Funnies.: I truly believe that to get through... - Behçet's UK

Behçet's UK

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Jazzy21 profile image
3 Replies

I truly believe that to get through this awful unpredictable disease that you have to keep a sense of humour. I was getting an assessment for an electric self powered wheelchair. As I have Atrial Fibrillation which causes blackouts i was told this wouldnt be an option. So the only option would be and electric wheelchair that my husband could operate. But no off course as usual the words I constantly hear came "I dont meet the criteria." This time not because of my weight, or because I have am short but because it wouldnt fit through my front door. For this I would have to completely knock down the front of my home and build up a huge set of french doors. So as I have a front door I dont meet their criteria!

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Jazzy21 profile image
Jazzy21
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vikkilouise profile image
vikkilouise

The system is plain crazy! I didn't meet criteria for an electric wheelchair as I can crawl on my hands and knees to the bathroom. I wonder if they expect me to pop to the shops by crawling!

Jazzy21 profile image
Jazzy21 in reply tovikkilouise

I know. My DLA tribunal was a nightmare. They ask a million questions and as I have a terrible brain fog with my illness just stuttered through it. I am fed up with the system it just adds to the pain of this awful illness.

Hi Jazzy, I've only just read this so things may have changed.

Are you in the UK?

I would be interested to know who recommended that you needed a power chair and where they referred you for assessment.

Who carried out the chair assessment and what did it involve?

Who said you would have to knock out the whole front of your house and build up french doors?

I must admit I have never heard of a remote controlled powerchair.

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