Trembling : Hello I have SCA6 and it has been... - Ataxia UK

Ataxia UK

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Trembling

Kauri1 profile image
10 Replies

Hello

I have SCA6 and it has been effecting my life for about 5 years, I am 67 years old,

Just recently my hands have started to shake. If I just hold them out, nothing happens but if I hold a cup they or an unbalanced weight they start shaking.

Has anyone come across this type of trembling and is there anything that can be done to reduce it?

Thank you.

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Kauri1 profile image
Kauri1
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10 Replies
wobblybee profile image
wobblybee

🙂 I don’t have SCA6..but I do know ‘trembling’ is fairly common.

It’s worth speaking to either your GP, or Neurologist..medication could be offered to help with this.

Kauri1 profile image
Kauri1 in reply to wobblybee

Thank you, so maybe medication does exist. Again thank you

7151 profile image
7151 in reply to wobblybee

No médication was offered to me apart from somthing cant think of thé name begain with G ...has à very nasty réaction for me ..no i havent got parkinson nor alzima ( all be rulled out after all my neurologue tests

Ostap profile image
Ostap

Could be intention tremors. Difficult to treat, and can be very disabling if progressive.

paul456 profile image
paul456

Hello Kauri1

I have scr6 and was given Pregabalin for nerve pain and tremors seemed to work must of the time 😐

Take care my friend.

Kauri1 profile image
Kauri1 in reply to paul456

Thank you so much

PatsyIpswich profile image
PatsyIpswich

I also have been prescribed pregabalin by neurologist and have benefitted for many years. Also I take magnesium supplement in the evening . Take care x.

7151 profile image
7151 in reply to PatsyIpswich

Gabalin had nasty side affects for me

7151 profile image
7151

Yes trembing is à drag i think it is all part of thé parcelle ...for me it Côme and goes ..yesterday i ventured into Action did nt need much i dont usualy go in shops get most things delivery ! Anyway only à few bits its so cheap but when i got to thé payout i trembled from head to foot ..held on to thé counter for dear life ..i did have my spécial walking stick with à sept but in this situation hopeless i count my blessings 2 wonderful angels ( women ) helped me ..another aventure 🌹

PatsyIpswich profile image
PatsyIpswich

It might be worth me mentioning here, when I had private home personal trainer, she tried to get me walking holding my hands but trembled uncontrollably. I asked my nhs neurophysio about it and she explained how messages from brain to muscles are affected by what we hold on to. Hope that helps x

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