Red hot hands and feet

[frisky]

Does anyone else experience this along with pins and needles? I've also been getting server dizziness, which I don't if its related.

Trying to stay positive but its quite hard.

Anna

[billi]

Hi, I think I'm beginning to,lose the plot!!!! Yes I do get this and some other pain symptoms, but for 20 years I've been told it's just the weather, probably rheumatism , it's in your mind etc etc. Yet after seeing so many POSTS on this site in relation to these symptoms, I now think I was just being fogged off. I am certainly going to mention this at my next appointment and hopefully get a better response than my last visit which was ....all autoimmune illnesses have these symptoms and you just have to get on with it. Just know you are not alone and together we may get some positive answers from the professionals.

Hugs billi

[andreafm]

Hi there....There have been a lot of conversations about this in the past and you can have a look at those by typing the words "hot feet" or "Peripheral Neuropathy" in the search bar above on the right. This will bring up lots of past conversations we have had.

I have Peripheral Neuropathy which gives the symptoms you talk about + numbing, cramps and spasms and twitching of muscles......horrible

My neurologist says it can be the nervous system working overtime and sometimes also a side effect from long term steroids.

You should let your consultants know so they can test the nerves in the arms and feet or do some other tests to rule out other possible causes such spine problems, vitamin deficiencies, diabetes and vasculitis and others like Raynauds where the feet/hands can alternate between freezing cold and red hot.

Whilst waiting to speak to your consultant or Doctor, it might be worth trying soaking your feet in luke warm [not cold] water with Epsom salts and Lavender.

[frisky]

Thanks guys, I often feel like I'm loosing the plot and feel gp consultant s don't believe me.

I'm kind of feel I'm at last chance saloon with medication, nothing seems to work for more than 6 months, I'm fed up with it and totally exhausted of trying to be positive to all around me. I feel guilty because I know there are a lot of people worse of, but I miss 'living' not just coping...

Sorry moan over x

[lostinpain in reply to frisky]

I totally understand. today my hands cramped and contorted so bad in the store I started crying. My husband accuses me of being a drug addict.

I also have the hot burning sensation in my hands and they get blochy. I'm only on 300mg of Gabbapentin 3x a day, and 1 tizanadine at night for my back. I was on a vasodilator but I was getting weird facial spasms and leg swelling so I stopped. Yet to have an MRI...

no need to feel bad for whining.

Di

[lesleyg]

Hi Frisky

As soon as my hands go red I know that I am starting to go into a flare. My hands were the first part of me the dermatologist used to examine.

Can't say I've noticed the same for my feet - only that they are freezing most of the time but I have been told that this pain and the brain is getting the signals mixed up. Must say that once I have sure they are warm (usually not the problem) and take some pain medication the freezing feeling goes away.

I'm rambling on a bit - hope that helps.

Lesley

[thegoodmom]

I get this same thing. It was actually one of my first set of presenting symptoms in the whole autoimmune nightmare. It was later diagnosed as Raynaud's , as others have said, also part of the Peripheral Neuropathy that for me is part of the larger Autonomic Dysfunction that is part of my Behcet's. So it is all tied together, but I have also found that Raynaud's is known to more - and therefore, sometimes easier to get understanding, acknowledgement and help with when I "trot" it out by name separately.

As others have said, temperature - especially cold, but hot, too for me, can make so much worse, as can certain things I eat, or sitting or using hands for too long in any one position combined with changes in those other factors. Pain medicine can help, as can a change in temp and position. It never goes away forever (for me). I just try to learn how not to aggravate it. Hope that helped some.

Hang in there!

[Hidden]

I could say that is a familiar feeling, but in my case, it runs in my family, and I am not sure that it has anything to do with my probable BD.

However, what I am referring to is a minor, painless heat. Once in a while though, I get an angry heat, which is accompanied by ache, tingling, and slight numbness. Is that what you are referring to? I would consider that a part of flare.

I say that it's my aggressive numbness, lol.