Hello people

[Tallguy101]

Hi all, a bit about me. I was diagnosed in 2007, but had small issues 2 years before so I guess I'm fairly used to it now. I'm 53, so probably started noticing issues at about 36. I used to off road mtb, swim and run so was pretty active. I really started to struggle with my mobility around 2016. Now I'm retired from work 2 years ago, because I was finding it very difficult. I see Paulo Giunti at Queens Square each year, but like so many of us I still have no diagnosis of which type I have.

Anyway, that's enough of me!

[suzie44na]

Hi, yes me too no definite diagnosis, yet I have ataxia. I find it all stressful not knowing the proper cause. I am waiting for more results but taking ages. Wishing you all the best.Suzie

[wobblybee]

Hi, welcome🙂I’m also diagnosed as Idiopathic. Not knowing the exact cause doesn’t overly concern me, it was actually having ataxia confirmed that helped me most.. I’d been told by my GP that she’d tested for everything..and it really didn’t help

🙂 After having unexplained falls I was finally given a diagnosis of Idiopathic Cerebellar Ataxia in 2011..but I’d been coping with worrying symptoms since the mid 1990s.

[Knittlng]

Hello, I was diagnosed with progressive Cerebellar ataxia a year ago after many years of problems. I have a feeling that this consultant just gave me the diagnosis so that I could get insurance to go on holiday, and I guess whatever the diagnosis we are all pretty much the same.I find writing on here questions and answers helps quite a lot, so welcome

[Sherena]

Hi, I was diagnosed in 2015, I have spinocerebellar ataxia 3, symptomatic for a few years prior. I knew I had it only because it's genetic and my dad had it and my older brother has it. So when I became symptomatic I knew what it was but the consultant told me I was being paranoid and the only reason he tested me was because my brother had it! I live in the NW England and not close to an ataxia centre which means I struggle as my gp blames everything in my ataxia and I am advancing very rapidly, I am 36 by the way.

Welcome tallguy101. 🤗