Behcet's Chronic Fatigue??: I had a Behcet's... - Behçet's UK

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Behcet's Chronic Fatigue??

Psalm116 profile image
9 Replies

I had a Behcet's flare-up in late August. All of my lesions, GI issues, terrible headaches have all subsided, but I am still suffering with terrible fatigue!

I've been dealing with Behcet's for the past 10-years.... but it seems that each time I have a flare-up, my fatigue seems to linger longer and longer. Have any of you had this same experience?

I am 60-years old and overall I am pretty healthy. I work at keeping a clean diet (no gluten, no dairy, no processed foods, and rarely have sugar). I never drink soda or juice. I consistently get 8-9 hours of sleep a night. I do need to increase my walking, but so often I am SO tired. I just hate this fatigue!

Thank you!

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Psalm116 profile image
Psalm116
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9 Replies
red_wine profile image
red_wine

I have suffered from extreme fatigue for as long as I can remember. I'm now in my 40s and most of the other symptoms of Bechet's I've had over the years appear to have died down, except for the constant tiredness!

Occasionally I take a sneaky power-nap in the afternoon to get me through to evening. It does affect your lifestyle, but I'm thankful that seems to be the extent of my symptoms for the time being.

Good luck with it.

Psalm116 profile image
Psalm116 in reply tored_wine

Thank you! It's reassuring to know I'm not alone in dealing with this. Take care 🙂

rooser1 profile image
rooser1

get your b12 checked. I ended up with pernicious anemia, same diet as you (34f). We generally tend to run through it more than others bc of the chronic inflammation.

supplements will falsely elevate the serum if you decide to get bw after supplementing. I suggest a sublingual complex like easy melts or superior source. I can link you if you like.

Psalm116 profile image
Psalm116 in reply torooser1

Thank you! That is very good to know. Yes, I'd like the link if you would send it. I never considered b12, so I appreciate your response. Take care 😊

rooser1 profile image
rooser1

amazon.com/gp/product/B003A...

amazon.com/EZ-Melts-Methylc...

i take both of these along with

amazon.com/NOW-Foods-Vitami...

ive never felt better

and no you cant overdose on B vitamins, they are water soluble.

Psalm116 profile image
Psalm116 in reply torooser1

This Is great, thank you!!

Mja75 profile image
Mja75

The fatigue is quite possibly the most debilitating symptomsi have...im beyond exhausted, sleep during the day or early evening at times, and have body aches and pains that ma

Mja75 profile image
Mja75 in reply toMja75

That make life extra difficult. In My case, its hard to say uf it is the bd or fibromyalgia. All i can say is it mostly responds to prednisone, which isnt sustainable in the dose that would help.....

Psalm116 profile image
Psalm116 in reply toMja75

You're right, Behcet's is difficult & debilitating. Thank you for sharing. It's encouraging to know others can empathize.

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