45 hours much longer.

My boss is very good and if i need to take time off then he makes sure I can. I try not to though or I feel guilty!

My dream job was to be a paramedic but probably not going to happen unless I reach remission still going to try for nursing though :).

What did you do?

Moys x

[Denise--]

I used to work full time but couldn't keep the job after being hospitalised. I am unemployed and on social welfare now. Not entitled to anything and have bills up to my eyes!!!

On the plus side I was offered full time work in February so I can catch up with the bills then. I HOPE I will be able to keep it up!!

[Zebra]

I had almost 3 years out of work due to my Behcet's and lost my job due to the predictability of my health.I got a full time teaching job again this summer and have nearly survived my first term, with 8 days off ill due to all the bugs in the classroom.

[Sunset]

Hi Sully;

We saw a very pessimistic. I want to hold tight to life. As someone living in Behçet's disease is painful, very painful and rahmen 1986-1988 years now I do not have any complaints using medication discussions that I had with friends in my home country, whereas patients with Behçet I stopped medication use was 24 years, I've never been in control, but thinking of going to the hospital. 21 December 2012 by the end of the world is said to be his people know the yeast. In my country town of Sirince, Izmir Province Selcuk town of the people who live in a village and France said that this disaster will appear solid. I can only recommend it to friends who all Sully Behcet 's disease in patients with Behcet' I wish I had all of 2013. I can tell some friends on the site to write a review. Someone who just want to say that I'm living in Behçet's disease.

See you soon

[beth12]

Hi Sully,

I hold down a full time job working 45 + a week at times it is demanding and I do suffer with the chronic fatigue but I can't imagine not working. It is very much a case of trying to balance out and juggle home life around work and rest when ever I can, having a good boss and work colleges makes all the difference. My husband works away but when he is home he does help and catches up on all the little things I don't get done i.e. windows car cleaning etc. My daughter lives around the corner so she is on hand if things get too bad I try not to ask her too often for help as she has two young girls, but she is there and knowing that is reassuring

[SuenMike]

Hi Sully,

I retired from a senior administration job last year (two years later than my retirement date), and managed to hold down the reasonably demanding job although I was allowed sometimes work for home. Luckily, I had a very sympathetic boss (his wife suffers from MS and so he knew all about chronic diseases) and the HR department contacted the Society for information too.

I think it is important to keep living a reasonably normal life unless the symptoms are very severe. My fatigue was pretty bad and there were days when pain stopped me doing anything, but I still managed to keep going.

After reading so many blogs, I think I must my disease is less severe than many of you. I have been very poorly, and hospitalised in the past, but I am on a regime that keeps most of the symptoms, apart from the fatigue, at bay for most of the time.

[goodlife]

Hey its great to know that it is possible to hold down a job with Behcets. I guess it's all about managing the symptoms as well as possible.

I started back at work after a 9 months absence...(.I had a very dramatic neuro onset) a couple of weeks ago and I am finding it incredibly difficult to manage 4 hours on a Tuesday and a Thursday.

I think some of the problems are that it can be so long to get a diagnosis, and threfore get treatment to resolve the symptoms that prevent us from working.

Hopefully once you get that diagnosis, you then gain access to the experts at the centre of excellence....its a bit frustrating for me as I live about 10 mins away from a centre of excellence but do not yet have a confirmed diagnosis.....I feel I am missing out on so much help.

I am really enjoying seeing different people, I was feeling so isolated as my friends mostly work and I was quite lonely (apart from you wonderful guys)

I'm not sure i am going to be able to build back up to full time again, but time will tell.

(Angela I am so proud that i am writing this message on company time - WOOHOO)

Jill

[bailey23 in reply to goodlife]

Good for you!!!!!

x

[devonshiredumpling]

I retired in 2007 because I just couldn't be reliable any more. It was a very stressful and busy job but I miss it something rotten. It's the camaraderie I miss most though - the in-jokes, the just averted disasters, the small triumphs

[Charms1]

i work full time 40hrs per week; office/desk job. i manage, some days are difficult, but i can manage my time well and accomplish what i need to do and also if i need to walk for a bit then i can do so.... even on my hour break, i can go to a relaxation/meditation room.... i can fix cup of hot tea (many kinds of tea's really help a bit).... along with motrin and also i have been taking colchicine which seems to help me... my best to all !

[Jazzy21]

I worked self employed all my life and up until 2 years ago was the case. Then my BD took hold and in the middle of a career change to train as a nurse I had to give up work. The tiredness and disability means it is difficult to hold a job. At 44 this isnt what I had planned but in reality I am now retired.

Yazzy

[Hidden]

I am lucky to be able to work part-time. Being a single Mum I find that doing a few hours in the mornings allows me to be a Mum at home.

Some days are a real struggle but my parents are really supportive and help loads with my Daughter. I live with my parents so have support when things are bad.

C x x

[Hidden]

Hi i manage to hold down a full time job I work in childcare and have a really supportive team and manager. I suffer with fatigue quite a lot at the moment but ensure I have a day at the weekend that is mine so I can rest and if it gets too much I just book time off as annual leave.