am on day 6 of constant pounding n throbbing head, eyes burning,blury and sensitive to light. have had no releif from pain killings and sleep really dont help. Am wondering if anyone els suffers from this and have any advice for releif? Even 5 mins would be a blessing atm
Thanks Nicky
You sound drained, you poor thing. Pop along to your GP asap to get checked over.
Without knowing what you've already taken, it's hard to offer ideas. Painkillers come in a variety of forms - there's more than paracetamol and ibuprofen - tension headache mixes OTC, codeine compounds, the triptans......and a few more in a hospital setting. I'm sure your surgery will be able to help with that.
I think there's much to be said for a multi-pronged approach. In addition to painkillers, consider doing other things at the same time? Things I have found useful are:
1. Blackout curtains. A break in an almost light-free room really gives me a chance.
2. Lavender. In a burner, eye mask, on my pillow helps me relax against the secondary tensing at the primary pain.
3. Conscious relaxation. The Japanese have an approach where you stand in front of the mirror and consciously relax your face.
4. Toast and jam. It won't help you clear your headache but I've found that a couple of bits will temporarily stop the throb long enough to do a school run/similar.
5. Make sure you're not deficient in a vitamin or protein....
6. My mum swears by painkillers plus very strong black sugary coffee. Never helped me.
7. If you feel sick, don't let it stop you from taking the painkillers. There's a tablet called Buccastem(OTC) which will lift the nausea and help you through.
I hope something works, you have my sympathy!
I'd be interested if anyone could pass on more headache tips.
Beau.
I think using Amitryptyline as a preventative to stop the headaches coming on in the first place has been the best thing for me. I used to be able to control the headache/migraine with Ritzatrapan wafers...alas they no longer touch it. Now I am on 75mg Amitryptyline a night to keep them away. I do agree with all the points raised by Beau above if you do get one...other things that help ME (so maybe not you) is to take Naproxen and take a 25mg Amitryptyline as an extra during the headache.
I do repeat though, finding a way to rpevent them coming on seems the best way and is helping me.
Its horrible when they hit, I am bedridden xx
When you do get them under control this might help in the long run. I was suffering from migraines years ago (which I now believe was the onset of Behcet's amongst other things), One tip in a book I read by quite a famous Neurologist (can't remember his name) here said to try getting up roughly the same time every day - even weekends. This was 20 years ago and I found that mine eased off, although I still tend to put that into practice still - no sleeping in.
Something else I read - Behcet's patients tend to like everything quiet (I know I do) - do you think something like loud noises or stress might have set you off to start with?
I still keep my room very dark (for sleeping).
Obviously in the short term you need to find something that works.
Les
Hi thanks for all the replies am still suffering I have been using co -ccodamol which I take every day for pain any way but not helping at all 
I was suffering with migraines for a long time but it was put down to the pill I was on so come off that and then ended up on HRT treatment at 30 was then put down to that after coming off the HRT they did seem to settle and wasnt so in my face.
I think the last 6 months they have been almost impossible to live with even the tapping on my computers keys
hurts
I have been on Amitryptyline 25mg at night for 3 years for nerve pain they did up the dose to 50mg and then 100mg but that only made me feel spaced out and couldnt get up for the school run so we had to put it back down but still made me feel unwell so I was told to only take it as and when I feel I need it which i still do now.
I'm Wondering now if all along it was the bechects as everything to seems to have gotten worse in the last 3 years even tho they say Ive had it since my 20's (am 32) many of the things I have deveolped have come out in
the last 3 years with this year having the wrose and most effect on me
I'm wondering weather I now need to be taking the Amitryptyline daily rather than as and when but as with all of us with all the other medication I take I mite just start to rattle when I walk
Sorry for the ramble
and thanks for the tips with give them ago tho it sounds to me Amitryptyline id going to be the way to go
take care all
Nicky x
Hi, I would speak with your gp and consultant as only they can prescribe but yes,amitriptyline works best for Behcet's headaches when taken every day. Also, Behcet's neurologists often say to avoid cocodamol as the codeine can add to and perpetuate the headaches...take a look at Dr Kidd's fact sheet on headaches on the BSS website. Hope you feel much better soon.
Hi, I too have suffered with pounding headaches that last for days.
After having MRI scans of my head to rule out any bleeds, the headaches have been labelled as 'migraine type headaches'.
I have tried quite a few different approaches meds wise, triptans, preventatives, beta blockers and I am now taking an anti epileptic drug called Topiramate daily, along with Sumatriptan if I do get a migraine start.
There are lots of drugs that can be prescribed by G.P's.
Go and see your G.P Hun and see what he/she thinks would be the best approach for you.
Hope this helps.
Hugs
Clare x x
hi ya am still suffer but have found something that helps a little bit so I thought I would share it with you guys
I dont know how to up load pics so just added a link to one I found on ebay
ebay.co.uk/itm/Migra-Cap-/1...
once it's frozen it lasts for about 30 minutes depending on how hot your head is 
Oh I was in my oils.. Just that short break from the pounding was very nice
Thanks Nicky
I have wondered since the onset of my migraines 10 years ago if it was some mild offset of neuro-BD. I don't respond to typical treatments in general. It has taken a lot of trial and error with different meds to finally have some sort of control. I take magnesium and propranolol daily, along with zomig and imitrex as needed for bad headaches. I also do botox injections every 3 months and even though it is torturous it has helped greatly.
Are there any doctors in Ireland who know about Behcets ??
Anyone had Bladder surgery?
Recently diagnosed Bechets
Unsure of bechets or some other autoimmune
Suffering in silence
