Help with research on autism and mental health - Autism Support

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Help with research on autism and mental health

maddy_5 profile image
4 Replies

Hello,

I am a student and currently doing a research project entitled 'What are the causes of mental illness in autistic girls and women?'. I'm making a survey to send to students in my school to gather data.

I am autistic myself, but before I send out the survey I would really appreciate some other autistic people's input. Please could you read my draft of the questions attached to check I haven't used any improper/outdated language or too intrusive questions etc.

Thanks! If you have any comments/advice about what I should put in the survey please tell me

Survey:

Have you ever seen an autistic character in a film or TV show? (Where it was explicitly stated that they were autistic) Yes, no, I don’t know/I can’t remember

Have you ever read about an autistic character in a book? (Where it was explicitly stated that they were autistic) Yes, no, I don’t know/ I can’t remember

1/2a. If yes, in your opinion how were they portrayed/described in general?

1/2b. Was their autism shown as a ‘problem’, for example for their family/friends? Yes, no, I can’t remember, other comment

1/2c. Was the character male? Yes, no, I can’t remember

1/2ci. If no, what was their gender?

1/2d. Did the character have many friendships? They had lots of friends, they had a few friends, they didn’t have many/any friends

1/2e. How old was the character? Up to 5 years old, 5-10 years old, 10-15 years old, 15-20 years old, over 20 years old, I don’t know

1/2f. Did the character have any mental health problems that were shown, explicitly or implicitly? Yes, no, I don’t know/I can’t remember

1/2fi. If yes, can you give more detail?

1/2g. If the character’s interests were described, what were they?

1/2h. What did you learn about autism from the book/TV show/film?

1/2i. What is the name of the book/TV show/film?

Any other comments/details you can remember about the character?

Your knowledge about autism:

(yes, no, I don’t know)

Do you think autism can be cured?

Do you think autism is a neurological illness/disease?

Do you think autism is a mental illness?

Do you think you can be born autistic?

Do you think both adults and children can be autistic?

Do you think autistic adults are ‘less autistic’ than children

Do you think a person of any sex can be autistic?

Do you think a person of any gender can be autistic?

Do you think boys are more likely to be autistic than girls?

Do you think autistic people can have mental illnesses?

Do you think autistic people are more likely to have a mental illness than non-autistic people?

Do you think you can tell if someone is autistic without them telling you? (Yes, no, sometimes, I don’t know)

What do you think of when you think of autism?

Are you autistic? Yes with a formal diagnosis, Yes with a self-diagnosis, No

If yes, and you’re comfortable answering:

Have you ever been bullied? Do you think being autistic was a reason for this, why?

Have you ever struggled with your mental health? Do you think being autistic played a part in it, how?

Have you ever experienced judgement or discrimination because you’re autistic?

Have you ever seen autism portrayed inaccurately in media, like a TV show, film or book? Can you give more detail?

Have you seen autism portrayed accurately in media?

Do you think being autistic can make friendships/relationships more difficult? Tick all that apply.

Being autistic makes no difference

Being autistic can make relationships different to other people’s relationships but not necessarily more difficult

Being autistic has made making friends more difficult for me

I find friendships/relationships difficult but I think this is unrelated to being autistic

Being autistic can make friendships/relationships more valuable

Being autistic can make friendships/relationships less valuable

Being autistic makes friendships/relationships easier for me

I don’t know

Other

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maddy_5 profile image
maddy_5
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4 Replies
Kastaka profile image
Kastaka

Calling the section 'your knowledge about autism' makes me think it's like a school quiz with correct and incorrect answers and I don't want to complete it in case I get it 'wrong', even though many of the questions aren't like that. Maybe 'your thoughts on' or 'your opinions' instead?

maddy_5 profile image
maddy_5 in reply to Kastaka

Hi, thanks for your feedback. From my perspective, those questions are right or wrong questions. E.g., 'Do you think autism can be cured?' the answer is no, ASD cannot be cured. I'm going to change 'Do you think autism is a neurological illness/disease?' as that one is worded in a confusing way. But if i was to continue: 'Do you think autism is a mental illness' the answer is no, ASD is not a mental illness. My intention is to see if people's general knowledge about autism is accurate, so that I can explore the stems of stigmatisation and judgement etc. If you think people won't want to answer just because emotionally they don't want to get it wrong, I can understand that, but there is no consequence for getting them wrong and I don't think that means its a fault of the survey itself. My plan would be to display the right answers afterwards so that I can educate people and provide resources, not to shame people for being wrong or anything. Its more of a learning opportunity. I totally appreciate what you've brought up though.

Kastaka profile image
Kastaka

Also you might want to define your terms re sex and gender, eg sex assigned at birth, especially if people can't see all the questions at once - I've abandoned surveys in the middle before because a later question makes it clear that I guessed wrong about the meaning of an earlier question. Or just leave out the question about phenotypic sex altogether - it's not really relevant and there's no good way to ask it when it isn't sufficiently relevant that you can be very specific (eg people who have specific body parts, being fine with excluding people who accidentally lost them etc)

maddy_5 profile image
maddy_5 in reply to Kastaka

I agree, thanks for helping me realise this. I'm going to work on making those questions less complicated/confusing.

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