Possible behcets with pots

[Kb2012]

My daughter hasn't been diagnosed with behcets yet. But she does have a wicked version of pots. She's missed tons of school. She has symptoms that don't go with the pots diagnosis and i was wondering if it might be behcets that causing the pots disease. She has blisters that randomly come up on her bottom lip that ulcer. Their painful. Recently random rashes that kind if look allergic neck pain muscle pain random And weakness.And sometimes peticiahe in odd places that havenot been under strain or any pressure. She also has reynauds. Is it possible she has behcets are Abby of these symptoms

[Emily-123]

I have both Behçet’s and PoTs! Also looks like I’m a similar age to your daughter x

[Papapickle]

I am sorry to read the problems you describe and hope your daughter is able to get some relief from these.

I was advised by my consultant that behcets ulcers and legions have the unique definition of a red line all the way around the blister. Mine regardless of where they are always conform to this.

Nightmare.

I use Gelclair when my ulcers are bad to enable me to eat and drink. Doesn’t let me down often. Might be worth mentioning this sachets of gel reliever to the gp.

Take care

C