Support after autism dignosis: I feel very... - Autism Support

Autism Support

3,473 members834 posts

Support after autism dignosis

Kybella profile image
4 Replies

I feel very let down by the amount of support my autistic son has received after diagnosis I have read on the nhs guidelines what he should have ie key worker, interventions put in place education psychologist in schooi , does anyone know the services available in the newcastle area to support my child or who I need to speak to. camhs say there is no aftercare after diagnosis.

Written by
Kybella profile image
Kybella
To view profiles and participate in discussions please or .
Read more about...
4 Replies
Sharon201 profile image
Sharon201

Camhs can diagnose autism but can not treat it, that is true, I believe either education department or the local authority can activate an educational psychologist to carry out a report for your sons educational needs or the school could ask for one, as for a key worker I believe the school can also ask for one for your child. I telephoned Children social services and asked for one. with the way things are you might have to do all the telephone calls to get your son recognises as needing help.

Good Luck.

I had excellent support from Civic Centre and Social Workers - they found support and specialised school/college for autism

joyann1 profile image
joyann1

That's sad you and your son are going through that. My son was diagnosed with autism 2 years ago. Once a year he goes to a specialist. He sees his school psychologist weekly, he had speech therapy and OT both once a week until he no longer needed it. In addition to parent teacher conference, I have meetings with his education team of his main teacher, special ed teacher, psychologist, and principal a few times a year. I was given a book about children with disabilities and their rights with helpful resources. The clinic you go to and the one that diagnosed him should have been more helpful on assisting your family's needs.

I wished I was more informative on my son's rights. The school staff told me they were thinking of expelling him for a few days. I wanted to scream at them but didn't. He was 5 at the time!

I hope you will find a good support system :-)

Yesno profile image
Yesno

Your son should have a EHC Plan. He should be assigned a Key Worker and you should be having regular meetings with the schools SENCO. You should speak to the SENCO about this and if there is still nothing being put in place I would suggest going to the government as it is a law that he needs a EHC Plan. Hope this helps.

You may also like...

Support groups for Autism

Can everyone in this community who knows of any support groups in their town comment below and list...

Private autism referal

Hi, I was put on a waiting list of an autism diagnosis however it’s a year long waiting list I was...

struggle with autism and feeling lonely

there is any advice or chat rooms or people to speak to as im feeling lonely and don't really have...

autism assessment tomorrow...

Looking for advice - suspected autism threatening my career

myself worth due to having an \\"autistic tag\\" on. I am aware that speaking up and creating...