Stomach: Hi Just wondering, every time I eat... - Behçet's UK

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Stomach

Papapickle profile image
7 Replies

Hi

Just wondering, every time I eat something - whether a meal or a small snack. I am getting lower stomach pain and bloating that makes me look 9 months pregnant.

Does anyone else get this??

Thanks

C

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Papapickle profile image
Papapickle
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7 Replies
Brichel profile image
Brichel

Sure do Having a lower GI with contrast/ MRI scheduled for Friday. Seems the illum, right before the appendix may be having issues with Bechet's. Although the Dr. is hoping it's either IBS or Cron's. Wonderful. Will keep you posted.

Pixie013 profile image
Pixie013 in reply to Brichel

Hi. I have gastrointestinal Behcet's that causes a rapid 40-LB weight loss and a lenthy stay in critical care when it flares. Rigorous treatment (rather than dietary changes) is essential to survival during tht difficult time.

Do you plan to connect with your doctor? Wishing you the best.

Blearyeyed profile image
Blearyeyed in reply to Pixie013

That's really interesting , although obviously as I have been experiencing gastro flares and weight loss like this for nearly ten years I am really sorry for you because I understand the level of pain and discomfort it causes.

As yet , at my CoE appointments there have only been passing comments about my gastro symptoms , although these have been present for years , and caused a gall bladder removal back in 2014.

My symptoms and the damage done by them over the years mirror yours and Papapickles entirely. Extreme IBS pain and bloating like a pregnant person on eating ( I have timed photos that show me grow from thin to the look of a seven month pregnant woman in 20 minutes and then an hour later it's gone again!) , stomach and pancreatic pain causing hospital admittance regularly with low level fever , and rapid weight loss.

As you say , although dietary changes can make some difference in relief generally when a flare is not happening , if gastro symptoms flare up life changes are not enough.

I will definitely be making sure that they take more notice of my gastro symptoms at my next clinic review because they are being overlooked and the damage it has caused over the years should be getting more consideration in my diagnosis.

Thanks , Bee x

ch1982 profile image
ch1982

Yes. I used to get the same until I gave up gluten.

sam0511 profile image
sam0511

Try cutting out dairy and gluten - I'd try just gluten first

gillianTS profile image
gillianTS

Hi Papapickle

Yes I used to get this most days, its very uncomfortable. I removed all refined carbohydrates, potatoes and started a mainly plant based diet which helped.

But I was still having some issues and the only other thing I was taking that could have been a problem was Omeprazole so I told my rheumatologist I was going to stop taking this because I had read of others having bloating, pain and discomfort so I gradually reduced them to every other day then every 3rd day etc. I felt so much better coming off them and only get issues with bloating if I eat the wrong things, which I have removed from my diet but still have occasionally 😊 like pastry, toast, mainly flour based products.

I simply set a date, removed everything from the cupboards, set myself a series of meals, went shopping and started. It was a little odd not having potato based products and pastry as well as desserts, love crumbles, sponge cakes etc 😏 but started making yogurt and kefir and added fruits, became creative with vegetables and salads, chopped my protein up to make it appear more, amazing how a slice of cheese can look like lots when chopped in little pieces. Replaced rice and pasta with the occasional quinoa or buckwheat, spiralized vegetables to make it look like spaghetti. I have porridge for breakfast with fruit and yogurt, I eat more seeds and nuts, some pulses make me bloated too which is very common, I was told to rinse pulses much more then boil for ten minutes then thoroughly rinse again then cook the normal way, rinse again if eating cold, which seems to help a little.

Recently I have had more carbohydrates when ill last month and my body reacted badly to this, I have been speaking to a friend who is gluten and lactose intolerant and seeing how she gets on, I am going to have a try at gluten free flour for when I have visitors and for those occasions I really want a piece of cake or a slice of toast 😁

Might be worth you experimenting with your diet for a month to see if this helps in anyway. Or maybe write down everything you are eating and drinking and make a note of any triggers and work through eliminating these products, I found it easier making the full change after planning what I was doing and setting a date.

Also have a look at your medication, can any of these cause your symptoms...

Hope you can get some relief really soon 🙂

rooser1 profile image
rooser1

yup, turns out i was sucrose intolerant. Being on a low carb diet, with low sugar fruits helped tremendously. I do not have stomach issues any more! I eat meat, fats, vegetables (no beets or carrots/parsnips). Of course no corn.... that is a trash food anyways.

try doing a diet elimination.... but you will need to read labels carefully. there are many names for the same thing.

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