Bechet

[Tibz]

Ive had enough of the flare ups anybody going through the sameI literally cannot function 😫 anymore 😪.

[CecilyParsley]

Hi Tibz. I am so sorry that you are suffering so much because suffering is the right word. It is hard for healthy people to understand the pain, the bone crushing fatigue and the emotional impact but I think most here will totally empathise.

Have you contacted your Rheumatology helpline? I have just completed six weeks of steroids and whilst my symptoms are not gone they are far more manageable.I do hope that you have support?

[Dan_NY]

Hi Tibz. Hopefully you have some meds that will kick in soon. If not you should get to the doc. Many on here have been where you are now. Its amazing when I look back to the worst times and think how did I make it. The decisions, the thinking while impaired is not easy. Hang in there..