starting acetazolamide

[macforme]

Hi I have just been put on this for my ataxia. Currently having a very bad (long) episode with terrible dizziness as well as the wobbles. Please can anyone tell me what to expect..how will it help? Thanks!

[Hidden]

Never heard of that drug macforme. I take Bethahistine tablets every day for dizziness that is associated with Meniers Syndrome.

[Donnybluewayne]

Not heard of medicine either, but I have occasional dizzy spells (not to be confused with imbalance) and my sight goes a little foggy, GP and consultant (ataxia) think it may be low blood pressure and in my case not to worry about it. Fingers crossed!

[daisyd]

Betahistine has been a wonder drug to me no side effects on me either,

I tried to stop it once and had to crawl as I couldn't stand up

The reason I take it is because of dizziness, I think caused by antiphospholipid syndrome and sneddons syndrome,I don't have meniers disease, good luck hope it works out well for you

Karen

[Willowpuss]

Had ataxia for over 20years now and never been offered any medication,was always told there isn't anything,so it has become a part of my identity.In my experience any drug which has nasty side effects,Forget it!!.

[Dory]

Think it's supposed to help with the ataxia. It can also act as a diuretic so you should drink plenty of fliuds (not alcohlic!) to prevent dehydration (& possible associated headaches)

[HarryB Administrator]

Hi macforme

Acetozolamide can be is used in people with Episodic Ataxia Type 2 to help with dizziness and reduce the number of attacks the person has. Do you have EA2?

Harriet

[macforme]

Yes EA2 is my presumed form of ataxia:/