You may have seen HarryB's post below.
Ataxia UK is supporting the campaign initiated by FARA to press Reata Pharmaceuticals and the US Federal Drugs Agency to approve Omaveloxolone for the treatment of Friedreichs ataxia. The 45,000 signatures received so far (50% of which are from outside the USA) are showing the level of support from right across the world!!
The campaign asks people to sign their open letter to the US regulator, FDA, and Reata pharmaceuticals. The letter is to request Reata to submit a new application to the FDA for the approval of Omaveloxolone based on current evidence. You can find information about Omaveloxolone here-
ataxia.org.uk/research-news...
Currently the drug has not been approved for normal clinical use. Ataxia UK is supporting the campaign. If you are interested in knowing more, and to sign the letter, please go to this link:
curefa.org/advocacy?fbclid=...
Sue
What support did you get after diagnosis, and how were you told?
Dudley & Wolverhampton Ataxia Support Group
Relatively new to Ataxia
Another study supporting Niagen for Ataxia.
